Oh my goodness, I am just so excited. I had my permanent SCS (Spinal Cord Stimulator) implanted in January, 2009. I have the ANS/St. Jude Eon Mini and LOVE IT. I've had 3 back surgeries at L5-S1, and was left with severe permanent S1 nerve damage, that burned/seared 24 hours a day. Prior to the SCS, I was reclined 23 hours a day to control the burning. Any movement sent a pain flare that was excruciating. I knew that the minute I could get even a smidgen of pain relief, my hyper crazy self would get right back up and life her life. And I did!!! (I'm a young 42 year old with 20 and 17 year old boys, married 22 years!)
Pain control has been getting better and better - check it out:
Last weekend, we drove 8 hours out of town, had an hour break, then met college buddies for 3 hours in a restaurant with hard wood chairs. Now, we do something very unconventional and frankly unsafe, lol, but we put a real recliner in the back of our van. (We have the van where the seats fold entirely down in the floor). I was FINE.
Next day, had 3 hours of tailgating, a 1/2 mile walk to the stadium, I actually stayed for the game, walked the stairs to my seat, never had to take a break. Did FINE. Had an hour break, then went out to dinner for 2 hours with more friends.
Woke up and drove 8 hours home. All weekend - no breakthrough meds, just my regular long-acting and regular amount muscle relaxers. But NO BT meds!! I actually haven't had a BT med at all in 3 weeks.
But to do all that activity? Like a total normal person? Everyone was fascinated by the SCS - wanted to know all about it, because when they saw me at a wedding a year and a half ago (had to skip last years football get together due to being reclined 23 hours a day), at the wedding I way over did it and left bawling my head off. At the time, I told everyone I should be getting an SCS soon. And I did!! They were all waiting to see/hear how it went.
They did NOT expect to see the "old" Cheri, pre-pain Cheri. I felt so normal and so happy!!
I figured when I got back home, I'd be hit with some recovery, but NOPE. I'm just fine, still no BT meds.
Just wanted to share - just keep the hope. Get your SCS, lay low for 6 to 8 weeks and believe!! I still don't bend, lift or twist, but I am back to doing much of the housework using grippers and I can do almost anything I want. When I'm at home, I do rest in the recliner. I am smart about how much I do, and I make sure not to overdo it. We CAN get some of our lives back!!!