My name is Joe. I'm from Janesville, WI. Early this year I found out I had an ependymoma in the fluid column in my c-spine.
I was having back pain for a little over a year before it was found, but thought nothing of it. I thought it was due to sitting in front of a computer for a living and not watching my posture. The pain was getting worse over time, and my Chiropractor was unable to help. I went to my doctor and he suggested physical therapy. This did not help, and some of the exercises made the pain worse. At the same time, I was starting to get a cold and when I would sneeze or cough, I would get "zingers" that felt like electrical shocks going down my arms. I told my doctor about this and he immediately ordered an MRI. This is when they found the tumor. I was referred to the Surgeon at my local hospital and he showed me the MRI pictures and explained what was going on and immediately referred me to EDITED hospital in Madison, WI.
I was scheduled for surgery within a couple of weeks of finding the tumor. My tumor was fully removed by Dr. EDITED at EDITED. The surgical team there did a great job of getting it out and putting me back together. I was in recovery for 4 days before I was moved to the rehab wing of EDITED hospital.
I was put under the care of Dr. EDITED for rehab, which I was doing inpatient for almost 2 weeks and continue to do outpatient therapy 2-3 times a week now.
I am coming along pretty well. The pain is gone for the most part. I am still having problems with balance and strength of certain parts of my body. I am walking on my own for the most part, and only use my cane when going for long distances or going somewhere crowded. I am still unable to drive due to my right leg having some odd issues compared to my left. It's hard for me to tell where my foot is without looking at it.
I look forward to reading more about my condition and offering any help I can to people that are or were in a similar position.
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Edited by Authority Member Cath111.