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Pain is getting old



  • Hey Todd,

    I'm sorry you have the yo-yo thing going on. When do you see your PM doctor? According to my calculations, it is sometime this week?

    When I have set-backs, it does get frustrating. I can very much relate to that.

    But don't you dare give up on this new PM doctor! You just started seeing him and he can hopefully help get your pain on a more tolerable level. Our chronic pain is never 100% gone, but with the help of a PM doctor... we can get it at a level we can tolerate.

    I spend my day doing a lot of stretches and some days are more painful than others. I have to do these stretches, as they are helping my muscles and spine... get to where they need to be. It is an extremely painful process and I have good days and bad days. On the bad days, I have to resort to laying down and doing a lot of deep breathing exercises. I put heating pads all over the areas that I hurt. Sometimes even my elbows and wrists are involved. I close my eyes and focus on the areas that are in extreme pain and I try to find the most comfortable position to stay in. Takes quite a few tries, but I eventually find one. With my eyes closed, I will focus on my back muscles and try to breathe out the nasty beast called Pain. I sometimes will wind up falling asleep, which is good, as chances are I am due for my pain meds at that time.

    It's a battle, Todd. It truly is. But, one that will never win with me. I'm a fighter and if I have to invent clothing that is lined with heating pads so I can go out to a movie or dinner... I will do it! If I have to schedule my outings for when I take my heavy doses of pain meds... so be it. I will get out and enjoy myself for a couple of hours and will use whatever I need to, to be as comfortable as possible. Even if I can't eat dinner at that time, I will take it to go afterwards. I can sit and enjoy being out with my hubby and children and just sip on a soda. If the pain is too intense for me to go out, even after trying all of my coping mechanisms, I move myself to a different location of the house for distraction.

    Hang in there, Todd. I know pain very well and there will be better days.

    I'm glad you vented. I have a big list of names of people I pray for and have included your name.

    Please let us know how you are doing and how your doctor's visit goes.

    Best wishes for a better day tomorrow!


  • Hi Todd,

    Just wanted to see how your doctors visit went today?

    Hope all went well.

    Take good care,

    Tammy :)
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  • TTLC, you are always the cheerleader!! <:P urging us on to bigger and better things.. but how are you? by your synopsis i read you are even ahead of your recovery schedule!! =D> made me a little sad that you may be leaving, but so happy it you will because you are pain free and and that is your new path.. :X here i am getting all mushy about it already!! :''( keep up the good work! L, Jenny :)
  • Dearest Jenny,

    Thank you so much for the sweet words. As you know, I absolutely adore you and appreciate your support! You're awesome, Jenny. :X

    Because of the ongoing support I receive from so many wonderful people here on Spine Health... I want to give back as much support to others, as I can. It makes me feel good, when I can bring a smile or some encouragement to others. Part of my recovery, is Spine Health. I know I will be a life-long member here, as I can't leave a place that has given me so much. There might be someone else that comes along in the future, that had an accident similar to mine. Or, someone who has experienced some other kind of ailment that I've had in my life and I can offer them encouragement by sharing what I've been through. Just like you... it makes me happy to make someone else feel good. No matter what the circumstance may be.

    My situation now is up and down. I have my good days, my bad days and then my really bad days. My fall was like Humpty-Dumpty... lol. All the kings horses and all the kings men... had to put me back together again. My spine and surrounding soft tissue, that is. The hardest area hit, was in my thoracic area.

    I have had two appointments within the past 2 weeks with my Neurosurgeon and PM doctor. My Neurosurgeon wants me to continue with the home excercises I am doing, as there aren't many PT's that specialize in the thoracic area. What I have been doing on my own, is speeding my healing process... which is excellent. I do have another diagnosis, unfortunately. Arthritis has presented itself all through my spine. I will be working closely with my PM doctor each month, for an indefinite period of time.

    Arizona is going through the Monsoon season right now, so the barometric pressure is constantly falling. There are days I am so swollen, stiff and sore... that I can't get out of bed. BUT... my good days are really good now. I need to work more on my standing for long periods of time. I have about another year left of healing my core muscles. We won't know what my actual pain level will be, until the core muscles are all working. I'm glad to be out of my brace... that was a really tough time getting weaned off of it.

    So... overall... the doctors are pleased with my progress, but I have quite a ways to go still. And, that's okay. When I feel at my wits end... I'll pop on here and vent away! LOL.

    Thanks so much for asking, Jenny. I tend to sometimes keep things bottled up, but I'm working on that. I need to express myself more... let others know how I'm feeling, etc.

    I hope you are doing better each day. You have been through so much from that surgery! Take good care and drop me a note... anytime.

    Todd! Please forgive me. So sorry I rambled on!

    Again... please let us know how your appointment went today.

    Much love to all,

    Tammy :)
  • You are a very caring woman..... I wish you the best on your recovery.
    The Doctor visit went OK he did 3 facet injections L3,4,5 I must say it was painful, next time I will ask for a shot to help with the pain. The good news is I did get some relief in my foot and Lumbar. The Dr is conserned about my hip and groin pain not changing so I will be getting a Pelvic and Lumbar MRI today.
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  • Dear Todd,

    Good luck with the MRI today. Sometimes those can be uncomfortable.

    It will be interesting to learn if anything shows up on the MRI... something that could help your doctor in finding the cause of your hip and groin pain. Your PM doctor sounds to be very thorough and I'm glad your PCP referred you to this specialist. He will continue to do his best to help you.

    Since your intial post... you have come a long way with trying to get your pain at a tolerable level. You are making progress!

    The facet injections... nice to hear they give you relief. I don't think I would do very well with those... lol. They sound very painful! Don't get me wrong, I'm glad you (and others) get relief from them... but yeow!

    Thank you very much for your kind words and the well wishes... it means a lot to me.

    Looking forward to hearing your results... best wishes for less pain.

    Tammy >:D<
  • Recieved my MRI results today.
    My Pelvic Mri was Normal, The Lumbar on was not so good.Multilevel lumbar dics degeneration with laminotomy defect on the right at L4-5.

    1.4 mm right posterolateral disc herniation at L4-5 with advanced disc degeneration, advance narrowing of thr subarticular recess, and right L5 neural Impingement.
    2. Moderate L5-S1 and L3-4 disc degenration with a high signal intensity dorsal annular fissure on the left at L5-S1 and in the midline at L3-4.
    3. Moderate bilateral foraminal stenosis at L4-5
    4. Comparison with 8/23/2004 shows progressive collapse of the L4-5 disc in the interval. A rounded area of low signal intensity previously noted on the caudal margin of the disc on the right has resorbed in the onterval. The right posterolateral disc herniation seen at the level of the disc on the current examination is new in the interval.

    I will have the Dr. explain this but...this will account for my leg anf foot issues but what about the pain is in my groin.
    I expect they will reccommend a fusion at L4-5 the bad news is my neck is getting so bad I find myself dieing after a day in the office. Heating pad and No activity. I will hang tough as always. A busy career, 3 teenagers 19, 16, 14 and a very healthy wife of 21 years gives me NO other options but to push through the pain in search of a better tomorrow.

  • constant pain stinks! I can't imagine what some of you have been going through...i've 'only' been in pain for about 3 yrs....most recent MRI shows "no changes" in almost a year, but my last surgery was 15 months ago. Pain management docs are helpful, but you may have to shop around to find the right one. Make sure that you feel comfortable w/him/her and their recommendation(s). Don't be afraid to take a stand -- they may be the 'professional,' but you know your body best and what has/hasn't worked in the past.

    good luck and make sure to keep us informed!

  • After all the Medical branch block injections (facet joints)
    I have had some relief, the pain is back and I'am scheduled for RF tomorrow and I'am scared, the facet loint injections hurt like hell for the short relief they gave me. I dont what to expect How painful is the RF nurology procedure?
    The faet joint injections were done at 3 lumbar levels.
  • Hi tb7108 :)))

    I've had multiple facet joint injections, sacroiliac joint injections, and ESI's. Whenever I was able to find someone to drive me to the PM clinic and wait for me I would get the sedation. An injection of the sedative Versed. I never felt the jolt of pain that usually ran down my leg whenever I got the sedative. It also wiped out my memory of the whole procedure. <:P <br />
    If you've got a driver definately opt for sedation.

    Good Luck!
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