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10 days post 2nd ANS neurostimulator implantation procedure

IEIIE Posts: 8
edited 06/11/2012 - 8:40 AM in Spinal Cord Stimulation
Well, had the procedure to replace the right lead last wednesday. Overall the procedure went great, I did have to have the repeat laminectomy at T11-12 to insert the lead (that was the same level as the procedure 6 weeks ago), as well as a laminectomy at T10-11 in order to better position the lead. Stimulation is GREAT, perfect positioning.

However, nothing can be simple..... Monday I started to have some shooting pain into the right side of my rib cage when out for my walks. This got MUCH worse over the next few days, and is now at the point where it is almost difficult to breathe and I am on really large doses of percocet, pretty out of things, just to be able to breathe ok.

I had x-rays yesterday, leads are in place and all looks good as well as a CT to rule out a pulmonary embolis that would be causing rib pain/pain to breathe, which was negative.

At this point my surgeon is planning to start me on a dose pack on monday, he wants the incision to heal more first, assuming it is just inflammation causing intercostal neuritis. Has anyone experienced this complication? My surgeon has been implanting these for 9 years and said I am the first patient he has seen with this (of course!!)....

Any advice would be greatly appreciated, thanks!!
~Iva
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Comments

  • Wow, sounds like you've had quite an experience. Glad to hear that the stimulator is doing well with your pain. That's a plus!

    Since you had to have one lead repositioned, did your doc or rep run any impedance checks afterward? Last April I had to have my leads re-anchored and although they don't think it was related, a week after that, one of my lead wires came loose from the IPG. That showed up on lead connectivity checks as well as the impedance check and x-ray.

    Well I hope this resolves quickly and you get to feeling comfortable. Keep us posted on how you do.

    "C"
  • Yep, they have done impedance checks, done reprogramming ect. I just REALLY hope this is just inflammation! Thanks!!!
    ~Iva
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  • I have only done the trial with the BS unit and I played with settings the rep told me not to ,I was getting stim in my ribs and stomache and had some shortness of breath but not to bad ,with my case I had it turned up too much and the settings were wrong, rate and with also I learned it was the program that was using the top of the lead,for me I needed to use the lower part of the lead but had to change rate/with to get it more in my low back and less in the legs I had to learn this for my self .I am not bashing the rep at all, she was good but she told me it was normal somtimes to feel in the ribs she did not know how to fix it.but with research and changing rate/with and less power it was fixed.Nobody knows you like you.I hope you have an easy fix and I am sorry I dont have more knowledge I think if It was me I would have a second rep try programing.
  • I had my spinal stimulator implanted Jan. 2011. I noticed side rib pain, but was told it was just pulled and stretched muscles from the surgery. It has progressively gotten worse. I spent two days in the hospital becasue I became so ill with vomiting from hurting. They ran every test, from gall bladder, to liver, to heart ultrasounds. My pain specialists has already started making excuses. I have had the level and transmit ranges woked on. Th doctor at my primary doctors has said the leds have to be sitting on a nerve bundle. Some days I can tolerate the heavy feeling, but there are times when I stand up or even just roll over when I am trying to sleep it will send a pain that will have me in the floor. It has been so painful, I just want to feel some relief. If you find an answer please let me know, and I will do same for you.
    Thank you,
    M Aiken
  • IE said:
    Well, had the procedure to replace the right lead last wednesday. Overall the procedure went great, I did have to have the repeat laminectomy at T11-12 to insert the lead (that was the same level as the procedure 6 weeks ago), as well as a laminectomy at T10-11 in order to better position the lead. Stimulation is GREAT, perfect positioning.

    However, nothing can be simple..... Monday I started to have some shooting pain into the right side of my rib cage when out for my walks. This got MUCH worse over the next few days, and is now at the point where it is almost difficult to breathe and I am on really large doses of percocet, pretty out of things, just to be able to breathe ok.

    I had x-rays yesterday, leads are in place and all looks good as well as a CT to rule out a pulmonary embolis that would be causing rib pain/pain to breathe, which was negative.

    At this point my surgeon is planning to start me on a dose pack on monday, he wants the incision to heal more first, assuming it is just inflammation causing intercostal neuritis. Has anyone experienced this complication? My surgeon has been implanting these for 9 years and said I am the first patient he has seen with this (of course!!)....

    Any advice would be greatly appreciated, thanks!!
    ~Iva
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  • I have not posted here in a looooooooong time.
    There simply is a point we don't get past. You can holler scream and yell, go ahead, I have been there.
    There are miracles from the SCS, there are also, Oh well, this is as good as it gets.

    I'll take what's behind door #2

    You have to take time to see if what relief you have now lets you function. Never forget this carries no promise, only a helping hand to get by.

    I suspect that this may be a test,I do so hope my beloved Chewy and Leise await me on the rainbow bridge.

    Take the pain and OWN it. When it owns you, you are in trouble.
  • I had this while I had the trial. It only happened when I was driving or sitting in my favorite chair. It was so bad I could hardly take a deep breath. I call the doctor and we had several conversations regarding this terrible pain. He said it was due to a lead bowing. As soon as they took the trial out the pain went away and did not come back. Now I had the permanent inserted on Friday and was very worried about that pain returning but all went well and I can take a deep breath without that pain.
  • When having neurostimulator implant surgery must the doctor perform a laminectomy?
    I had this surgery done and had no idea they were going to cut the bone in my spine .
    The surgeon's assistant did tell me the procedure was very painful so ,I took it at that.. I had had a disc replaced 5 years pryor to the neuro stimulator. I didn't expect it to be any worse than that. After the surgery I laid in bed for 3 months experiencing extreme pain at the laminectomy site & it hurt to breathe. I experienced such extreme spasms . My anesthesiologist administered Steroid injections help settle it some..
    I had the implant surgery at the age of 53 with the hopes that I would be able to back off of pain medications. . The recovery from My disc surgery 5 years prior was easy in comparison to this surgery.
    Thank heavens I had an anesthesiologist to help me with my pain after the implant surgery ! I don't know what I would have done. I was not properly informed or prepared for the post surgery experience .
    The surgeon had very little follow-up aside from just taking an x-ray & telling me to see the the anesthesiologist.
    3 years after the implant Im having reoccurring pain at the laminectomy site . I brought it up to my anesthesiologist. At this time he now diagnosis this pain with facet joints . This can easily be controlled with the rhizotomy.
    My neurostimulator works just as I was told it would.
    I just can't find any information in regards to a laminectomy being mandatory for implanting the neuro stimulator lead wires. Thanks for any information.
  • SavageSavage United StatesPosts: 7,385
    welcome to spine-health
    please click on link for helpful information!
    Sue
    Honorary Spine-Health Moderator
    -------------------------------------------------------------------------------------------------------------------------
    Please read my medical history at: Medical History

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