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2

Comments

  • Thinking of you today and hoping for some findings to explain your pain - soft hugs.
  • Hi Robin---we are all in the dr.'s office with you!!!!!!just keep thinking about how you are going to spoil that baby!
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  • Praying for you and checking in to see how today went. It stinks that you are still in pain but encouraging that you have a doctor that is helping you find the source of the pain.

    I hope you got some answers today.
  • First the good news, he didnt find anything on the scans. Now the bad news, he didnt find anything on the scans, depends how u look at it. I am totally frustrated now. He said that they didnt show anything that he could see to cause pain. But, to me the kicker is, they didnt see anything on my last mri and CT before I had the fusion. It took a discogram to find the tears and stuff with discs. The discogram did show problem with a tear in the disc he didnt do the fusion on.
    I told him that the previous scans didnt show any problems and he told me it was minor, and wanted to wait and see if 6 months and different pain managment would make me feel better. And that I should walk on treadmill and just let it heal. He said that I was only a year out of fusion and that after the hardware out in Sept, head surgery in October, that my body needs to heal.
    If at the end of six months, it is still the same, he will then do discogram or other options to explore further. It makes some sense. I have been on same meds for pain for 1 1/2 years. I dont think they are working right. I have had 9 surgeries in 2 years and my body probably needs to heal. He assured me that he will be there to keep after it if I am not better. So for now, as I really trust and respect this Ortho I am willing to give it my all and wait and see. I guess, I am hoping he is right. I was just waiting for a easy answer to why. But, paitience is a virtue, and after all of this, I still have a little left.
    Thanks to all of you for your warm wishes and prayers. You are all great. I hope that while I am bored, that maybe I can focus on helping some others. And we will see what May will bring. Love, Robin
  • My surgeon told me the same thing after I kept complaining to him that something was wrong and he ordered CTscan. The radiologist and him missed that fact that I had 2 broken screws. He said the same thing, that there wasn't anything significant showing on the scan that would explain the pain that I said I was in. I felt like he was calling me a lyer about my pain. I was so upset. He said I needed to start tapering off the pain meds and lose weight.

    Luckily I didn't take his word cuz I knew in my heart that something was not right. After going to a neurosurgeon for another opinion he found I had 2 broken screws and was not fusing. I told my surgeon this and he still didn't beleive me so sent me straight to xrays and I cam right back in his office and he could not beleive that they were actually broken. He was amazed that the other doc found it cuz he siad he's never heard of this happening before. He's never really given me a game plan since then other than to try SI injection which I did with no success. I stopped seeing him and am going back to the neurosurgeon next Tuesday.

    I know that even the neurosurgeon was not ready at that point to say he would do another surgery. He wanted me to try some more things to try to salvage the fusion w/o doing surgery. I've done what he's asked and this was about 10months ago and I seem to be in more pain instead of better. I'm ready to try something else even if it means another surgery.

    I wish you the best of luck. Don't give up trying to find an answer to your pain even if it means you have to try a different spine specialist. Keep us posted.

    Your spiney friend,
    Michele
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  • You're in my prayers. You've been through so much. Sometimes life just isn't fair. You're due for a break. I'm hoping perhaps there's a disc piece or something that can be dealt with in a fairly simple procedure like a micro-d or something. I can tell you a three-level fusion sucks. Well, I'm sure a two-level does too.

    Hugs and prayers coming your way.

    Linda
    3 level spinal fusion, L3/4, L4/5, L5/S1, November 2008. Stiff, but I can walk.
  • As I never know what kind of news you're going to share. :SS

    I feel relieved, after reading this news. 2009 was such a rollercoaster for you and I know 2010 is going to be much better.

    You have been very accustomed to receiving not-so-good news after X-rays are taken, so these results probably took you off-guard. I can honestly tell you that this is GOOD news to read!

    I think your doctor is giving you great advice on giving yourself some more time to heal. You've been through so much, Robin.

    I really hope you will notice a lot of improvement during the next 6 months.

    Take baby steps when you start doing the treadmill or any other stretches you are planning on doing. Please don't over do it, as there is plenty of time to increase your exercises... when your body tells you it's "okay" to do so. When you start to feel any pain during any exercising... stop, and take a long break. I still have to stop and lay down, several times a day... when I stretch, exercise and walk. There are days I don't get much exercising in at all, but I remind myself that a better day is right around the corner.

    Have you scheduled your pain mangement appointment? I bet you will feel much better with an adjustment to your medications. You might need something stronger to take and there's nothing wrong with that at all. It will enable you to be a little more ready to start doing the treadmill. Without adequate pain control, there is no way I could take walks or go out to dinner.

    I think you're going to be very ready to welcome in your new grandbaby, Robin. Just remember to not over do it. (I'll probably sound like a broken record on that... lol. I've learned along the way that there's no need to rush my recovery. It only causes set-backs).

    Happy New Year to you, my dear friend. Let's make 2010 a really good year! It's time to start a brand new chapter and let's make it a good one.

    Big hugs to you...

    Love,

    Tammy :*
  • I also get very sore from PT. I still think the tear is a concern!!!!! I have 3 torn discs and I can tell you it's very painful. I take oxymorohone, have you tried that? I also find a bit of overall relief from Accupuncture. I would want a 2nd option if after 6 months you aren't better. I wish you a break from this pain. I will say prayers for you.
  • :D :D :D :D :D :D :D
    Sending you a >:D< sweetie! Well, your doctor seems thorough and if you trust him, it seems like his protocol for your recovery is a good one.

    I think if you multiply the number of surgeries you've had by the time it takes to heal from each you've probably got many more months of healing to go. Aah to be young again! We mid lifers are still thinking like we're young but our bodies are telling us different (LOL!)


    So --- you're stuck with your spiney friends for awhile providing you with frienship, support and amusement until you're back on your feet. We'll try to buck up to the challenge (LOL!)

    Take care my friend,

    Judy
  • With such great friends. Tammy, you are the best. You really touched my heart, Judy, You are the best too! I can have many bests, LOL I really mean it.There are days where I dont know what I would have done without the support here. I just know my spiney friends understand way better than my normal friends, which have all kept in contact, but dont know what to do or say as they havnt "Been There".
    And Kendrak, I appreciate your thoughts as well. The disc does make me nervous. I havnt totally rejected the thought of getting another opinion. Its just that I dont have alot of options. I went to a Dr who wanted to fuse all three. He is the one who found the problem. But he wanted me to go off all meds for a month or he woulnt operate without someone managing my pain and taper after surgery.
    So I got another opinion and went with that Otho. Now afterwards, I dont feel like I can go back now. So I am going back to the pain clinic. My Ortho wants me to go there and see what he can do as far as controlling my pain.
    So for now, I am gonna go with his recommendations and see what happens in three months. Then if nothing gets better, I will then look at a second opinion. But I do appreciate your honesty with me. I appreciate that, and do feel alot like you.
    Thanks to all who have supported me. I am a little down, thinking about more time, and waiting for more months to see if it is working. But I have been at this for over three years, so three more months or six isnt that long in the grand scheme of things. I am still gonna need you all, at least for mental support! Linda and Michele, you are also great at this! Love, Robin
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