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Pain when walking, standing, sitting and laying down!!

mky_frkmmky_frk Posts: 51
edited 06/11/2012 - 7:39 AM in Lower Back Pain
Hi, I had PLIF in L4-S1 on April 9th 2009. At first it was really good at taking care of most the pain I am in. I would have to take an occasional 800mg Ibuprofen, but that was it. Then around 2 weeks ago or so, I noticed it was hurting really bad when I would stand for even a few minutes and walking even across the store, is now out of the question. My job is a desk job, so it hasn't been much of an issue but now I can't sit comfortably for long periods of time. I went to my family doctor last Tuesday, and he told me that my back is very diseased and that I need to find a new surgeon! The pain is just in my hips, so it makes pretty much everything painful, or uncomfortable to say the least. I am now on Percocet 5's for the pain and that isn't quite doing it, but I am very stubborn!

My ns released me back to my family doctor last August, so I wouldn't go back to him for nothing. He did well for the surgery, but seemed to get rid of me pretty fast afterwards.

My ns diagnosed me with Degenerative disc disease and stenosis. I am only 31.

I would appreciate all the advise I can get! Also, if anyone is in the Wichita, Ks area and knows of a good ns PLEASE let me know!!!

2 more bulging discs; spinal stenosis; osteoarthritis; reverse lordosis at L3; degenerative disc disease; inflammatory joint disease; nerve root cysts at T1-T3; 2 level PLIF 4/9/09 and 3 level PLIF 9/6/12 with hardware both times


  • I am sorry that you are experiencing so much pain. I think your family doctor gave you good advise, look for a qualified spinal surgeon, either NS or OS is fine, providing he had a spinal fellowship as part of his training. You are right, at 31 you are too young to have these kinds of problems, unfortunately back pain does not discriminate based on age. Hopefully you will be able to find a qualifies surgeon who could help you. I would try the nearest teaching hospital, and ask everybody I know with back problems (believe me there are a lot more people like that than you would think) for recommendations. Your family doctor did not have any suggestions?

    Hope you will find relief,

  • that the pain may be coming from your facet joints. I have this pain and for some reason it is fairly common post op. My suggestion would be to find a good Pain Management Doc. Yjay is who has been able to help me at this point. There are diagnostic tests and injections that they can do in order to see if it is the facet joints causing your pain.

    Most of my pain comes from sitting or standing and if I try to walk even a short distance my back will lock up on me. The pain starts in my mid back goes out to my hip area and sometimes down my leg to my knee.

    If I sit too long my tailbone feels like it will snap in two and sometimes burns.

    I hope that you can find relief soon and please keep us posted.
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  • Welcome to Spine Health and I'm sorry to hear about the pain you are experiencing after having surgery.

    I'm also 31 and I had a L5/S1 fusion 7/1/08. I too get the pain in the hips but I also have pain in my lower back, sciatic, nerve pain down both legs into feet. I'm worse now than before surgery.

    Feel free to PM me anytime you'd like if you have any questions, concerns or just want to chat with someone. I know what you are going through and understand your frustrations of dealing with these issues at such a young age. Good luck finding a new doc.
  • This is not easy when you function declines and could not stand up at all on Monday, for the most part one might say do not do those things that make the pain worse although when in your current condition only those time of reduced pain give you any opportunity to progress, as soon as you start the pain increase back to these more restrictive levels.

    How would you rate your pain in this condition and does the number reduce at all over time, pacing is one tool used to help although when immobility again is at this level it is hard to know what to suggest. Many here do the sit stand lay down strategy and it is very frustrating, would you consider this a flare-up or a constant static level.

    Do you take regular medication, our consultant pharmacist at the PM clinic suggested that we take our medication by the clock, so as to increase the threshold of our baseline pain and help with those peaks and troughs. Medication was deemed to be more effective prior to the onset of the pain and once we could feel it increasing the optimum time for the medication to be most effective had passed. Although you may feel you are then taking medication when you pain it not at its worse, this strategy may help in the longer term

    Your search for a NS should initiate appropriate diagnosis that your symptoms are displaying and give some clarity to its origin. I applaud you for trying and have had my condition for many years that continue to restrict all those things you mention and I do understand, in trying to live a life.

    I am pleased that your current medication is helping and getting you nearer where you would like to be, stubborn in what way, does anything make it not as bad.

    Take care and good luck


  • Thanks to all for the responses!! I am still off work and still not able to sit or stand or even walk. It is really frustrating especially with the holidays coming up! I tried to do some Christmas shopping last night, and just one store and I was hurting SO BAD I couldn't hardly stand it! On the way home I was using the door handle and the arm rest to try and hold my body up so all my weight wasn't resting on my hips. I am supposed to go back to my regular doctor on Monday and see where we go from here. I haven't been able to work for almost 2 weeks now.

    I did notice last night while I was watching tv that my tailbone was starting to hurt pretty good, but I do think that it is the joints that is the source of the pain.

    It is pretty messed up, because my pain is in the same spot as when I intially went to the doctor prior to all of this. When they did my discogram it hurt like hell, but it wasn't the same pain I had been experiencing!! What luck!!

    I will keep you all updated, and again, thanks!!
    2 more bulging discs; spinal stenosis; osteoarthritis; reverse lordosis at L3; degenerative disc disease; inflammatory joint disease; nerve root cysts at T1-T3; 2 level PLIF 4/9/09 and 3 level PLIF 9/6/12 with hardware both times
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  • Let us know how you make out with your appt tomorrow. I know what you mean about shopping. I've done most of my shopping online this year. Most places have free or very low cost shipping. It's so much easier.

    Good luck with your appt tomorrow. Keep me posted. I may be not be on here for a couple of days. It depends on how the ESI goes tomorrow.
  • Hi all! I actually missed my appt today because I fell asleep right before I was supposed to leave!! I so shouldn't have laid back down, but it is the only way I don't hurt.

    My doctor's office did call me today to tell me they have referred me to another back surgeon and I have an appt with him on January 13th!!!! I am not looking forward to waiting that long, but what can I do? They have put me on a cancellation list, so hopefully someone will be able to cancel.

    I will definitely keep you all posted. Thanks again!!

    2 more bulging discs; spinal stenosis; osteoarthritis; reverse lordosis at L3; degenerative disc disease; inflammatory joint disease; nerve root cysts at T1-T3; 2 level PLIF 4/9/09 and 3 level PLIF 9/6/12 with hardware both times
  • I wanted to let everyone know that I don't know when I can go back to the doctor. I was fired from my job for not working enough hours this year. They sent me a certified letter firing me!! So nothing else has changed, but now I have no insurance!!

    Hope all is well.

    2 more bulging discs; spinal stenosis; osteoarthritis; reverse lordosis at L3; degenerative disc disease; inflammatory joint disease; nerve root cysts at T1-T3; 2 level PLIF 4/9/09 and 3 level PLIF 9/6/12 with hardware both times
  • Sorry that I have no words of wisdom as to your physical state but just wanted to say how sorry I am for what you are trying to cope with. Losing your job must feel like yet another "downer" to cope with.Hopefully there will be someone who has advice that will help you now you have lost your insurance. I live in another country and am unfamiliar with the system.The pain you describe is like my own and am hoping to have surgery soon.All I can suggest is the usual, heatpacks, TENS,stretches,relaxation/meditation. Hopefully you are able to get good PM to keep the pain "Beast" at bay.Sending you a giant gentle hug and hope for better things to come. Hugs n' Loves - Paula
  • I'm so sorry to hear of your recent bad luck. I've slept through many appts for the same reason. My meds make me sleepy too. I stopped aqua therapy cuz I slept thru so many appts. If I don't sleep thru them, I am atleast 15mins late cuz I dozed off and woke up late and still hadn't got dressed or anything that day.

    Losing your job and insurance sucks too and I'm sorry to hear that.

    I wish you better luck to come. Keep us posted.
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