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Major Rewire

edited 06/11/2012 - 8:37 AM in Pain Management
Hey there everyone. Its been a long time since I have been here. There have been a lot of issues over the last few months. Just to catch you up - I got my SCS in late March. Started work hardening in mid to late April then pulled the battery pack loose in early May. After that there was a lot of conflict with the surgeon that installed the device. With a fair amount of arguing with W/C, my psychologist getting fussy with both me and W/C, and being flat out turned down by a couple of other docs, we finally found a doc that would take my case. I was able to schedule a revision surgery in mid-September but his first available surgery date he has was October 22. I went in for pre-surgery testing for my blood work on the 15th. I never heard anything so I assumed we were a go for the surgery. I get there, they get the IV started and do all the little preliminary things only to have the surgeon inform me that my white blood count was elevated - 18,200 and normal is about 11,000. So no surgery. I have waited 5 months for the pain in my side to stop. And now I find myself even more frustrated as I will have to wait a minimum of 4 more weeks for a surgery.
They are planning to move the battery pack from my right side to my right buttock. Not the hip area so much as more towards the middle. And he is planning a major rewire. He will not bother the cervical part of it but remove the wire and run it completely down my spine and across to the new area. He doesnt want me to have wire running all over my back - but then again neither do I.
So at the moment we are kind of back in the waiting mode. Waiting for anti-biotics to work, get new blood work, and finally the surgery. I have to tell you it kinda sucks thinking about having a surgery around the holidays. But I am so tired of the pain. I soooooooo want this to be over.
Anyway, just thought I would catch you up.



  • I have "talked" to you twice by email I have to say I hope they get theis mess straightened out. At this point I have so many "things" going on I do not know whether I am coming or going.
    I have the this moderate list of "don't do that's" from my PM. I have broken everyone of them the last 4 out of 5 days.
    Thank fully my shrink, my one saving grace has given me 20mgs of Valium and Flexeril to use daily as needed, today has been as needed.
    Bipolar Type II, it's wonderful to seem to have an accurate diagnosis,but as in all or most of our conditions having the name does not always get us past the rough spells.
    I am exhausted, it now appears we will have to go to our realtor, our homeowners new purchase insurance and perhaps sue the preious owner for failure to disclose previous reoccuring water damage. Ugh, I spent about 16 hours sealing things outside to keep the water outside and it leaks worse as it seems the water is coming through the brick cores. Wow, as if I did not have enough problems,

    sure hope you get fixed up good this time
  • I am so sorry to hear that you are going through all of this. I could not imagine be psyched up for surgery and getting right down to the wire (no pun intended) only to be sent home. I know what you mean about the holidays. I had surgery 2 weeks before christmas because I was told that recovery would be a piece of cake and not interfere with the holidays. Boy was that a nightmare. On the other hand if that is what it takes to get some relief hopefully it will be well worth it. Good luck and I hope things work out OK for you.
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  • I certainly hope that they get things fixed up for you soon. So when you say you pulled the battery pack loose, do you mean that you pulled the lead wires out of it, or did it flip in the pocket? Just curious. I had two revisions in April, one for pulling my anchors loose and the other for a wire pulling out of the IPG. The surgeries weren't as bad as the initial implant, I hope you find yours to be the same.

    I have a c-spine SCS with the IPG in my right upper buttock/hip area. The wires are tunneled down along the large muscles in my back from between my shoulder. I find the "setup" to be quite comfortable and easy to deal with.

    I hope you don't have to wait too incredibly long before you can get things repaired. Are you still able to run your SCS?

    Best wishes,

  • Now you're going to have to wait some more. But could you imagine if they had gone ahead with some kind of infection cooking in your body? Yikes! You only wonder why no one let the white count cat out of the bag earlier. I have become such a cynic...trust noone...double-check everything. I'm not telling you that works, just that that's what I do. I had my fusion on Dec. 19th. Now we all will admit that that is one brutal surgery. I put up a Christmas tree (a cool, fake white one with red and lime green ornaments)before I went into the hospital. Then I had Christmas dinner at my house. I order a pre-cooked beef tenderloin that my friend re-cooked for well over an hour. Needlesstosay, it was pretty bad and pretty expensive but at least I didn't have to miss Christmas. Hope everything goes well with this next one. Susan
  • Wow....you have been having it rough havn't you!!
    I do hope they get you squared away soon.
    Yes, pain gets old very quickly. How I wish I had a magic wand to wave and all pain would be gone includeing mine.
    Did anyone say why they did not want to do the revision surgery?
    That's a real bummer to be all set for the surgery and then told NO!
    I so hope they get you set up soon and you get the pain relief you need.
    Best of luck
    Patsy W :H
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  • Sorry you are going thru this, do you know specifically what pulled the battery loose? I'm a fairly new permanent implant patient trying to figure out my limits.
  • Ok, the way it was explained to me by my medtronics rep the stitches that were put in to hold the IPG in place pulled loose and now the IPG is "free" to move, turn, flip, tilt - what ever you want to call it. It happened about 6 weeks after the surgery while doing work hardening(a form of PT), I was doing stretches - ones that I had been doing for about 3 weeks. Basically, what it boils down to is I didn't have a very good doc. He never once noted my concerns about the pain or other issues I was having. Even when I pulled the IPG loose he just reported to W/C that I felt a short lived sharp pain and he simply could not find a reason for it. As usual, he glanced at it and said everything looks good and sent me on my way.
    My current surgeon possesses two things that the first surgeon didn't - a good bedside manner, and he listens and takes the time to answer all my questions.
    The medtronics rep checked and rechecked the wire to make sure everything was still intact. The SCS still works fine - it is them movement of the IPG that is the problem. She suggested to the surgeon at the time he do a revision. He did not want to do that. I went back more than once to try to make him understand the pain I had when the IPG would move or shift. Still he didn't listen and still refused to do the revision.
    It took a few months to get W/C to agree and find me another surgeon. But I do like this surgeon and I have a good feeling about him.
    I saw my PCP yesterday and he put me on some anti-biotics. I have to go back to see him on the 18th of Nov. to see if the blood count is back to normal. If not, then we see a specialist to see if there is something wrong with my immune system or to see why it is chronically above normal. Geeshhhhhhhhh I dont know if this will ever end.
    I hope I was able to answer everybody's questions and if I missed one I'm sorry. Right now I am in the waiting mode again. Other than that - all is good - LOL.
    Hope you all are relatively pain free. And I hope you are having a great day.

  • Hang in there. We're always here for you. Susan p.s. You just gotta luv some of those docs, don't ya?
  • And I am really happy about it. At least this doctor believes that I really am in pain. And he beleives that there is a problem and he actually wants to fix it!!!!!!!!!!!!!!!!!! I wont know anything until the 18th - that is when I go back to my PCP to see the results of my blood work.

    I am used to the waiting game. So no worries about me hanging in there. When the time is right the surgery will happen.

    My younger brother had his permanent SCS put in last week. He says it is helping him. He is still very sore and is not getting around all that great but he is glad he had it done. He isnt real crazy about the weight restrictions but he will get used to it. He is doing very well with it though. I hope it keeps working for him.
  • A new doc that is willing to help. Just be really careful that you don't push on your IPG too much before it can be tacked back down. If it flips in the pocket you won't be able to recharge it.

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