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Pain Management Doctor Wants to Perform a NS TEST?

SurvivorSSurvivor Posts: 6
edited 06/11/2012 - 7:48 AM in Pain Management
Hello Everyone:)This is my first time on the forum.I'm a 28 year old female with severe spinal issues.I will try to keep this as short as i can.So what i have is Severe Spinal Stenosis,3 Herniation in Lumbar,2 in Thoracic,2 Bulging in Cervical.Ive had all the injections and blocks all the medications and steroids the anti inflammatories etc.All the non-invasive and invasive treatments ive even had the surgery and unfortunately all ive ever gotten was worse.I now have permanent nerve damage post op on my right side.I cant feel to the touch of my right leg though i can feel all the pain inside my leg.Go figure huh?!! lol

Ive just started going to a new Pain Management Doctor and things were going great,FINALLLY!! Hes put me on medication that actually work for me and i feel like with these medication i can get back to living my life again.Ive feel ive been robbed of at least the last 6 or 7 years.All ive known for the past 7 years is pain,pain and more pain.Doctors appointments,treatments,surgeries,scans,new medication,fighting with Doctors who wont listen etc etc etc All the things im sure so many of you know all to well.

So since meeting him i had very high hopes of getting my life back and thinking maybe i can still achieve some of my dreams and goals for my life and maybe just maybe,the nightmare is over? That last bit just leaves me sobbing in tears.Because its not over.I seen the PM for the second time last week and he said that he wants to believe im telling him the truth but unfortunately alot of people have been caught lying to him recently.A middle-aged woman who he treats was getting medications from him and selling them.She was turned in and now he says he cant believe any patient of his.And i can understand to a point.I know there are people that are just drug seekers and we all know they will go in crying and saying there in pain and do anything they can to get the drugs.And it makes me so angry because when a person is in serious legitimate pain they are not believed or treated like a drug addict.But in my situation i have all my MRI reports proving just how severe my back is.My Surgery reports.I have all the reports of all the treatments and literally the paperwork of everything ive ever had done.But he said he wants to believe me but in order to trust me he wants me to come in in a few weeks and take a test.Im really not thrilled about another procedure but ill do it because my pain is real and i have nothing to hide.What worries me is that he will not tell me what the test is or how its performed.He will only say its an NS test.Then the other thing that makes me worry is that he said that he is one of the only remaining few Doctors who do this test because and i quote ,"its not sophisticated".All i can think is what does that mean? And this test is the only thing that will set his mind at ease he says.

My question here is if anyone knows what an NS Test is and how its performed? And i really want to know if its an accurate test because if its not then i don't think its fair to base my treatments and pain level on the "unsophisticated" test.That's not even used anymore.

I also want to add that yes the pain medication im taking are narcotic pain medication and i know that is not ideal.But is it better to have a person in chronic pain suffer and have a zero quality of life or take narcotic pain killers and have that person be able to enjoy what quality of life they can manage to have?? And i have never once taken more then prescribed and i fully intend on weening off as soon as i can.Im keeping my attitude as positive as i can and im hoping something will turn around and it will get better and i wont need narcotic pain killers.But in the meantime how does it make sense that me and people with genuine chronic pain like me suffer by not being given medication to treat our pain just because there are drug addicts out there,ya know?

Anyhow im so sorry i made this thread so very long.But if anyone does know what a NS Test is please share.I want to know what the test does and how its performed.They wont even tell me if its invasive or not.What if there are side effects or possible complication? They wont even let me know i dont think thats right.I want to make sure im being treated fairly.

Maybe they should just give us all a lie detector test huh? Id take it in a heart beat.

Thank you all for taking time to read my post.
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1

Comments

  • I kind of wonder whether he was just messing with you. I have never heard of an NS test- nerve conduction tests, yes, but there is no test to verify that your pain is real. Nerve conduction test verify if there is nerve compression or damage, but not whether there is pain.

    Sorry, if it were me I'd be looking for a new doctor. I can't tell you what you should do, of course, but I don't like the idea of a doctor basing his trust in me on what another person has done. Plus nerve conduction studies are unpleasant :(

    And please don't think opiates are a non-ideal treatment for chronic pain. Personally, although they have difficult side effects, I am quite grateful to have such treatments available that do not eat my liver or kidneys or stomach lining. As long as you're a REAL chronic pain patient, risks are low- but we have a special program we use to scan through the computer, we'll know soon enough (KIDDING! I'M KIDDING!)

    Welcome, and good luck- keep us posted on what happens!

    p.s. Here is a link to one kind of nerve conduction test:

    http://www.spine-health.com/treatment/diagnostic-tests/electromyography-emg

    I will tell you, I broke my back 3 years ago and will have major surgery in 4 weeks, and have had this one time, on my arm when I complained about weakness after a shoulder injury. I have certainly never heard of it used to diagnose pain.
  • hhmmmm... NS? The only thing I can think of is neuro stimulator? But I don't know, maybe this might jog someone's memory or knowledge?
    Kelly
    APROUD CANADIANveteranButNOTa doctor, my thoughts are my own
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  • Hello smiley735 :) I dont think thats it but just the same thank you so much for taking time to read my post and reply.
  • Hello happyHBmom.I really dont think its the EMG because i asked him very specifically if it was and he said no.I asked is it the test were they stick you with a needle or something and give you a little shock.And he said no thats an EMG.The test im going to do really isnt even done anymore and added that other Doctors are very impressed with his ability in performing this test.Though i thought just like you that it was the EMG at first.Also as i was scheduling for the test before i went home the nurse said,"you know you cant take any pain medication at all before the test".And actually i didnt know that because he wouldnt tell me anything about the test.So i said to her no but how long must i not take it for? She said take it before bed then dont take it again till after youve come and had the test.Then she said,or you could just take it as normal but that wouldnt be good for you hahaha.I mean is it some medevil torture test or what,ya know? I dont get the secretivity.

    It hadnt crossed my mind that he might me messing with me but he does have a date set to perform the test so something must be planned right.

    It really does boggle my mind!I just dont understand.And i do agree with you that i dont like that hes basing his trust or "mistrust" rather,based on another patient.Why do i need some secret test to prove my pain is real? He has every medical record/report that there is to have on me.Right down to the Neurosurgeons records on the Emergency surgery i had to decompress my spine.Hes met me twice now and examined me himself.What else could i do to prove im truthful and being honest? My greatest fear is he will come up with some reason to say im not being truthful "but i swear i am a billion percent" and say nope no pain medication,done.

    And i actually cant get another Doctor.It took me six months to find this Doctor and convince him to give me an appointment.There are genuinely no Doctors taking patients.And besides this i really liked him.

    And i need that pain medication,its literally the only thing thats ever worked.Its either the pain meds or no quality of life.I know its frowned upon.I know your looked at as if your a drug addict if its known you take it.So i tell nobody but close family.Even my Pharmacists assistant gives me the "look" every time i go to get my scripts filled.Its a medication for people with Chronic Pain yet its refused to nearly most Chronic Pain patients.And i am grateful that something out there works for my pain and gives me some chance of having some chance at a quality of life.I just wish i wasnt made to feel so bad and humiliated because of Chronic Pain which is not my fault.Im a patient and i deserve proper treatment just as a cancer patient,a heart disease patient,a diabetic,or any other illness.Just because there are people out there who abuse the medication people like me need im treated as less.Its not fair to be made to suffer.Thank you so much for taking time to respond.Best wishes to you :)
  • I wonder if your doc is referring to a Neural Scan.
    apainmanagementpractice said:
    The neural scan works by detecting where you hurt and why. A trained professional can look at the immediate and accurate results and determine what the next course of action for your chronic pain should be. The entire information gathering process takes only a few minutes and the results are easy to implement.
    "C"
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  • Very interesting. The studies are small, though, and all end with "need for more study."



  • Hello haglandc.I do think thats the test so thank you so much for your help.

    Ive just quickly looked up some information about this test and it looks interesting if its as accurate as it claims to be.Its says the Neuron Scan Test is ...The NEW Gold Standard for identifying the root cause of pain.Its said to Take just 15 Minute -Completely Painless - Extremely Accurate - Does not use Needles.Sounds good,right? Who doesn't want to know the exact root of all the pain that's destroying their lives.If its as great
    as they say then i think its an exciting new test to help people.


    But i do wonder if its so great wwhy dont all PM,Neurologist,Neurosurgeons have this test in there offices if its so accurate.Surely it would help all the Doctors & the Patients.That's whats making me doubt its,and i quote "Extreme Accuracy".


    Also i might be wrong but as far as ive read it detects the root of the pain not the exact levels of ones pain.Which is what my PM said he was doing this test on me for.To quote "Ease my mind that your telling the truth".And FYI not because of anything ive ever lied or done wrong but because he had a patient who was doing bad things and lying about pain.Now im being treated like a liar and having to go through tests and treated as a liar.


    I have zero to lie about my pain is very very unfortunately real.


    My only concern with the test is that if it does detect your pain levels then that scares me.Even though my pain is 90% of the time a constant ,never letting up pain,what if during that exact day during those exact 15 minutes of the test my pain level is shown less then it was the day before or even the day after.But he takes it as im a liar and refuses to treat me anymore.That's what has me so scared.I already have high anxiety the last thing i need amongst all the pain is worrying about a DR it took me 6+ months to find will boot me outof his practice for something i had nothing to do with.

    I dont know about you lot but ive had just about enough of being treated this way.My reports and scans etc all show im not a liar.Do they make patients with other serious and Chronically painful diseases constantly have to take test to "Prove" they are not liars? Are they treated as if they are liars all the time?Its not fair.I know there are people doing very bad things out there but im not one of them.Im not on a street corner im at my DOCTORS office with all my scans and medical history and ive been left standing there crying many times from some of the looks the Nurses have given me or the tones that have been taken when speaking with me.I couldn't tell you how many times i have literally apologized to people for being in pain.Im very sorry,rant over lol
  • Well, that's their advertisement for the product.

    I scanned a few more results, and found doctors discussing it said it's no more accurate than standard methods of examination.

    And I wouldn't like the idea that a doctor had to perform a test that is not SOP not because it would help me, but because it would help him. I presume he would charge you for it?

    But ultimately this is your choice- I am lucky in that I do not have a dearth of pain management doctors in my area, so my decision might be different from yours.
  • Hello happyHBmom :) He never mentioned it was my choice.Basically ive taken it as a "if you dont do it then you know where the door out is" kind of situation.As for if i have to pay for it i just assumed it was covered by my insurance since he never
    mentioned additional costs.If i have to pay out of pocket for it then i wont be doing it unless he tells me how exactly this test will be benefiting me.Because i already know my pain is not a lie and i already know which discs are herniated so he will have to give me a better reason for paying for this particular test.And ive had all the others like the EMG ans the usual standard procedure tests.And if there is no big difference then why does he insist on this particular test? I dont know somethings feeling a little off about the whole things.But thank you again :)
  • If your doctor won't tell you more about the test and what the expectations are of the test, I would be cautious. First, you should make sure your insurance is going to cover it. If most doctors are not performing it, then there is a chance the insurance will not pay for it. Second, I've not ever had a doctor refer me for a test without them explaining the test and what they are looking for from the test. To show you are not lying about the pain makes me worry, because like you mentioned, you might be having a good day on the day of the test - then what. I would ask him to explain the test and if he refuses I'd worry about what he is hiding.
    Hang in there.
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