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One Year In

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2

Comments

  • I've had to learn to suck it up. I would be much better off if I took more meds but then I wouldn't be able to function.

    Dave
  • Mine will be put in next tures so welwill be 1 year apart., about the charging thing, mine will be Medtronic ultra restore and recharge every 2 weeks, how is this done? while we sleep? watch tv, work? do we just put a belt on and charge, I forgot to ask spacifics, thaks Rose
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  • I have the same unit and I would be on empty if I went two weeks. You can not run these things down all the way. If you do the Rep will have to basically reboot it for you and that can only be done a couple of times. If the battery drains to many times then you will need surgery to replace the IPG. There is a belt you wear that holds the charger over the IPG. It doesn't hurt but it does get rather warm sometimes. It is not recommended to sleep while you charge because it does get a little warm and can possibly burn your skin. I find that if I move around while charging it takes longer, mostly because the signal changes and I have to run an activity program that consumes more power. I usually just watch TV while I charge so I can use one of my less expensive programs. My longest charging session has been 6 hours.

    I think your Doctor is doing you a disservice by telling you will only have to charge every other week. Battery consumption is based on what type of programs you have running. There are some on here that charge several times a week to every 6 weeks. It varies and I wouldn't get my hopes up on the time frame until you are there.

    Dave
  • I would like to add that I'm concerned for you because of the reasons you are going down the stimulator path. I really hope that it does everything you want, but to be honest, I have real bad feeling. I'm concerned that your back is going to continue to worsen over time and you'll find yourself on the short end of stick. Please take the time to read BionicWoman's post in the Spinal Cord Stimulator thread, post #11. BW is very wise and was very helpful to me when I was trying to decide if a stimulator was right for me and she provided excellent advice post surgery. Maybe you could PM her to find out additional details about her current situation.

    Dave
  • Dave, Rose, anyone -

    While researching the SCS I ran across this bit of information: Usually one or two hours of stimulation, three to four times a day is enough to relieve pain for the rest of the day. You should expect 50 to 70 percent improvement in your pain.
    The device should be turned off when driving and operating machinery or power tools. Spin University URL Removed

    From reading most of the posts in the forums, it appears that everyone keeps the stimulator on at all times. Am I correct in this assumption or should I expect to shut my device off as suggested by Spine University?

    I also want to thank each of you who has answered my posts. I am nervous about this device and am attempting to educate myelf so that I can make the right decision for me. Your comments and thoughts are welcome and appreciated.

    Chris
    Yuck Neck

    EDITED

    Standards agreement and posting rules
    Please note that Spine-Health reserves the right to edit any messages posted or submitted or e-mailed to the Company and use them for content on the website or in other company materials. No e-mail solicitation or advertising of other companies, products, services, or web sites is permitted in the Spine-Health.com forums.


    Post Edited by Administrator Dave
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  • There is a lot of mis-information about Spinal Cord Stimulation on the Internet. I have a cervical SCS and if I turn it off, I am in a bad way very quickly. Mine has only been shut off for surgery to repair it in the last 2.5 years. I have to recharge once a week whether I feel like it or not and I recharge with the system running. I run three programs sequentially and they consume an average amount of power. I never let my battery drain below 25% just to be on the safe side.


    "C"
  • I am convinced that no amount of medication is going to make me feel better. I would gladly take a 40% reduction in pain...
  • I have researched this everywhich way and read everything I possable could, in fact it was recomended after my lamnectomy in 2001, Im 51 years old and most likly my back as well as the rest of my body will deteriate and worsen. I in the pst years have sot out 3 differant Neurosurgeons in 3 separate citys, making sure I have all MRI reports form 2000 to my most recent in Feb 10, The 1st "fuse and pain will be all gone" I ran the other way, BS, so to another he said maybe fuse in a few years but not now, sent me to a pm that wanted to do epidurals, which inturn raised my blood sugar to 400 500 evan taking humalog and levimire inj, as you know High blood sugar is a killer, I also met with the NS after myscs trial and he said I did have a small buldge, but its going to go in and out, they can not do any more lamnectomys. For me personaly the SCS IS for me, and if my back gets so bad in many years to come, I will cross that bridge when I get to it. the DR also said more than likley charge every 2 weeks, DEPENDING on how long I run it how many leads and a numbert of things will determin the charging times, the Medtronic Reps were extreemly helpful and answere all questions, they call me at home after surgery, and each 3 days I had it, I had one of the reps personal # to call 24/7 for problems and questions. I feel I have this very well covered and hope it does meet all of my expectations, so far non of the inj,PT,drugs have helped. somepeople maybe jump the gun too soon, but I've been 10 years in hell, and that 3 days was HEAVEN, and the remark about not eating, same dif, you will choke, my 1 piece of toast eaten 6 hours eailer WAS out of my pouch I have a 4 ounce pouch from gastric bypass, and I/v had 6 surgerys this year alone, so I know if I can have a piece of toast and I'M always honest with the anatheseologist, as wll as the surgeons, and Ive not been sent packing... about what, and when I ate,I do appriciate the concern it was just a simple question, My drs> and medtronic reps will answer all of my questions, to make sure I'm imformed. I really hope I can drop most of my meds or at least decrease them, if not oh well, I guess I will take each day as it comes and hope each day gets better for all of us. Rose
  • Hey Dave, congrats on your anniversary!! I have a question or two in regards to your SCS and Arachnoiditis. I was diagnosed with it in March after my fusion surgery in Dec. I am not at the Adhesive stage yet, or it didn't show on my MRI. I noticed that you said it was progressive. I have the burning in both legs and also my back and buttocks. I am waiting for my SCS trial and looking forward to it. But I am wondering about the progression of Arach and the SCS. My back pain has been getting progressively worse over the last couple of months. Does the Arach get worse over a certain time span? I am concerned that the SCS may help in the short term, but the benefit may fade away over time. Again, congrats!! and I appreciate any insight you can provide. RJ
  • I can only answer as it pertains to me. At some time you will plateau. I believe I have finally reached that stage and took roughly 2 years reach my current state. Of course you always have to vigilant. Any type of trauma to the area that has the "A" can cause it to get worse. If yours isn't showing up on imaging, can I assume that its pretty much inflammation of the arachnoid layer, no scarring yet?

    So far the SCS works pretty well with mine. It does fall behind sometimes and I have to tough it out during those times. One thing I have found is the more that I walk and keep the nerves stretched the more stable I seem to be. I've been real busy at work lately and have neglected my exercises for the last couple of weeks. As such, my pain levels have jumped a couple of notches so I have been working this week to get back on track. Its a struggle when you slack off for a couple of weeks not to mention you end up lacking sufficient drugs to offset everything.

    I have a couple of question for you. Do your muscles in your lower legs contract regularly? Similar to fasciculation (twitches) but the muscles actually contract. Mine do this 24/7. I find it rather unnerving and sometimes I have to turn the stim down if the contractions are in full gear, its really uncomfortable to have both going.

    Dave

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