My Neuro, who is also my pain mgmt. specialist, has approached me before concerning some experimental surgery he wants to do on me. I have 2 discs that are torn, and are leaking and need a multi level fusion. He's got me on serious pain meds now and I am still in a lot of pain and misery, and when I went for my appt. this past Wednesday, his P.A. said she had a note for me, a question for me, in my file....
She asked me if I would be willing to let Dr. X perform some experimental surgery. It is NOT approved by the FDA, and I would have to pay for it all, out of my pocket. I told her there is no way I could pay for this, as I live on a disability income, from my blindness.
When I asked HOW MUCH is the surgery, she could not tell me. Nor could she tell me what the procedure was called. Perhaps it does not have a name yet, since it is experimental. My doctor is Harvard educated, has tons of recongition and lots of great experience and references to back him up. I trust him, but not for this.
The procedure apparently entails going in and cutting the nerve that is telling my brain I am in pain. That is all I could get out of them.
My thought on this is that this experiment would NOT solve the problem, and that is that I need a fusion, undoubtedly. Cutting some nerve only fools my body into thinking there is no pain, right? It will NOT help the fact that my discs are leaking and I am losing disc height, and will be veterbrae on veterbrae eventually; HOW is his experiment going to solve my problem? I do not see how it could.
What do you think about this? Would you undergo this experimental surgery? I figure, if he wants to do this, and he knows I am below poverty level, blind, disabled, then maybe out of the goodness of his own heart, he should be willing to experiment on me at no cost to me! And what if he messed up, cut the wrong nerve and then I have no feeling in my leg or foot and end up dragging it around? I couldn't even sue him or anything.
I'm not going to do it. In fact, the more I think about it, the angrier I get. This is the 2nd time they have approached me with this, and it really angers me.