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Edema in/on my lumbar spine

juleofbcjjuleofbc Posts: 15
edited 06/11/2012 - 8:47 AM in Chronic Pain

I decided to go to Pain management today
Well he said it is a good possibility I have edema in my back.(Like we get on our ankles) I have never heard of that.ok, .I have been a chronic pain sufferer for over 25 yrs.Stopped working 2 1/2 yrs ago.DDD,Arthritis,Spondelthesis,annular tear and a few other things..I can't seem to get an answer why my tailbone,butt and up the back some ,burn,feel raw, hurt sting,the leg pain can drive you nuts,can't stand,walk,sit for long at all.and when I really piss if off the lower back swells up.I can't lay on my back,and I sit kinked to the side. ?I have been to a few doctors,trying to get my back fixed.All of them said ,can't be fixed,meds rest of my life.I am only 49 so drugs are being stretched so they will still work when I get old .oh baby.I am already on 100mg duragesic ,60 mg morphine sulfate.nabautone,neurotin and cyotec for the tummy.


  • Wow that is awful..so did he put you on a diuretic for the swelling in your back? What causes it? It is awful that you have pain for this long,

  • I wish you luck on your surgery.he didn't give me a durectic because he isn't sure.He THINKS it could be that. But I have heard that from anyone,never read it here or heard it from drs.It just baffled me, so I figured I would see if any one heard of it.Hope you fell better
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  • I've not heard of edema that comes and goes like that, but I have had times where my muscles would spasm so bad they bulge or swell and then of course I can't stand straight or hold my head straight until it resolves.

    I hope the doc figures it out for you soon.

  • I've had that in my thoracic spine area post-op. Swelling is normal after trama. It took several weeks for it to go away. My PT would do alot of massage to try to dispurse the fluid.

    Since you haven't had surgery I would wonder if there is something causing the trama. I would go back to the NS or OS for further eval.
  • Hi,
    Thanks for the responses.It is a real weird thing.When I lay on my side,you can feel the left and right side of my back and lumbar meet in the middle.It is kinda like you fold in half.Usually by morning or in a couple of hours it is gone,some times it will take days,but it's not muscle spasms.The skin actually feels irritated from rubbing/touching.The the ortho surg, nor the neurologist no what is causing it either.oh well.I hope you all feel better and get some relief
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  • The Neurosurgeon told me I have edema or a little lumbar sacral fluid built up and soft tissue swelling that was seen on my MRI. I didn't ask how that gets resolved but hoping the cortisone injection takes the swelling down for me. I hope your PM Dr. can help relieve your pain. I also stopped working 2 1/2 years ago also but haven't had back pain for so long. Take care and keep us posted how you're doing. Charry
    DDD of lumbar spine with sciatica to left hip,leg and foot. L4-L5 posterior disc bulge with prominent facets, L5-S1 prominent facets with a posterior osteocartilaginous bar. Mild bilateral foraminal narrowing c-spine c4-c7 RN
  • My MRI report stated that I had edema of the bone marrow and should have a paraclinical evaluation with a CBC with differential, a CRP and ESR if clinically warrantied. When I saw the surgeon for the MRI results he didn’t mention anything about it and said that surgically there was nothing he could do for me. If the pain persisted he would do a myleogram in 3 months. The radiologist included that I had a new disc protrusion at L5-S1 that was not addressed by the surgeon. What do I do next? Do I ask the surgeon questions about the report?

  • peanut006peanut006 MichiganPosts: 147

    Hi @rmackie... you asked your question on a really really old post. Might I suggest you start a new post of your own to ask the questions you'd like to? You'd probably get a lot more help and suggestions from other members if you did??? Just a suggestion though! :)

  • Like you rmackie, I have bone marrow edema of my vertebrae.  They have also been called 'Modic changes'. I think these are of my lumbar spine.

    I am about to have various other tests on my spine;   New thoracic MRI scan,  Bone SPECT/CT Scan of neck and lumbar spine, Flexion and Extension x-rays of my neck and lumbar spine.

    I am interested to know if anyone else has had a Bone SPECT/CT Scan of their spine, and if so, what did it show up?

  • rkpoulsonrrkpoulson Posts: 2
    edited 02/17/2019 - 7:05 PM

    @juleofbc I know its been a number of years since you posted but your symptoms sound soooo familiar! I have a condition called Tarlov Cyst Disease that causes your exact symptoms. This condition is almost always overlooked by doctors and radioligists as a cause of the pain because it is believed to be rare for these nerve root cysts to cause pain. But in a small number of people they do and it can become very debilitating! Check out the Tarlov Cyst Foundation for info. Have you ever had an MRI of your sacrum?

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