I just got back from my SCS trial insert and thought I would share my experience while it was still fresh in my mind. I hope this helps others who are considering the trial. I am going to put a lot of details, so I hope it isn't too much for some of you.
I was scheduled first thing at 8 am. They got me hooked up to the IV, met the Boston Scientific rep, and the procedure was not actually started until around 10 am. At the time they gave me meds to relax me, but I wasn't knocked out. They started taking pictures of my spine, and my Dr. started placing the leads. They turned on the SCS and the stimulation was in the front of my legs instead of the back of my legs. I started hearing the Dr. saying things like, "Amazing, look at that" to the rest of the staff. To make a long story short at the end of the procedure which took 1.5 hours he told me that my anatomy was different and the nerves that are usually for the back of the legs where where the front nerves usually are and vice verse. So they were twisted. My Dr. had to map my nerves during the procedure and ended up having to twist one lead over the other. Lets just say that the procedure was painful and there were times where my legs were shocked and literally jumped off the table. During this the rep kept asking me where I was feeling the stimulation and the Dr. would adjust accordingly until they got things how they wanted.
They then taped everything up and put a soft corset around my midsection (I didn't know I was getting a corset). Then the rep took over and started working with me in my room to create 4 programs for me. Unfortunately, I got up and went to the bathroom and when I came back the programs felt totally different and I just felt them in the front of my left leg. My programmer was so awesome. She got her computer back out and had to totally create 4 new programs. She doesn't think the leads moved, but she wasn't sure what happened. She was glad that I spoke up and was happy to take the additional time with me. She is going to call me tonight to see how things are going and we are tentatively planning to meet up tomorrow to further adjust the programs. I just can't say enough positive things about how sweet and patient she was with me.
As far as the stimulation, it really does feel like an internal TENS unit to me. Right now it isn't going up as far on my back as I would like, but I am hopeful that we can continue to work on things. I am getting good coverage in the back of my legs. The thing is really very positional. I have already found out the hard way that I have to turn it down before laying down because it can get really strong. I do have pain in my back area from the incisicion and a pain med for it, but overall I am doing fine. The procedure itself was really painful and wore me out. I was crying at the end of it. But I hope this doesn't scare anyone away since this was because of my unique anatomy. My Dr. and everyone was really sympathetic and I am still happy that I decided to do the trial.
Sorry for the book. If anyone has any questions I would be happy to answer them.