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Frustrated with my Dr.about my CSS!

AnonymousUserAAnonymousUser Posts: 49,208
edited 06/11/2012 - 8:27 AM in New Member Introductions
Hi everyone,I have finally figured, I think all this bloging posting thing out.I never had a chance to introduce myself.Im Dar,and I have CSS C2-C5 in my left neck.I was working as a nursing assistant for 5 yrs,until I started having wicked pain in my sholder,going into my neck causing migraines.I was off balanced,was confused,and couldn't focus at my job. I didn't know what was wrong with me,I went to a Dr and said it was migraines. It was more than just migraines,so I seen a different Dr,who had me see a someone who specialized in nurology "migraines". She sent me in for a MRI,and thats when I found out about the stenosis. I was in tears everyday because of the pain. I was put on gabapintin,imitrx,and ibprophen for the pain. I had a steriod injection,and didn't help me. Then,they wanted me to get the RF done.I had that done in May last yr and it took a long time for me to feel no pain in my neck. I still have pain not as bad. I wonder if Im going to be back to square one when my nerve grows back. It last anywhere from 8-18mo. I decided to see a specialist in the neck n back look at my films. He said my stenosis isn't that bad. I know it is moderate,and I knew that I couldn't return to my duties as a NAR,when he said I should.I really dont like this Dr,he does't seem to care at all. I never got any relief from my pain, and suffered for a long time. I still get the migraines from my neck pain,but not everyday. I have no support and noone who really knows what I have gone threw and the pain I have suffered. I have suffered from depression and have been medicated for that.I have tried my 2nd med now,hope it works well for me.I have pain in my left arm,numbnes and numbness in my thumb,forefinger,middle finger and sometimes in my left arm. I also,think I have stenosis in my lower back.I have had pain in my right hip that runs down into my side of my leg started around the same time of my neck pain. One Dr said it was Brusitis,now I am starting to believe it is stenosis cuz,my left hip hurts when I get up like im an old crippled woman. Im 37 and I dont understand how my life could change so derasticly and the pro's can't tell me why I got this. I think it's from my job,but I can't prove it. I don't get workcomp,or anything. I am angery,sad,and disapointed that no one understands me. I have been threw hell and at times I wish that some one would listen too me! So,I will keep on living and I need to find a job. I hate it cuz I lost a good paying job,with benifits.I am a divorced mom of 4,my oldest 18,14,12&8 two girls,two boys.I am in a realationship and plan on spending my life with him. He sometimes just doesn't know what to do or how to answer me. I need to return to college,but Im going to be limited as too what I can do. I am frustated! I need to have a functional exam done,and it is for 2 days and 4 hrs per day. This will tell me what limitations I will have for long term. Im now reading that stenosis gets better? Is this true? I need advice,positive feed back,support. Please help me threw this battle!


  • Welcome to S~H :H

    I used to work as a nurses assistant too,many years ago.Hard work that is,hard on the body!

    Hey-I had ESI's too and they didn't help in my neck at all,but I have BURSAE in my hips and the injections worked there as if like MAGIC.As a matter of fact,after several epidural injections in my neck [at different times],and 12 TPI's {all in the same day}-I've decided to never again have injections of any kind on/in my neck/spine.

    I WILL get the injections again in my hip though.Like you,I felt like a person well advanced in years {old-lol},but I limped into the hospital and walked out with NO pain in my hip AT ALL.I only wish that the injections worked in my neck-even HALF as much.

    A lot of times we tend to think that when we get a problem-say an ache or pain somewhere,that it's associated with our DDD,or whatever spine problems that we have,when the reality is that there are times that new problems in our bodies may crop up that have nothing to do with the ones we are already dealing with.

    The hip pain that you have may not be Bursae OR stenosis.What I mean to say is that because you have the problem in one area,it's normal to blame a new pain on the old,or recently dx'ed issues---when the reality is that they may be unrelated.Of course they could be the same too.It's frustrating I know.

    Whenever my hips started hurting I thought for sure that the DDD was spreading.It's weird to me too because if you DO end up with BURSAE like I have,we aren't the only ones getting problems in our cervical areas and then getting bursitis in our hips shortly thereafter.I wonder about the connection,if there is one.

    I hope to hear more from you.Please keep us posted :)))
  • hi and welcome to the forum! :H we are here to offer you support and answer what questions we can. stop by anytime you are feeling down.. :D there is always someone to listen! good luck as you seek pain relief! Jenny :)
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  • Hi Dar,

    Welcome! I'm new too... awaiting surgery on 24th. Hope your new meds worked ++++++. Just wondering when was your last MRI? Just wondering if there've een any changes in your spine?

    Take care,
    L4-L5 fusion 1998; ACDF C4-6 2008; DDD
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