looking for more like me, l4,l5,s1 2 level flexicore trial rats. Complications started in surgery due to discs being too big, much nerve damage from surgery, lost bladder control, ankles swell like broke if drive or walk too much, kneeling just plain bad, pain at knees and ankles severe joints become stiff where raising I need asst. Within days of my 61/2 hr surgery and waking to a pain sooo severe prayed to die, 1 time surgeon came was hour post op, said my pain worse then norm due to amount had to stretch spine to implant 2 already too large discs. good news he said was "your alot taller now" I failed to see humor, in hospital 7 days where pain increased increasing pain meds to point between morphine drip and my extra button, to oxycontin 3 daily still nothing, dilaudin every hour, percacets 2 on half hours, paging surgeon as I so bad intern not know what to do, 7 days paging least 8x day with no reply, considering his office connected to hospital pretty bad. IN end walked out albeit slow but needed away from there. day 8 my butt muscles started hurting as if did 1000 squats, figured due to 8 inch incision in abdomen butt pain from walking hunched over, NO then the pain and tightness started working way down legs, thighs so bad so tender like if have flu and your hair/skin hurts just to touch, even bathing washcloth on thighs brought tears. Then calves same tenderness but worse was tightness, when stood you see my calves shake, crying to mom to rub them I'm 3 time marathoner and legs especially calves felt like just finished marathon. Told mom they sooo tight, she feel and said sorry they are not tight at all?? As traveled for surgery was now nowhere near surgeon, had called leaving many messages too please call me, help me to no avail, ended up in ER pain just too bad, unfortunately no Dr was familiar with ADR surgery so unable to help. Pain raged on, far beyond pain pre surgery that felt at time so bad just beyond me. Told I be back to work in 6 weeks, at 6 weeks still unable to get up or down without help, couldnt put shoes on, dress self, so bad unable to make to 6 week post op appt. Complications have just increased with time, surgery in 05, now completely disabled. Most surgeons have refused to see me, even one invented disc. I was 38 single female highly active, yoga instructor, runner skier, biker diver you name it I did it. Now I can do nothing. some of other complications are if going to bathroom and sit more then few min, which you know effect pain meds have on bowels, so now my right leg usually will go soo dead, not just asleep but dead to point can stand and ankle simply twist. Takes minutes before feeling comes back. When ankles swell told its neurological and nothing to stop or help ie water pills but to lay with feet above head. Next days its as if have arthritis, ankles stiff and very achey, I say I walk like Herman Munster, has caused me to fall down stairs many times. Heres weird one I've yet to see anyone mention,I slowly noticed every time went up stairs leading with left leg I'd stumble, same when dressing if putting jeans on standing on left leg again Id fall over, I seem to have lost much balance??? I now walk slightly off as left leg seems to lag?? I was injured in boating incident, due to rough seas I being bounced severly to try help I sat in bow twisted to right pulled down on handle in attempt to keep butt in tact with seat as bouncing hurting my butt bones, result was tore 2 disc. The tears in disc were pinching nerves to left of spine, cant understand how after ADR I could still be suffering mainly left leg.?? My hands go numb and now very weak where opening bottle water too hard, they say no way lower back effect arms hands, only know before injured never had problem. Sleep all but impossible, I cant lay on my stomach or bend back at all. Recently I woke on back twisted at waist with legs atop other, to left, my right leg one on top of left, when went to move red hot pain screamed thru my hip and leg. I was crying from pain and fear I finally losing use of my legs as told discs too big continually stretch damage to sever nerves, that I got to go to bed nightly fearing what may find when woke?? My hip pain so severe unable to walk, tried to move around bed the pain increased, they wanted take me to ER but I said let me try to move around see if helps, they helped me walk around house and my leg slowly came around, however my hip felt like I'd fallen on it, like bruised sore to touch for week??? Over last 6 mths upon waking my back feels like embedded into bed, I extremely stiff and pain out roof, like I starting to rust, need wd 40 to help loosen stiff joints. Now I get up hourly and do few laps trying to keep from stiffening up.
So thats me and just little my story, my pain level never less then 6 and 17 by night. Pain mgmt has me on 2 80mg oxycontin, was 3 until cobra ran out and medicare wouldnt pay for 3 stating 12 hour time release, 2 percacet every 4 hrs for breakthru. Was taking Topomax which if anyone with chronic back pain not tried its the only drug I have actually felt difference, however again when had to go medicare there no generic so I was unable to get the one pill actually made difference. Fact my meds cost over $1200 mth, If I took pain meds as told I be in donut hole within 3 mths and since forced to leave my $90k year job, sell my home, now make only bit more then monthly meds cost, so where Im to come up with the $6000 out pocket to reach catastrophic stage and meds paid for again?? Hence I take maybe 1 oxy every 3rd day and maybe 2 percs day to try and get me thru donut hole, this year as pain at worst making impossible to take so few meds I ran out in Sept now taking 4-5 ibprofin every few hours which wreaking even worse havoc on stomach then pain meds. If anyone has any advice how to get meds when in donut hole or anything that could help from meds to info from those who may be suffering some same complications as I, I'd be eternally grateful.
For those considering ADR Flexicore I'd run away as fast as possible. How I wish someone had warned me. Hope this is helpful and informative as all I have left is to make a difference and try prevent what happened to me to another.
as we say in yoga,
(peace be with you)