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AVM--Any one have experience?

TashaisinpainTTashaisinpain Posts: 10
edited 06/11/2012 - 8:42 AM in Neck Pain: Cervical
Can anyone talk to me about AVM-arteriovenous malfunction?
I have had MRI's of my brain and neck, with and without contrast and have been diagnosed with an AVM. The neurologist immediately sent me for MRI's of my thoracic and lumbar spine to see if there are more because, according to him, if you have one you are likely to have more. Everything I have read states that surgery is the only option for them. It also states that this is so very uncommon that Drs don't know a lot about it.....Soo...I figured I would ask the real brains....YOU GUYS and GALS!!

Thank you for any information!!


  • MetalneckMetalneck The Island of Misfit toysPosts: 1,778
    Hey Tasha,

    Added to my list of neck issues ... I was DX'd with an AVM a couple of years ago. My AVM was in my colon and was causing bleeding.

    It was cauterized via colonoscopy. It reoccurred a couple weeks later and I had to have the procedure repeated.

    At the time I was told that AVM's were most common in the brain. If there is bleeding or rupture it could be serious.

    Nothing was mentioned about the likelyhood of others because I had this one.

    Follow through with your doctors accordingly.

    I will keep you in my thoughts,

  • My AVM is in my cervical spine....not sure how the surgeons will handle it. I do not have the results back on the rest of my spine. How they handle the first one will depend on whether there are more.
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