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Advanced DDD 4-Levels w/Nerve Impingement Spasms

2

Comments

  • MetalneckMetalneck The Island of Misfit toysPosts: 1,778
    Over a year of knowing something was "wrong" with my three level ACDF only. After crabbing, complaining, seeing pain specialist, a neurologist (who some how found nothing wrong), hearing the "wait till over a year till we declare you non-union", A volentary detox from all opiate pain meds, injections across my entire bilaterial shoulder areas, fact injections X6 ... I finally found an orthpedic surgeon who put my MRI up on the screen and said .... "we are going to need to redo the whole shabang". (This was music to my ears at the time). What he diagnosed was that:
    1. I had blown the disc at C3 (adjacent disk disease)
    2. My cadaver implant had impacted down into C5
    3. I had an osteophyte complex anterior to the plate that made it so that anytime I swallowed anything solid, it would knock the entire contruct C4-C5-C6-C7 back into my already stenotic cord. So 8 days in the hospital 4 surgeries over a 3 day period of time, 3 days in the ICU ... Here I am today with a four level Anterior - posterior rods 2 removed vertabrae replace with a cage full of my hip bone, 12 screws solid fusion C3-C4-C5-C6-C7. Many osteopyhtes cleaned up, multiple formaninal stenoses with impingements rotor routered out ... and lord only knows what else they did in there. When the general question of how do/did you know when surgery or another surgery was/is needed ... I have a simple answer, when the pain is so great and not able to be controled by all the meds available ... I begged for an answer ... I begged for surgery. Be-it that this is a progresive disease for many of us ... no simply a fix to a single disc but a cascade of progressive pathologies. I know not what the furure brings. I struggle with my doctor to find adequte pain relief, and continue to make adjustments to meds, lifestyle, and prayers. There is an answer for comfort out there ... some days are good, some days are bad, some days are fugly. It reminds me of juggling with chainsaws, diamonds, snakes, bars of gold, ice cubes, and puppies. Got to keep them all moving, don't really know which will be comming next, don't know which will enrich, bite, bark, or cut me down.
    It is life on lifes terms - not mine. I did not choose to be in this state of health; mental, physical, financial, etc. But I can choose how i will react to it all. My neck is the result of late effect of multiple car accidents, one motorcycle dump, and a failed 3 level ACDF. Most typically my symptoms continue to exacerbate (get worse).

    I look forward to seeing you - over the painbow!

    Warmest regards to all of our vertebral victum friends!


    Dave
  • Dave,

    Finally doing catch-up from my post today and saw your reply post of your journey.

    It never ceases to shock / amaze me the pathway that some very beautiful people and souls have to journey on this planet and you sharing your path is nothing short of warrior-hood!

    And you obviously have much courage / spirit AND grace in spite of the journey and how this body vehicle has many failings - - you have been quite a Warrior in it all !!

    I have not ventured into having "instrumentation"(as the medical professional jocks call it in their publications!)... plates, rods, screws (mine was bone implant) for stabilizing protecting the spinal cord, but had some exposure in reading about the high-risks and things that can fail. (did some research of many medical publications of neuro/ortho surgeons published on the net websites sharing with their colleagues ways to improve the defects and occurences of damage/destructive results to patients; trying to learn and prepare for my upcoming second complex surgery PCDF plates and screws C-6/7/8 T-1/2 -- when my condition became intolerable.

    I'm so sorry to learn of what was to stabilize and enable you...and protect you and allow you to function better, did just the opposite and created so much challenge and creating such different direction on the path of life and the continuing difficult journey now. You know, it's truly amazing that you made it thru that...and that you are here with us for what happened!

    With the new instrumentation in place and time to heal, have you been able to heal and restore your swallowing and hopefully have no residual problems with your throat?

    Getting more acquainted and caught up on history's and what's happening ..... want you to know, I was sorry to learn about your your current challenge and loss, and know of many who become "warrriors" and challenged ("disabled") with spine-challenges, big deficits begin to progress in not being able to keep our financial "security" afloat (unbelievably unfair....on top of all we've had to experience... the "price we pay"!! who the hell wrote this chapter???!!)

    Dave, please don't lose heart/spirit of the current financial challenges that you are having to face and I certainly know how easy that is to do (major $$ and circumstances) that we are powerless to change...there is a restorative factor in life...

    I know there have been a safety net that comes in a way I couldn't have known during a crucial loss and having no means to change it...so please trust the process that there is more for you to receive...in ways you do not know how or from where....but TRUST,

    and I just want to share this prayer...

    that there will be RESTORATION and that in this time of change and loss, there are channels of support AND means in which you see that your situation takes a turn in a positive direction and in a way you did not expect and that for which you couldn't make happen....

    ....no matter what you may have been told or how it seems to be going into being impossible for things to change.... support and a new resource comes into your situation and that you are now experiencing what you saw could not happen...

    ...no matter what the facts and circumstances....it comes to you and you no longer "have to believe" but you are
    RECEIVING that which you truly deserve in full measure and means !

    Hey, Warrior-One, it's yours!









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  • Dave,

    Finally doing catch-up from my post today and saw your reply post of your journey.

    It never ceases to shock / amaze me the pathway that some very beautiful people and souls have to journey on this planet and you sharing your path is nothing short of warrior-hood!

    And you obviously have much courage / spirit AND grace in spite of the journey and how this body vehicle has many failings - - you have been quite a Warrior in it all !!

    I have not ventured into having "instrumentation"(as the medical professional jocks call it in their publications!)... plates, rods, screws (mine was bone implant) for stabilizing protecting the spinal cord, but had some exposure in reading about the high-risks and things that can fail. (did some research of many medical publications of neuro/ortho surgeons published on the net websites sharing with their colleagues ways to improve the defects and occurences of damage/destructive results to patients; trying to learn and prepare for my upcoming second complex surgery PCDF plates and screws C-6/7/8 T-1/2 -- when my condition became intolerable.

    I'm so sorry to learn of what was to stabilize and enable you...and protect you and allow you to function better, did just the opposite and created so much challenge and creating such different direction on the path of life and the continuing difficult journey now. You know, it's truly amazing that you made it thru that...and that you are here with us for what happened!

    With the new instrumentation in place and time to heal, have you been able to heal and restore your swallowing and hopefully have no residual problems with your throat?

    Getting more acquainted and caught up on history's and what's happening ..... want you to know, I was sorry to learn about your your current challenge and loss, and know of many who become "warrriors" and challenged ("disabled") with spine-challenges, big deficits begin to progress in not being able to keep our financial "security" afloat (unbelievably unfair....on top of all we've had to experience... the "price we pay"!! who the hell wrote this chapter???!!)

    Dave, please don't lose heart/spirit of the current financial challenges that you are having to face and I certainly know how easy that is to do (major $$ and circumstances) that we are powerless to change...there is a restorative factor in life...

    I know there have been a safety net that comes in a way I couldn't have known during a crucial loss and having no means to change it...so please trust the process that there is more for you to receive...in ways you do not know how or from where....but TRUST,

    and I just want to share this prayer...

    that there will be RESTORATION and that in this time of change and loss, there are channels of support AND means in which you see that your situation takes a turn in a positive direction and in a way you did not expect and that for which you couldn't make happen....

    ....no matter what you may have been told or how it seems to be going into being impossible for things to change.... support and a new resource comes into your situation and that you are now experiencing what you saw could not happen...

    ...no matter what the facts and circumstances....it comes to you and you no longer "have to believe" but you are
    RECEIVING that which you truly deserve in full measure and means !

    Hey, Warrior-One, it's yours!









  • Dave,

    Finally doing catch-up from my post today and saw your reply post of your journey.

    It never ceases to shock / amaze me the pathway that some very beautiful people and souls have to journey on this planet and you sharing your path is nothing short of warrior-hood!

    And you obviously have much courage / spirit AND grace in spite of the journey and how this body vehicle has many failings - - you have been quite a Warrior in it all !!

    I have not ventured into having "instrumentation"(as the medical professional jocks call it in their publications!)... plates, rods, screws (mine was bone implant) for stabilizing protecting the spinal cord, but had some exposure in reading about the high-risks and things that can fail. (did some research of many medical publications of neuro/ortho surgeons published on the net websites sharing with their colleagues ways to improve the defects and occurences of damage/destructive results to patients; trying to learn and prepare for my upcoming second complex surgery PCDF plates and screws C-6/7/8 T-1/2 -- when my condition became intolerable.

    I'm so sorry to learn of what was to stabilize and enable you...and protect you and allow you to function better, did just the opposite and created so much challenge and creating such different direction on the path of life and the continuing difficult journey now. You know, it's truly amazing that you made it thru that...and that you are here with us for what happened!

    With the new instrumentation in place and time to heal, have you been able to heal and restore your swallowing and hopefully have no residual problems with your throat?

    Getting more acquainted and caught up on history's and what's happening ..... want you to know, I was sorry to learn about your your current challenge and loss, and know of many who become "warrriors" and challenged ("disabled") with spine-challenges, big deficits begin to progress in not being able to keep our financial "security" afloat (unbelievably unfair....on top of all we've had to experience... the "price we pay"!! who the hell wrote this chapter???!!)

    Dave, please don't lose heart/spirit of the current financial challenges that you are having to face and I certainly know how easy that is to do (major $$ and circumstances) that we are powerless to change...there is a restorative factor in life...

    I know there have been a safety net that comes in a way I couldn't have known during a crucial loss and having no means to change it...so please trust the process that there is more for you to receive...in ways you do not know how or from where....but TRUST,

    and I just want to share this prayer...

    that there will be RESTORATION and that in this time of change and loss, there are channels of support AND means in which you see that your situation takes a turn in a positive direction and in a way you did not expect and that for which you couldn't make happen....

    ....no matter what you may have been told or how it seems to be going into being impossible for things to change.... support and a new resource comes into your situation and that you are now experiencing what you saw could not happen...

    ...no matter what the facts and circumstances....it comes to you and you no longer "have to believe" but you are
    RECEIVING that which you truly deserve in full measure and means !

    Hey, Warrior-One, it's yours!









  • MetalneckMetalneck The Island of Misfit toysPosts: 1,778
    See above
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  • MetalneckMetalneck The Island of Misfit toysPosts: 1,778
    and kind words - prayers. There are a significant number of us "warriors" that gather round the campfire here to tell our tales - trade secrets and provide a relief valve to our continued pressures.

    One of my motivating factors is to simply survive long enough to see what the outcomes of my and others battles will be. I am encouraged by the successes of others, and feel the pain as others continue to have pain and failures.

    Each of us struggle with different circumstances, and degrees of loss. I try to remember that to each of us - our own problems always seem to be the worst.
    I try to remember that there are always people that have siuations that are far worse then me and mine.

    I try to remain grateful for what I do have and not what I have and continue to lose. I can still walk, talk, and type. The glass is not half empty or half full - I was using the wrong glass.

    Warmest Regards,


    Dave
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