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Full Fusion due to Curvature



  • I got your PM and replied to your email address, hope you got it ok.

    The pool will be so good. Is it outdoors? I'm very happy to hear you sounding more positive. I hope you start feeling less stiff and brighter generally and can start feeling happy about almost being off narcotics after 12 years. That would be a wonderful achievement.

    What you've been through is massive, and it's bound to leave you feeling a bit down as you wait to feel some benefits. But I am sure they will come. Ask for help when you need it. I've found people really want to help and are simply waiting to be asked.

    Good luck Foxy and keep us up on your progress!
  • How are you going Foxy?
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  • I, too, am facing a large scale fusion, from T10 to S1 and have been scared to pieces. My first fusion was 2&1/2 yrs. ago from L1 to L5 but the pain only changed, not better. I'm seeing a new specialist & like him a LOT better than the dr. who did the first fusion. He does a lot of these procedures & sees a lot of patients who come to see him after having minimal success with other docs. I have been so worried about what life will be like after the surgery, after the recovery period. The idea of never bending & twisting again is more than I can imagine. Thankfully I have a wonderful husband who now has plenty of practice in taking up all the things I can no longer do (thinking about sending him to cooking school, though, lol) but I've been very concerned about the realities of never being able to bend again. Can you still drive? Can you work? How is your day-to-day pain levels & what meds do you still need to take? Don't mean to drown you with questions but I don't know anyone who has had such extensive fusions. Any input & advice would be greatly, greatly appreciated. Hope you continue to do so well. Hearing of your success gives me hope that I can do so well, too :)
  • Hi AnnieM
    Just thought I would let you know that you are not alone. There are several people around that have huge fusions. I am fused from C/4 to L/2. This is 18 levels.
  • rich57 said:
    well ...... as of march 08 i had a 38 degree curvature in my lumbar spine, the ortho doc wants to do a full fusion ... top to bottom !!! it's a wicked surgery. he said i would lose about 45% of my mobility plus the spine would be obviously fused ( no more bending )complete with rods and screws.
    my gosh !! this is just terrible. i am 57 years old with several back issues ( oa, plus 2 herniated disc ) just simply a mess.
    is there anything i can do to slow this curving process down ? i can actually feel the spine as it is moving ribs etc out of it's way as it curves.
    i'm just really upset about the whole deal.
    any suggestions ? anyone else know of someone who has had a full fusion ??

    blessings to all
    hi all, i am a new member of forum. would a newcomer be warmly welcome here? good day you guys!!!

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  • You are very welcome, jezzicaz789.

    Reading this again, I wonder how Rich got on. I would have thought his 38 degree curve as quite minimal, in fact below what most surgeons would touch. Certainly not warranting a full fusion top to bottom, which I think is what he's saying. I do hope he got another opinion with a scoli specialist surgeon as opposed to a regular orthopedic surgeon.

    Rich, if you're reading this, I'd love to know how you're getting on. I have a long fusion and I certainly didn't lose 45% of my mobility. I'm practically normal (well, that's my story and I'm sticking to it.) ;)
  • katecarrkkatecarr Posts: 2
    edited 12/14/2015 - 1:23 PM
    I am fused from C1 to T2 and from T10 to the sacrum and can tell you it's much better than the pain from herniated discs. However, there are few (2-3) surgeons in the country I would allow to do such extensive surgery. They are at [edit]. There may be a couple more I don't know about. This is very serious surgery, usually involving pedical subtraction osteotomies, with major recuperation time. I wouldn't dream of having it done without a second opinion by another spinal reconstruction surgeon.
  • SavageSavage United StatesPosts: 7,385
    welcome to spine-health
    please click on link for helpful information!
    Honorary Spine-Health Moderator
    Please read my medical history at: Medical History

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