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Myofascial Pain Syndrome - got it?

QuiltinouslyQQuiltinously Posts: 152
edited 06/11/2012 - 8:37 AM in Neck Pain: Cervical
hi all,

spine health neck friend, tamtam, made a helpful post a few days ago on the neck forum under the heading of "chronic pain". she included a link to a spine health video on myofascial pain syndrome that was very interesting. here's the link to that discussion if you missed it and you'll see the video link too if interested.

https://www.spine-health.com/forum/neck-pain-cervical/chronic-neck-pain-1 sorry, i can't get it to work right, so you'll have to copy this and paste it into the subject line or go to the neck forum and look for it. i hope it is okay to bring it again and in up this way... i feel that there are many who may have missed it.

does anyone on here know that they have myofascial pain syndrome? how was it diagnosed? did your doctor treat you for it and how? any other experience with it that you want to share?


  • I was dx with it years ago, after an injury to my shoulder, ribs, back and neck. The treatment I had was very painful. The PT used his fingers, and with a great deal of pressure, slowly stripped down the offending knots of tissue. Afterward I was a mass of bruises. It worked for awhile, maybe 10-12 months, but now the knots are back. I don't know if that is normal for them to re-occur, but with all the spinal problems I have, it probably is for me. It takes a specialised type of treatment, and a trained PT to do it right.

  • Hi Quilt

    I think the diagnosis is more a result of the treatment than a diagnosis followed by treatment. If they can manage your symptoms by PT massage and trigger point injections and it comes back after some period without treatment it is probably myofascial syndrome.

    Again my understanding is that this is the unexplained tightening of muscles in an area of the body. I'm sure that getting a diagnosis from your doctor probably depends on the doctor and their individual beliefs. SO much of the spine conditions is variable, dependant on the doctor. Doctor A may say you have X and Doctor B may say you have Y.

    I would bring this up to your doctor at your next visit. I have all of the symptoms and now treatments for this but my doctor has not given it a name yet. I think he is waiting to see what happens in the next few weeks and months before pinning a name on it.

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  • Thanks for the info. It sounds like it really varies.

    My doctor who I saw today agreed with me when I told him that I learned about myofascial pain and that I think that I have it. He then said that he could give me a trigger point injection if I wanted. I was surprised that a general practioner was trained to do it, but I trust him and said, "Okay. Let's do it." He and I picked the knot at the top of my neck and first a numbing shot and then the real shot. For me it was no big deal, but I'm used to pain I guess. I do not know yet if it helped because several hours later and it's still numb like a visit to the dentist kind of numb.

    I'll follow up and let you know if it helped.

    PS The thought of going through what Maggie did with muscles stripped and bruised - awful sounding! You poor girl. It's one thing if it works and lasts.
  • I've been getting that type of treatment for several months now. They call it deep tissue massage, where they try to break up the knots in the muscles. That only left me sore for a few days and then I was back at PT so it was a constant increased pain.

    Monday I went for first trigger point injections (3). I had PT yesterday and the knots are still there and still painful to work on. So far I am not feeling any relief.

    What I have had are more of the classic herniated disk pain down my arm and tingling in my hand. This gets worse when I am on the computer. My theory is that the muscle tension is protecting the disc problems.

    I have heard that it can take several trys to get relief. I am calling my doc with a follow up today. Can't wait to hear what he says.

    PS Only neck injection bothered me. Too much pressure and now my throat is sore.

  • Hi Kris,
    Thanks for sharing your experience. I have the same symptoms too. Have you had surgery yet?

    The last five words, "now my throat is sore" was good to hear because since my neck shot, my throat is sore too and my voice is a bit raspy like one who is recovering from a bad cold and cough, but I never had one. A weird side effect that I hope goes away.

    No help from the injection, so I guess I'll try again. What else can I do?
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  • It is nice to find others who are going through the same experiences. Not that I want others to be in pain but it is nice to not be alone.

    What surgery are you talking about. I didn't think there was anything to do for myofacial syndrome other than these injections and PT.

    It's been 3 days now since the injections and I believe that it is allowing my herniated disk symptoms to come through. I know the neuro is prob not going to believe that. I have to call him today and I have another PT session at his office so I am curious about what they will say.
  • Hi, I was wondering what type of pain symptoms any of you had before you went to the doctor and discovered it was myofascial pain....especially anyone with pain in their back or ribs I have a very intense pain in the left side of my back between my shoulder blade and my spine(but closer to the shoulder blade) that comes and goes with activity and rest and seems like its a muscle pain. I've had it for two years now and it just keeps getting worse and worse. I have had a negative MRI. My physical therapist doesn't seem to know what it is but on a couple of my visits he has put a lot of pressure on the area and it hurt extremely badly like some of you were describing when your doctor "stripped down" the knots. I'm wondering if this is what I might have.
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