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Methodone anyone???

tarheelgirlttarheelgirl Posts: 473
edited 06/11/2012 - 8:47 AM in Pain Medications
Hi, just wondering if anyone here takes methodone and how well it works? How long have you been on it and what dosage? What were you on before and what made you decide to go to methodone? Please tell me all you feel, good and bad about it...and for those who have considered it, why didnt you start taking it? For everyone else, just chime in your opinions! Please! I am having horrible, horrible pain...I've tried fentanyle patches and they worked pretty well but my hubby will not let me use those again b/c he is afraid of malfunction/leakage and overdose.

Right now I'm on 60mg oxycontin X 3 day and 20mg IR oxycodone X 4 day ( or 1.5 to 2 pills if needed0. First, I'm still in so much pain, it's off the charts...sitting about an 7/8 on the pain scale while reclining and goes to 10 or more with activity and while sleeping. I'm so scared that my options are running out. I know some take oxy 4 times a day instead of 3. My doc has mentioned a dilaudid pain pump, but he also mentioned methodone.

So, that is where my question comes from...I've researced it a bit and found that it does great with pain contol for severe pain patients when everything else has been tried. But, there is bad stigma accosiated to it b/c it's used to help break herion addictions. I've also seen where it's AWFUL...like the most awful drug ever to come off of.

Also, last question, what is the largest IR immediate release med you've heard of? I can take two of my 20mgs and feel like I took candy. It's so darn frustrating!!
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Comments

  • My PM doctor had given this to me a few years back but it was to wean me off of the OXY and other Narcodick that I was on. Still taking OXY.
  • A dear friend of mine owns a couple of methodone clinics in Tx. He will be here this coming weekend Thur-Mon. If you have specific questions that haven't been answered by then, I'd be happy to ask him. He can't give personal experiences as he, nor I, have taken it, but he can give educational info!

    I am sorry you are having so much pain! This is a very difficult journey and one I wish no one had to experience!

    Let me know if I can help!
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  • If you don't have a very well trained pain medicine doctor, I've read that methadone can be very risky due to the long half life. It requires a knowledgable provider.

    If your husband is worried about overdosing, there is no safe option. The oxy is dangerous too if you break a tablet. This process is about balancing risks and benefits.
  • I was on a low dosage 10 mgs. 3 x's daily. Along with Percocet as a BT med. We then moved and the new PM dr does not prescribe methodone. He did say in my case he would but would take away the BT meds. Well since the combination was not really working well I knew the pain would be horrendous without the percocet. He tried me on various meds Fentnyl Patch, Opana ER and another one but can't remember. They all made me extremely sick. He then put me on Oxycontin 40mg 2 x's daily and Percocet for BT med which seems to help somewhat better.
    However, to be honest with you I believe if he had increased the methodone slightly along with the bt meds it may have helped better than what I am currently taking. The reason for that is when you are taking the methodone it seems as though it stays more constant in your system. It seems with the extended release meds when they have run their course supposedly 12 hrs but more like 8 to 10 hrs your body lets you know. It was not that way with the methodone. When I was first prescribed this medication I was almost embarrassed I guess due to the stigma which is too bad. I truly think it works very well for pain yet the stigma surrounding the name makes us feel uneasy. Now I have the same uneasy embarrassed feeling about the Oxycontin extended release due to all the "abusers" out there. I realize I need pain medication to have any quality of life at all and I also know the medications I am on will never completely take the pain away. Why are we so hard on ourselves? We didn't ask for be injured or to suffer everyday in pain! Good luck in your decision making process. My dr has referred me for a scs and pain pump and I am going through so much agony and confusion about deciding if that is the right way for me to go.
    You will be in my prayers. If you have any other questions feel free to PM me.
    Jan
  • Jay, we'll see, I may take you up on that.
    Jan, I understand it can be great for pain management if your doctor knows what he's doing. I think anyone would be afraid to have their BT (or rescue) meds away!! Can't say I blame you there. It's just the stigma...but you are correct, oxy carries a bad name too...so, we are screwed either way.

    Regarding my question at the end about the highest amount of BT pain med anyone here is taking...I'm very curious about Jon (terror) and his fentanyl pops. My pharmacy I use is a compounding pharmacy as well. I think I may talk to them about it while I'm waiting for my doctor to return home. I just wonder if changing things up a bit may help. I did look up "opiate resistance sydrome" or whatever someone mentioned to me on another thread and I can see that...I don't want to be on the highest of everything! That scares me...but I do know I've heard others say they switch up the routine every 6 months or so just to keep the resistance from occuring.
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  • I WISH they would put me on methodone. Plain and simple.
  • why do you wish that?
  • Okay, so how many of us are really concerned about the stigma of narcotics when it comes to finding effective pain relief? Yes, I hate the way doctors, my own family, coworkers, etc. look at me when they hear that I am still on narcotics, but if I had a choice of medication that would be more effective than taking Hydrocodone throughout the day (and almost nothing throughout the night), I really couldn't give a crap what others think.

    Am I knowledgeable about Methadone? Not at all. However, when an Acupuncturist once said to me that it is a "wonderfully effective medication", then my chiropractor said the same thing last week, then a new pain management doctor said the same thing, I have to believe that there is something to it.

    I don't have any form of extended pain control, just sheer will power at times, and the guided imagery that we discussed in another thread (I was self-taught, so I'm not even sure that I'm doing it right).

    Sorry for the somewhat lame rationale, but I was intrigued by the fact that "alternative" practitioners were recommending methodone.

    I'm seeing my NS this morning. I plan to ask about other medication options. First, I need to see if he is going to acknowledge that my fusion didn't fix my pain issue. If he doesn't do that, then I need to have him refer me to someone who will. Without that, all of this is purely academic.

    Take Care,
    Dave

  • thanks for the response...I hope you get things figured out. I too have heard that methadone is a very effective pain med...it has a long halflife apparently. Well, I appreciate getting to know you a bit. I'm going to withdraw myself from the boards, but best wishes to you buddy. I always enjoyed reading your posts.

    Take care and God Bless
  • Thanks so much for that long response and all the insight. Yes, the stigma, I can imagine, would be very bad...even with the medical profession...that is why my eyes go wide every time my doctor mentions it to me. I told him I may consider it if the new regimen I am on (oxycontin 80mg 3 times a day) did not work well...but it is working very, very well...In fact, some days i only take 2. And then your post just echos what I've researched about it. Being on Oxy is bad enough stigma, but Methadone...I don't want to try it. My doctor thinks it is under used as a pain management med...and thinks it is going to be used more in the future. I have seen where it makes people gain weight. I certainly don't need that! I also do not need any personality changes or 'dullness' to my mood.

    I thank you very much for digging this thread up and responding about this medication. I believe it's one I will not try. Hopefully, my present regimine will continue to provide relief as it is for a long time.
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