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Lupus Caused by Multiple Surgeries and Infections and Meds?

ernurseeernurse Posts: 771
edited 06/11/2012 - 8:29 AM in Chronic Pain
Lupus is not my field of expertise. Anyone been diagnosed with Lupus after having complicated lumbar surgeries-infections, necrotic tissue, PICC line IV antibiotcs, many other meds?

I have structural problems and permanent nerve damage to legs from lumbar issues. But, poor balance, confusion, recent seizure, pain in ALL joints both sides of body including upper extremities not just lower, high cholesterol, mood swings, little lesions on arms(looks like I'm a meth skin picker)and now "butterfly" rash across face(which I know could just be rosacea.)

If anyone has been diagnosed with Lupus as a result of spine issues, please tell your story.

Thank you.


  • Don't confuse this with fibromyalgia,don't have that.

    BTW-this week have MRI and find out if I have to have my 6 lumbar surgery in less than 2 years. That would be number 5 to correct the initial fusion operation with BMP complications and too large of hardware, etc.
  • hi my problems with my back pain are according to my neuro surgeon not caused by the structural problems i have going on in my back.

    but trust me the problems still remain and have got no better if not things are worse. mow my neurologist is looking at lupus pernicious anaemia or ms.

    being a nurse like yourself my research makes me think lupus i fit it really well just no butterfly rash on my face although i do have a rash that looks like my face is scratched which it isn't. i am in the process of having all my bloods done.

    i just want to find out whats causing my joint pain back pain fatigue labile moods and just generally feeling like crap all the time.

    have you actually been diagnosed yet?

    good luck

    dawnie x
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  • Dawnie-

    No, not diagnosed yet. But after recent seizure and butterfly rash on face, got me thinking about all of my other symptoms and read a bit about it. With surgeries, meds, necrotic tissue surgery, etc. made me wonder if all of these symptoms are actually related. I've been blaming everything on the meds, but even on good days I'm exhausted, my fingers and wrists aches(and I'm a lumbar person.) First I thought maybe 6 weeks of IV meds caused rosacea, but then seizure and I fall all of the time. Have upcoming appts(too many) and will bring this up.
  • i know just how you feel, my problems have extended from pain in my back and legs to general pain all over my joints hence my neurologist testing me for everything.

    its so frustrating i am sure you are the same you just want to get up and feel normal, well and not like you are running on empty it is hideous and i suggest you ask for the blood work to be done for lupus and perniciuos anaemia as the symptoms are quite similar.

    best of luck and i sincerely hope things improve for you i really do

    dawniee x
  • I hope the doctors find out the exact cause of your symptoms. As you know, diagnosing an autoimmune disease is very tricky, and it can take a long time. Do you have episodes of Raynauds? Have you also had low grade fever or pleuritic chest pains? These can be some of the many symptoms, and it is hard sometimes to differentiate between autoimmune diseases without clear definative markers. I was diagnosed as having lupus at one point, and later it was changed to undifferentiated. I had tricky lab work results such as positive ANA, positive anti cardiolipin antibodies, false positive VDRL, anemia, etc. Be prepared to go on a rollercoaster ride when it comes to seeing rheumatologists- it can get confusing and stressful. I'm sorry to hear you had a seizure, it must have been so scary. Please let us know if something is found out because clearly, something is going on with you and it must be taken care of. How has your back problems been lately- have they been flaring up as well? Take care
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  • I have Lupus and have had multiple surgeries. I find that the Lupus does hinder recovery. Also nerve problems come with Lupus so are not relieved with surgery. How you find out what going on. It took me over 20 years. But the tests and education is much better now.
  • Thank you for the responses and the support. I have multiple upcoming dr appointments(boy is my social schedule full!) Wed find out if another surgery and next week neurology. It's just something else, what else do I have to do with my time? :) LOL Seriously, I really appreciate the support guys.
  • Hi Ernurse, I don't know anything on lupus, but I understand the frustration and situation you are in right now. So sorry to hear about your fall and seizure. I hope that you will get answers from all the doctors' appointment. Best of luck.

  • Adamapple-

    Have we chatted before? You sound familiar.
  • :) Hi enurse, Im so so sorry you had a fall angie,you are certainly going through and have been this long time now,I really hope you get answers as to whats going on and soon, If you do have to go through another spinal surgery we are all for you, It must be so hard on you angie not just physically but mentally too,and yet you continue to be so upbeat and strong....I remember a time in particular that you were there for me..when I was having issues with bmp[its actually 2 years now since my surgery, I have major neuroligical issues now and am having to decide if to go ahead with another spinal surgery.....i am doing a post after i write this in back and neck surgery]

    I just wanted to take this oppourtunity to really thankyou Angie from the bottom of my heart for all the research,help and information you have given many many people on this site with regards to bmp complications....I honestly dont think I would have been able to keep my gut feeling that something wasnt right without referring back and reading up on the bmp issue,and for that THANKYOU ENURSE :) ,Im sending you gentle hugs >:D<,thinking of you,and saying a healing prayer for you today.
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