Intesting things unfolding with my neuropathy assessment...
Had my appt. with special neurologist consult was on 11/23 with major univ. here in Florida.
Thought I'd share an interesting turn in evaluating and diagnosing the chronic neuropathy symptoms I've been having for past 9 months.
Initial assessment of neuropathy being caused by compression of nerve roots at C-6/7 and T-1 has not been rejected, but because of patterns I have with the neuropathic episodes and other co-existing conditions found during my evaluation, I am being tested for a neuropathy disorder that has been discovered and is linked to being hereditary (inherited) and passed along with a certain rare gene.
It's called HNPP = Hereditary Neuropathy Pressure Palsy and is diagnosed by special blood tests analyzed in a lab up in Maine.
The important factor with doing this test will be to rule out if my neuropathy on my left side in the past and now the chronic episodes of left arm/hand is caused by the spinal nerve compression (severe DDD of C-6/7 onto T-1 (Nerve root 6/7/8 may be involved)with narrowing showing) or is it a neuropathy disorder of which no surgery for the nerve compression believed to be occurring in my c-spine on 3 levels.
If I am found to have thmis disorder by the mutation of a specific gene then I would know up front the c-spine serious and complex anterior and posterior surgery being suggested to possibly reverse the neuropathy symptoms and progressive damage to my arm/hand/fingers.
The c-spine surgery has been evaluated to not give a good prognosis for reversing the nerve compression problems in my arm and hands. So if I have HNPP they would take off the table and only if spinal cord became further encroached.
I'll write more about HNPP and the markers for this disorder it involves my feet and upper torso neuropathy!
I'm having blood drawn tomorrow and sending the vials off a special lab that does DNA special blood testing in Maine. Nor sure how long it'll take to get results, requires follow-up with my neuro.
I'll just say there are more complex puzzle pieces now, but it may just get more conclusive and target what the verdict is with regard to my c-spine compression intervention surgery slated for past 6 months with low prognosis for resolving my neuropathy.