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why cant I find the corrct meds?



  • I did ask about SCS and my new PM dr seems to think it wont help for my kind of pain and where it is but I am going to ask about a pain pump on my next appointment.
  • Dmoon,
    If you can't have surgery, then you have two options, one is to get yourself to the largest teaching hospital you can reasonably get to and see a surgeon who specializes in difficult cases. Yours may very well be one but I do know that at larger hospitals, specialists tend to take on more difficult cases than surgeons in rural areas do. Mine was done at one of the largest teaching hospitals in NYC, so I know that those type of doctors are out there. I am not saying that you haven't sought help but I do think that you need to see both a PM doctor that has experience with more difficult cases than what it appears that you have seen, and the same with the surgeon. I know that surgeons don't like dealing with thoracic problems, but herniations at L3 through L5 and stenosis are pretty common problems, and while multi level fusions are not common , they are done.
    The cervical problem I don't understand why they will not touch it?
    Your quality of life is non existant at this point, so you need to do something to improve it. Living with constant pain at a level of 8-9 is not good. Your PM should be working extensively to get it down, to where you can manage to do things around your house.
    What I said before about not lying in bed is still true. Lying in bed is not helping you at all, in fact, is probably contributing to why your pain levels continue to be at 8 and 9. The longer the muscles continue to be used minimally or not at all, the worse it will get. I am not telling you to go picking up your children and go hiking, but you need to keep moving. Walking around your home, sitting for a little longer each day. Excercising your leg and back muscles as much as you can , each day will go a long way in helping to keep them at least functional. Twirling your ankles , flexing your foot up and down, stretching your legs while sitting, all will help a little.
    Having your husband move/re arrange things in your home to make it a little easier for you to reach things will also help. Putting a stool in the kitchen where you can slide it along the floor as you sit making a meal can make it easier for you to reach things, and rest if you have to.
    I honestly don't mean to offend you, or hurt your feelings, but you did say that you wanted to be pain free. Go back and re read your old posts.
    I have herniated discs, I know that they hurt, I also have severe stenosis, and I know that that is painful when walking or standing as well. I am not telling you anything that I would not tell anyone else who was in a similar situation. I am saying this to you because I am truly concerned that the level of inactivity is making things much worse for you at this point. Believe it or not, I am trying to help.
    Is the pain more mechanical or more nerve pain, electrical, burning , stabbing, shocking? If it is more mechanical, happens when you are moving, then your PM is right in that a scs is probably not the answer for you, however if there is a component of your pain that is electrical, trying you on a trial of some of the nerve pain meds might be worthwhile before considering something permanent like scs.
    As far as the pain pump goes, if the pain meds aren't working that well for you now, there are a select number of the opiate pain meds that can be used in the pumps, so you first would need to find a opiate pain medication that works better to relieve the pain before going that route.
    Out of all the meds that you have tried, is there one that has worked better than the rest in relieving the pain? If there is, it might be worthwhile to think about going back to that particular medication and working to adjust the dosage to see if you get better relief than you are now.

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  • What works for one of you may not work another one. Drugs effect people differently and to expect a med to fix it all is simply ridiculous. I get a lot of relief from what I take and to be honest with you, I probably would not survive without it but it doesn't rid all of the pain. It gets me to where I can function normally and that's all I ask for. Thank God we were able to get this far. It took a few months of experimenting with different meds but we made it.
  • I would definitely be a wreck without my meds. They without a doubt they help me more than the injections. I find that the oxycodone medications make me feel "high," so I stay away from them. I take both Opana's (ER and IR) and really like the fact that I don't feel like I take a narcotic medication. I think minimizing the side effects and getting to a 2-5 pain level is ideal.
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