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Angry and Frustrated



  • Isn't it awful to be dismissed by a dr. like that, when you've placed so much hope in getting that appointment. I am waiting to see an orthopedic surgeon myself and my own doctor has been useless. She even told me that the specialist won't be able to do anything anyway. I avoid even going in to see her because she hates to write me a prescription for anything but has no other suggestions for treatment. Her assistant actually told me that after one of my appointments she threw her hands in the air and stated 'I don't know what to do with this woman'... what kind of doctor is that? I had to call and ask her to give me a referral to the pain management clinic - she couldn't even come up with that on her own. I hope my surgeon appointment goes better than yours did but I have little faith in the medical profession right now. I hope you are able to find help and get the treatment you need. Age should not be a factor and 'false positive' results should still be looked into, what if its not false; you can't just assume that or what's the point of doing the test in the first place. Best of luck to you.
  • ooops, posted twice :S
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  • Thanks, Pain.

    I completely agree. Just because it COULD be a false result, I see no reason to completely disregard it. I'm still keeping my appointment with the doctor, and doing the test he has scheduled for me. My hopes are low, so if he actually turns out to be understanding perhaps it'll be to my pleasant surprise.

    Your doctor sounds like an awful match for you. If she has no option available to you besides medication, then she certainly can't groan when you need that medication filled! Do you have no other doctors that you can see? Really hope so, or that you get good treatment. :)

  • Unfortunately I live in an area where there is a shortage of doctors. I have my name on a list for a new one but it could take years. My hope is that the surgeon or pain management clinic will be able to help me somehow. I am also looking into seeing a naturopath or homeopath physician... trying to expand my options and hopefully hit on someone/something that will help.

    Tonight I can't sit up for more than 10 minutes and even that is painful. I have already taken 100 mg Lyrica and a Tylenol 3 and I'm lying on a heating pad. Hoping to be able to get up and visit the neighbors across the hall soon... even for 1/2 hr would be nice.
  • So sorry for your pain and the difficulty in finding some good doctors. My area has few also, and my insurance limits me to doctors within my state even though I live close to other states and cities that have better doctors.

    I've been mostly reclining since all this began. Sitting up hurts, especially sitting up straight like if one had good posture. Lying down isn't much better, so I get most of the relief from being in my recliner. lol!
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  • as preese said, don't dismiss the emg. an emg can actually tell the doc more specifically where your problem is and identify it whereas a standard mri has the chance of missing it. an emg https://www.spine-health.com/treatment/diagnostic-tests/electromyography-emg is a very valuable diagnostic tool. if you read through this article and some of the related ones, you might get a better idea of what it's all about.

    i have gone to some first time appointments with the hopes and expectation of leaving there with a better idea of what is wrong and a solid treatment plan in hand, only to be bitterly disappointed. it wasn't that the doc didn't do his job and try to figure things out for me, it was just that reality and expectations didn't cross on the same playing field that day. what did happen is the doc began the process which eventually lead to a better understanding and a solid treatment plan in hand. i still felt like someone had knocked all the wind out of my sails that first day, but i was glad to see things were actually coming together by the very next appointment.

  • C is a zillion percent correct. I've had EMG's which then later validated the need for an MRI, and visa-versa. If done correctly, the EMG can pretty well zero in on where the problem is coming from.

    Also keep in mind, we don't get along with "all" doctors, so maybe getting another Neurologist, or other spine specialist might be a way to go as well. You also might want to keep a "pain log", so you can show your doctor what your going through, what makes the pain worse, when is it worse, what triggers more pain etc. Please keep us posted. Good luck, and don't give up!!

    PCTF C4 - T2, Laminectomies C5, C6 & C7. Severe Palsy left arm/hand.
  • Thanks everyone.

    I'm definitely keeping my appointment to get the EMG on the 3rd. I actually found the article that you linked to, Haglandc, and read it before I logged on here today. I think the biggest problem was that he, as a doctor, could have probably explained to me better what an EMG was. He literally told me 'it's a test where we stick you with some needles and shock you a bit'. Doesn't really tell me a whole lot about it.

    Luckily, the EMG is in his office so no need for me to go somewhere else to get it done. So yeah, I'm sticking with him now--especially after reading what the whole 'sticking you with needles and shocking you' thing actually can do.

    With that said, I still feel like the neurosurgeon has a sort of weird attitude. I'm not sure whether he thinks *I* have one, but I have no idea why he would think that. I never even suggested anything to him or said anything that could have come across as being ignorant or pushy. But some people are just a certain way, and it doesn't mean that he can't actually end up helping me in the end.

    Regardless, I made an appointment with my general doctor for the day before I see the neurosurgeon. I haven't seen him in awhile so I'm going to give him the run down and ask for his opinion. Hopefully I can put together all this.

    Thanks again everyone!
  • I started with my chronic pain issues when I was in my early 20s, and I am now 51 (OMG...how did that happen?!). I have come across several doctors who reacted as your specialist did, and even had a NS who told me to "stretch every day, go back to work and just forget about the pain". Gee....if only I'd known it could be that easy! (Insert sarcasm!)

    I can tell you are driven, so keep your chin up and stay that way. It could be a long road, but go with the tests that are offered and if you aren't satisfied, then see if you can get another opinion.

    Do you have anyone who could attend appointments with you? I found that very helpful in many ways. Just a thought.

    Take care, and good luck. Hopefully you start making some progress soon.

  • Thanks so much Tracy.

    I was hesitant to take someone in to my appointments before, but I think I am going to start doing that. I'm not sure if I need to sign something beforehand, but I'll ask.

    The main thing for me is that I need to figure out what is wrong with me, what my health will be like in the future, and what I can do to treat it. I can't plan ahead for anything unless I have some idea of what to expect.
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