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DONT KNOW WHAT TO DO

AnonymousUserAAnonymousUser Posts: 49,321
edited 06/11/2012 - 8:28 AM in Scoliosis
HI! MY NAME IS JENNIFER. IN 1990, I HAD SURGERY FOR SCOLIOSIS. I HAD A C SHAPE CURVE IN THE MIDDLE OF MY SPINE. I WAS 11 YEARS OLD AT THE TIME. NOW I AM 29 YEARS OLD AND I HAVE THE WORST BACK PAIN EVER! I WENT TO MY DOCTOR AND SHE TOLD ME THAT I HAD ARTHIRITIS IN MY BACK. SHE REFERRED ME TO A SPECIALIST, BACK TO THE CLINIC THAT DID THE SURGERY WHEN I WAS 11. THEY DI MORE XRAYS AND TOLD ME THAT MY SPINE WAS BEGINNING TO BREAK DOWN UNDER THE BONE FUSION THAT WAS DONE PREVIOUSLY. HE SAID THAT I SHOULD GO FOR SOME PHYSICAL THERAPY THEN HE IS SENDING ME TO ANOTHER SPECIALIST OUT OF STATE TO TALK TO ME ABOUT MORE SURGERY. I COULD LOSE MY ABILTY TO WALK AND BE PARALYZED FROM WAIST DOWN AFTER THE SURGERY. THIS IS REALLY SCARY FOR ME BECAUSE I AM 29, SINGLE MOTHER OF MY 7 YEAR OLD SON. I DONT KNOW THAT I WANT TO HAVE THE SURGERY BUT THE PAIN IS ALMOST UNBEARABLE! I NEED SOME ADVICE! PLEASE HELP!
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Comments

  • Welcome to Spine Health. I'm sorry for your situation, but it is really important to stay as calm as possible and just see what the doc has to say and recommend.

    When do you seem the new specialist?

    Hang in there, no matter what, you have a place to come here at Spine Health.

    "C"
  • RangerRRanger on da rangePosts: 1,033
    I echo what "C" has recommended, it is important that you stay calm, be your own advocate, and research all your options. You do have time so don't rush into anything at this point. When I first was diagnosed with my issues a lot
    of things run through your mind. Over the years I look back now and realized all it caused me was unnecessary stress.
    You mentioned arthritis in your spine, do you have a rheumatologist to help you? If not have your PCP refer you or ask around to family and friends of a good rheumy in your area. I can not tell you how much good my rheumatologist has done for me and referring me to the specialists and surgeons I need to see. There is a wealth of information here so do check it out. Best of luck to you and keep us all posted here.
    Take care,
    Ranger
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  • This back business can be a tough ol road! I was about your age when i had my lumbar fusion... i remember your fears very well. My advice is just like C's and Rangers...stay positive, visualize your future self (WALKING!!), doing your thing :D , believe and have hope!! I was so afraid that i wouldn't be able to be the mom i wanted to be to my 4 year old at the time... but at the same time I just knew, for me, i was doing the right thing...and it all worked out. I think its also important for you to get facts from your doctor... there is always a risk from any surgery, but the risks are in percentages. FOr example, i'm about to have a double ACDF (see my sig line below), and my doctor told me that 3 people in 100 have permanent swallowing problems after the op i'm having; and that 1 in 10,000 become paralyzed asa result of the op. I don't know what odds are involved in your surgery... but in my case, i take comfort that the odds are soooooo low, possible, yes, but likely that i'll be paralyzed... very very low.

    So while you continue on this journey... just stay positive, come here and have a good ol moan, vent, talk with others in the same boat... and then hopefully go away refreshed so that you have the strength you need to stay healthy <:P <br />
    Best of luck
    L4-L5 fusion 1998; ACDF C4-6 2008; DDD
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