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Tumor removal surgery and recovery experiences????

jean jayejjean jaye Posts: 181
edited 06/11/2012 - 7:47 AM in Back Surgery and Neck Surgery
If you have had a spinal tumor removed, would you be willing to share your experience to help others?IE: What were your symptoms? How long did you experience them? How long was your surgical recovery? How long were you in Rehab. if you were? Were you able to recover your full mobility or function? Did you have perm. nerve damage?How long did it take to regain function or mobility if you lost them temporarily? Did the tumor reoccur? Did you end up with more tumors in other areas of the spine? or brain? Sorry so many questions, but this subject is very new to me, and I am trying to learn as much as I can. If you prefer, you can PM me. Thank you!

I have been dealing with chronic neck issues for over five years, I had just had my second rhizotomy/radio frequency ablation/ nerve burne in May. I was doing much better with my neck after this procedure, and this was much better than I did with the first one done in 2008. In July I noticed my lower back was bothering me more than my neck when I lowered my pain meds. I also noticed that my toe was all tingly with pins and needles. I dismissed it as being due to flip flops and trying to sit in a beach chair. Another toe got numb and then another. I could move them but they always felt "asleep". I went to the doctor in the beginning of August for a sinus infection and just mentioned the toes being numb for about a month. The doctor was much more concerned about my toes, and I was surprised. I promised I would go to the ER if it got worse when she said I had diminished reflex in my ankle, and she was going on vacation. Within the next 36 hours, the pins and needles spread to my foot and up my chin, and my foot dropped. I went to the ER, and I was sent by ambulance from that ER to another hospital. They did an MRI with and without contrast, and I was shocked when they told me that I needed emergency surgery. They found a mass on my lumbar spine. I was sooo shocked. It was subdural and compressing on my spinal cord- L1-L2. I still can't believe it. I am very thankful that it was benign, but I just want to learn as much as I can. My main issues are on my right side from the incision down to my right foot. The left leg seems fine. I still have the numb feeling from the knee down and in my "saddle" area as the doctor called it during the "pin" tests. I also have nerve pain that I did not have before the surgery, but the doctor says that is normal due to all that needed to be moved around, the double lami, and "tethered nerves".
Any similar experiences?? The pathology report calls the tumor - CAUDA EQUINA TUMOR- MYXOPAPILLARY EPENDYMOMA-

Any help at all would be much appreciated!



  • Wow, I had no idea you were going through this. I don't have anything to offer regarding the questions you asked. I just wanted to say good luck, and I'm so happy they found the issue and took care of it before it caused even more of a mess. It sounds like this all happened quickly, but you must have been frightened until you found out that the tumor was benign.

    You have always had a great attitude, and will be pushing yourself to full recovery-I have no doubts about you! Good luck.


    Surviving chronic pain one day at a time, praying for a reprieve because living another 40 years like this doesn't sound too fun!
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