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Thoracic SCS trial scheduled for 10/19

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Comments

  • I have had an occasional problem with My Stim, can't get it to Sync using either the Sync or On button. Finally figured out if I turned the Off button and tried, it worked right away. Medtronics rep says no problem that if it continues where it's a big problem they can replace. Medtronics has been so super, always contacting me to see how I am doing or if I have any questions, come to every doctor appt with me to change any settings, make special appts when needed, and I was 8 hours from home for 8 days as we thought my Mom wasn't going to make it through a surgery (she did and is back in rehab), but left quickly and didn't bring my recharger. They met me with a loaner unit for a week. And this is after 6 months. My doc is not being helpful for my cervical problems and after way too many procedures I talked to Medtronics rep and she said they would work with me to get another doc if my insurance will, or I'm ready to switch our insurance to the new state where we moved, and they know of several specialists they would refer me to within an hour of home. Can't say enough about their support.

    BTW, for those with questions and complaints about the rechargeable SCS units. Medtronics who makes the 5 year pacemaker units, their basic SCS unit is 5 years. But I don't feel like a replacement in 5 years, after 33 surgeries I'm too tired of it. So I opted for the rechargeable unit which is supposed to last 9 years. I charge it easily while I'm watching tv at night and if I do it about every 3 days it takes about 2 hours, depends on how high I have the unit turned up. Some have said they hate it as they have to charge 1-2x a day as they have high usage. I have 4 areas that I have going, and with a high of 10, almost all day I keep 2 settings around 6 and the other 2 around 8, so it's definitely using a lot of power. At night I have all the setting around 3. If anyone else is having trouble with the recharging units like I'd heard, my Medtronics rep told me that the factory would replace, so maybe it's a faulty unit.
  • Yes, during trial, movement could catch me off guard, but you're so close to your permanent now. At first mine did much of the same, but after around 2 months it was less, but 3 months I felt comfortable driving. I'm lucky as my husband is retired so he could do all the driving. Now at 6 months, it only catches me off guard when I'm turning it up and it hits my belly, then I just back it off a couple of notches. When I get in the car it seems stronger in some areas, so I automatically reduce some when I get in. I used to turn off for 2 hours at a time and still have residual pain relief, but forget now and just leave it on.
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  • I will be learning more at my appointment with the NS at Stanford. What I do know is that the leads are places surgically, and that a partially laminectomy is required to gain access at the site of placement. This can allow a more tricky placement like mine (thoracic) to hold and lessen the chances of the leads slipping.
    I am certain that there are members here on the boards that know more than I do, or that an article on types of SCS leads is readily available on the internet.

    Oh how true your statement about there being risks with every procedure is!

    Wishing everyone a day of less pain and more contort

    Jackie
  • I will be learning more at my appointment with the NS at Stanford. What I do know is that the leads are places surgically, and that a partially laminectomy is required to gain access at the site of placement. This can allow a more tricky placement like mine (thoracic) to hold and lessen the chances of the leads slipping.
    I am certain that there are members here on the boards that know more than I do, or that an article on types of SCS leads is readily available on the internet.

    Oh how true your statement about there being risks with every procedure is!

    Wishing everyone a day of less pain and more contort

    Jackie
  • That makes sense, basically the same SCS leads but probably shaped different than just straight thin leads and having to be very careful for 6 months. You'll still need to be careful of bending, bouncing (like no SeaDoo or ATV's for me). Stanford, you're very lucky. Good luck.
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