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Chronic Pain Battle

bjfergebbjferge Posts: 123
edited 06/11/2012 - 8:46 AM in Chronic Pain

Everyone was asked in this groups, if they wanted to write something about chronic pain. These statement, ordeals, and pain history are going to be read today to a congressman. Hoping to change medication rules, and just hoping for help. Here's what I wrote let me know what you think. Please pass it on, and help give people like us a voice.


The cause you undertake is a noble one, and all you have named in your email are brave. We all fought a battle to be here, and that battle is PAIN. It is a battle I know well, since I have fought it for over 10 years now. This battle is a silent battle. A battle of shame, misunderstanding, and pure ignorance to our plight. We don't take the meds we take to feel that high. We take what we take to just make it through the day. So we can go shopping, see that game, see a friend, and to just function in society. But what happens? We get punished. Not just from our hell we call a body, but from society, doctors, law makers, and the one that hurts the most is our families. We are a SILENT MISUNDERSTOOD IN PAIN PUNISHED warrior.


The medications we take have been given a stigma of abuse by society, and their right these meds are abused. It's become the in thing to take these meds, and then go to rehab. A CHRONIC PAIN patient isn't the one going to rehab. We're the ones following our doctor's orders to the letter, because we are afraid that the medication will be taken away. We put our bodies through hell to get these medications. We under go procedures that a masochist would flinch at. From shots in the spine, to cutting away bone, to strange objects implanted in our body, electricity, having bone introduced that was someone elses, and all that is just few of the thing we indoor. Just so our PAIN doctor doesn't take away the one thing that help some. People on pain medication don't take them because we want to. WE TAKE THEM BECAUSE WE HAVE TO. CHRONIC PAIN PATIENTS ARE NOT ADDICTED...

This is the uphill battle CHRONIC PAIN patients have to deal with everyday. We don't need it to be made hard to get treatment. Is there going to continued abuse? Yes, but it's not done by CHRONIC PAIN patient. We need to find a balance, and there is not an easy answer. But it should not be taken out on the ligidiment pain doctors, and patients. We fighting this battle together, and yes it is a battle. A battle that need that knight in shining armor, but until that happens. We must all work together to find that balance, and to bring CHRONIC PAIN patients out of their silent suffering. To have a voice in what is being done to the for front, and stop the silent suffering.

Bobbi Jo Ferge




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Comments

  • Bobbi for your persistence in the fight for all of us in chronic pain. I too have written my congressman as this is Pain Awareness Month. We all need to get involved in this.

    The DEA is collaborating with our legislators regarding the medications most of us need to lead a more comfortable life. Production of certain opiates has been decreased, therefore, making it more difficult for pharmacies to be stocked well with these medications. This is in an effort to limit what is available on the streets!?! It's making our lives more difficult.

    Physicians are more wary now of providing us with pain control. I am going to see my PCP soon to discuss her reluctance to go along with pain control medications suggested by the specialists I see. A previous PCP had the audacity to sit there and argue with me regarding my need for pain medication. "If you got out there and walked for some exercise, lose some weight, that should help" How many of us have heard this?

    Instead of spending time and money on restricting our access to these medications, educate our physicians more on pain management. BTW, this was part of the proclamation suggested by an expert panel and it was voted down.

    Best to all,

    Marianne
  • Very well said. If you don't mind I will send this to others.

    Jim
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  • Hello,

    I'm glad you liked my note, and the word must be spread. We all suffer to much in SILENCE. Why? If we don't speak who will.

    Jim YES, PLEASE!!!! And anyone else who would like to send this out to others. Go right ahead.

    Marianne, I loved your comment, and your action. You go girl!!!
  • The sad and scary part of the "silence", it many times is silent to our families too! We hurt, but xx plans have been in play for weeks or months, and so we stay quiet so the family plans can go through....:(

    Very well written letter there!!

    Brenda
    PCTF C4 - T2, Laminectomies C5, C6 & C7. Severe Palsy left arm/hand.
  • They ridicule us, or accuse us. I have been accused of being addicted. It hurts, so we remain silent rather than listen to that from those that are supposed to love us.
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  • j.howiejj.howie Brentwood, Ca., USAPosts: 1,745
    I do suffer in silence! Way too much! It's a learned behaviour.
    Jim
    Click my name to see my Medical history
    You get what you get, not what you deserve......I stole that from Susan (rip)
    Today is yours to embrace........ for tomorrow, who knows what might be starring you in the face!
  • About three months ago I went to my PM doctor and asked him about getting different meds. I have heard too many stories about oxy to want to even try something that powerful unless absolutely necessary, but I was hoping there was something if not stronger, different than what I was taking. He told me that in some cases, people with chronic pain who up their dosage only get improved relief for a short period of time, and then their pain catches up to them and now they are dealing with more side effects. I don't know how it all works, but I am glad I didn't change as I was able to get more sleep and have less pain later on. I can't imagine anyone wanting to up their meds for the fun of it, it is a hard decision to make. I couldn't see any of the drug users that I know going through all the appointments and safeguards/drug tests to get a proper prescription. In my humble opinion, most people outside of Florida (free for all) who are going to a pain management appointment are in extreme desperation. I have missed my meds date more than once. In fact, last time it was because they gave me nothing extra after the surgery, and I took two more a day for the 5 days immediately after. The few days I went without were torture. I hate my stupid pills, I would do anything not to have to take them. I would love to just have an addiction, that would only take a few months to get on top of, this isn't a choice. This is me coping. I bet most people are still miserable even after their morning cocktail kicks in. When are they going to splice a jellyfish and an amazonian frog and come up with something that feels just like ovaltine on a hot day? Why can't nerve damage just destroy all feeling, I would welcome numbness anytime over this misery.
  • I would do anything not to have to take them. I would love to just have an addiction, that would only take a few months to get on top of, this isn't a choice. This is me coping. I bet most people are still miserable even after their morning cocktail kicks in. When are they going to splice a jellyfish and an amazonian frog and come up with something that feels just like ovaltine on a hot day? Why can't nerve damage just destroy all feeling, I would welcome numbness anytime over this misery.
  • dilaurodilauro ConnecticutPosts: 13,552
    Once again, instead of following the thought of the original thread, which I believe is very good, the last two posts were more grandstanding than keeping to the subject
    Ron DiLauro Veritas-Health Forums Manager
    I am not a medical professional. I comment on personal experiences 
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