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Why all the restrictions on scs permant vs trial



  • BotzBotz Central FloridaPosts: 223
    The beast is winning image:)" alt=">:)" height="20" /> I'm having a devil of a time getting it under control. Where the hell did that bottle of tingling go?

    Are you headed to Disney World or Disneyland?
    Hoping that Tink can give you some fairy dust to help relieve your pain?
    I'm live about 20 min from Disney. Disney can be pretty busy for spring break. Long lines to stand around in. Good luck! I hope the park is fairly quiet.

    On top of my issues my son went and tore his ACL wakeskating and is having knee surgery today. So now my poor wife will have to deal with too of us in pain. He's pretty miserable knowing he is down for the summer.

    Have a pain free day!

  • Yeah, spring break <:P We would prefer to not fight the crowds, but we will see! Youngest son is on a high school trip and we have frequent flyer miles! Flight cost us $10 ea :) Niece works in hotel management, found us a suite for $109 a night :D No kids staying with us = Priceless :))( <br />
    If it's too crowded we will veg out.

    Sorry to here about the ACL, my sons best friend had his done last summer, not too bad a time all things considered. They are young! He'll be out on a brace going strong in a few days!

    I was amazed at how bad the pain attacks after getting some relief, I went from 6 Norco daily to 4 while I had the SCS. When it was taken away, I struggled till Monday, then surrendered and went back to 6. All the pain after the trial has shown me that being in denial about my condition is not a good idea. Trying to pretend I don't have a problem does not heal me...I want me leetle friend!
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  • BotzBotz Central FloridaPosts: 223
    We had annual passes and would drop in see a few attractions. If the parks were crowded we would split. Your going during the EPCOT flower festival. That is very relaxing. Enjoy a couple of the concerts.

    Sitting here in the hospital waiting has my back on fire. Time to go lay in the car and wait.
  • Sometimes we become unaware of how much pain we really are in, until someone takes it away for a short time. Then when it comes back, it is showered, changed and refreshed.

    Don't worry, after a few days it will get dirty and mundane and back to its normal self once again.

    Hang in there.

  • Showered and refreshed indeed. I think it is ever so slightly less today. I have talked to my PCP and expressed me fun week post trial. I wish we could fast track my SCS, but the trip to Florida has been in the cards for almost a year now, my son will only get to go with his high school once and we promised to be "in the state" while he is there!

    I am praying that once I wade through a few pressure changes on the planes the warmer weather and a few theme parks will do me good! I actually like the escapism available at these parks. It is easy to lose yourself in the moment. I just hope my shoulder/neck/back play nice!
    I got a fresh bottle of Norco to pick up on Tuesday before I go. My happy thought is a break from the monotony of work and when I get back my Perm SCS will be approved :SS

    So, :C: you never had told me what super powers we get once the SCS is in place? =)) :H
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  • Wrambler said:

    So, :C: you never had told me what super powers we get once the SCS is in place? =)) :H
    Ah but I did! I just used some of them to make you "forget" once I told you.

  • "C" is really G girl from the movie My Super X girlfriend!

    Your not supposed to use your super powers to torture old guys!

    I actually tried to edit the Calling emoticon but since you replied that option is gone, so, Ooopsie! It's here to stay! I typed "C" but the calling guy showed up!

    We should stop now, we done murdered this thread, totally off-topic. Maybe you can use the super powers so no one notices =))
  • My pain Doctor has recomended that I try a SCS. I go the 13th. of April to let hem know what I have decided to do. I have been glued to this site reading everything i can about this implant.
    Some people say that having the permenant implant is very painful. Are you "out" during the implant? I do know they have to ask you if you feel tingling in the proper place.
    Just how painful is it?
    I live alone.....will I be able to return home and manage on my own or will i need help?
    I live about 50 miles from the hospital whare the operation will be....will i be able to stand the long car ride back?
    Do they give you pain meds to take care of the pain while you are wating for the permanant implant?
    Thanks to anyone who has some thoughts on my questions.
    Kinda nervous about this.

    Hugsssss to everyone. >:D<
    Patsy W.
  • hi Pat, welcome to the forum and good luck to you with your implant.As for your ?'s I can only tell you what happened with me.I went for the trial and was in heaven when I woke up from a twilight sleep!The trial helped me like 80% with my pain.I continued my meds until next p.m. appt and lower my main med (Kadian)morphine...Then I went for perm scs....You will need someone with you for at least 2 weeks..someone needs to change your bandage on your back where the incision is.My incision was about 5 to 6 " long.It was nice to have someone change the bandage on my hip area where battery was placed too.No turning around, you do not want to twist your torso just yet.You are "out" completely during implant..General anesthiesia:I am about 40 miles from hosp. so I made sure I had a pillow and a trash bag so I could slide into the car easier.You will not be able to drive.This is major surgery and takes about 2 to 4 hours.You will prolly sleep on the way home...I have never quit my pain meds completely and actually went back up on main one.I wish you well and check into home healthcare in your area.They came out and helped me.
  • The usual is that you are kept awake but numbed till they are sure they have the leads placed correctly. At that point they give you twilight sedatives to put you out and run the wiring and create the pocket for the unit.

    You should receive pain control for the surgical sites and how painful it is really depends on if you get paddle leads or not. Recovery is the pain from the surgery plus, no BLT, no lifting of over 5lbs, maybe a soft cervical collar for cervical patients, a support belt of some sort I have also heard mentioned but never seen one.

    You will need help to get home and I would suggest at the minimum 2-3 days till you're sure you can handle your routine. Maybe longer.

    I am on the same pain meds as I was before my trial. I have been told by my PM he wants me off them once the permanent is in. We will see if I can truly do that when that bridge needs crossed. I made no promises, I simply told him I understand his wishes. It is not the norm for PMs to expect the SCS to totally replace meds, Your doctor will tell you what he wishes to see and you should be throwing all these questions his way too!

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