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Bad experience at the neurologist and now I'm at rock bottom



  • My issues showed up on a CT scan.

    This is one persons opinion, someone who may have been having a really bad day to begin with too. Dr's can have lapses in judgement too. It is up to us to either accept that opinion or it we feel that it does not make sense to our inner self, keep going and find an answer from another Dr and see how it sorts out.

    I do know that some of the meds - have side effects that mimic pain. As a matter of fact - one med that I was on for more than 2 years, had a 28% chance of CAUSING Lumbar pain.

    Now since that is the issue for me, WHY would someone prescribe the med to me? So - be critical of what you are taking and look over all of the side effects of the meds you have presently. Then take the print-outs to your pharmacist and ask to speak to them abouth what they know from other patients. I ahve found them to be very helpful in sorting out which negative effects are possible, based on the patients that they see and not just the drug Company stats.

    Your education about this- will help with the fear of all of it too!

    Hope your doing better
  • Just for clarification: we all throw terms around without using them accurately, sometimes.

    When people write about a "neuro" on this board, they are almost always referring to a neurosurgeon. Jessey's bad experience was with a neurologist -- an entirely different specialist with different training.

    Neurology deals with the diagnosis and treatment of all categories of disease involving the central, peripheral and autonomic nervous systems, including their coverings, blood vessels and all effector tissue, such as muscle. Neurologists treat diseases like Alzheimers, Parkinsons, stroke, migraine, and perform testing such as EMGs and nerve conduction studies. Spineys usually go to a neurologist for testing, and, rarely, for pain management. You would not go to that specialty for a diagnosis of a spine problem. Neurologists do not do surgery.

    Neurosurgery is the surgical discipline focused on treating the central and peripheral nervous systems and spinal column diseases. Generally, neurosurgeons specialize in the spine or in the brain, but do not try to do both as each is so complex.

    Orthopedics is concerned with conditions involving the musculoskeletal system. All orthopedic surgeons complete a residency in orthopedic surgery and are then qualified to do things like set broken bones, replace joints, etc. With additional specialized (fellowship) training, an orthopedic surgeon qualifies to work with the back and spine, and becomes an orthopedic spinal surgeon.

    It should be noted that some orthopedic surgeons perform simple spinal surgeries. I personally would not want to go to one. I would only want the person with the highest level of training working on my spine. It is up to the patient to know what type of doctor they are seeing for a specific problem. Do your research!!

    It is so important to select your specialist carefully. Understanding the differences in specialties will help in making that selection.
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  • I went through the same thing! After 1.5 years of the most awful pain, and seeing Dr's who just blew me off, and the problem just not showing up on my MRI, I found a Neurosurgeon who listened, and cared. I was labled a nut case, it was all in my head, I need professional help, BLAH, BLAH, BLAH! I am sure you know the speech by heart!! So, I did PT and all the conservative measures, which made things worse, could not sit for over 1 year, and could only lay down, or stand for short periods of time. I was totally disabled. Then, I saw a Neurosurgeon who looked at me, had is partner take a look, and I did a EMG which showed damage at L5 S1. They decided to go in to take a look. It was a 3 hour surgery, and he told my husband it was a mess in there. I had a injury in Dec. 2007. No one would listen when I said all the pain started then. One moment I could run 6 miles, and next, my life was forever changed. I had a piece of bone sitting on the S1 nerve root, and bone on the L5 nerve root, and by the way, I could walk on my tippy toes, and heels. Not well, but I could do it, and my reflexes were good!!! I just kept looking for help. YOU know how you feel, so keep getting opinions until someone HEAR'S YOU!

    I had a Laminectomy at L5 S1, and a Foraminotomy at S1, and a Mesial Facetectomy at L5 S1. It has been 8 months, and my recovery has been slow, but I have 85% of my life back. I can drive, do housework, grocery shop, and GO TO THE MALL AGAIN!!!! Sitting is slow, but coming back. I can laugh again, and work in my garden, and flowers, and do the treadmill. My plans are to be able to run again. Not this year, but hopefully next!!!

    DON'T GIVE UP! Just keep looking, and get another opinion. Go to a Neurosurgeon, and make sure he is Fellowship trained!! Get the BEST! Keep us updated, and will keep you in my thoughts. sweetpotatoe57
  • Jessey, I've not had a good experience with any neurologists, I've seen a few. I would recommend seeing a physiatrist or a pain management doctor. (My PM doc is actually a physiatrist.) You may be better served as they can deal with your symptoms.

    The neurologists thought I was exaggerating my reflex tests, I now close my eyes when they are doing those tests and they're surprised how some places I'm hypersensitive and others depressed.

    I've posted to others to shop around and find docs you like. When you find them keep them. You will end up with a good team. It is frustrating though dealing with the doctors you don't like and time consuming. On top of that, your insurance may make it difficult as well. If that is the case, call your insurance and ask for a case manager. You'll have much better luck.

    I hope you are able to find a good doc that can move forward with helping you out!

  • I would never go back to a neurologist for my back troubles.

    I had an MRI of my lumbar area, my PCP said it was normal, mild bulging disc. My neurosurgeon took a look at it and listened to my symptoms. He knew immediately what the problem was. A slippage of the vertebrae over the one below, spondylolisthesis. Tried conservative therapy, which rarely helps with this condition, and had to eventually have surgery.

    Do find another doctor!! My personal recommendation is a neurosurgeon at a spinal center.

    Best to you,

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  • It really burned my you know what when reading what you went through. I'm so sorry. Nobody deserves to be treated that way.

    I hope you do find a pain specialist or neurosurgeon to figure out what is going? Nothing's worse than being in pain with no answers. I'm sorry you have to be in pain so young and I hope they get you better so that you can go on with your life. Take care
  • Thanks for all the support. I don't know what I would do without this website!

    But some information that some of you have asked:
    -I already saw an orthopedic spine specialist for several months and then he told me there was nothing he could do.

    - I do go to the University of Iowa and they have the best hospital in the state and that is where I've gone to see all my doctors for my back (ortho, neuro, etc)

    - I've had an mri, ct, x-rays, and epidural injection. Everything looked normal and the injection didn't help.

    BUT my mom called my regular doctor and he said he was going to get me into the Mayo Clinic in Minnesota where a team of doctors will work with me and figure out whats going on.

    So after such a bad day yesterday, the Mayo Clinic news made me very happy. Except, that I'll have to miss class to go.
  • Glad to hear - I search documents - on these issues and this site and Mayo were ones that kept giving me the best info.

    The forum here rocks!

  • :D Aren't moms miracle workers! :D

    Don't worry about missing school -- hope those Mayo Clinic guys/gals kick some "pain" butt! I have a good feeling about this Jessy and I KNOW that you'll get some needed help.

    Hang in there honey -- everyone wants you better real soon!

  • So sorry to hear you had a bad experience at that drs visit.
    I would have gotten up and walked out with a few choice words at the first tear he made my child shed! All that crap is as bad as a dr saying you don't look like you hurt, does that mean he's got xray vision or something?
    So glad to hear you have another option lined up!
    Good luck and keep your chin up!
    Hope it's a more pleasent experience for you.
    Some drs have the worst bedside manners and are so heartless it's absolutely
    Unexceptable, period!
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