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Genital and Rectal Pain with Disc Herniation

Robert H.RRobert H. Posts: 3
edited 06/11/2012 - 8:52 AM in Chronic Pain
I have suffered with chronic genital and rectal pain for the last 10 years. The pain is severe burning in the rectum and testicles, along with stabbing and tearing pain in my penis. Two years ago I had a Pudendal Decompression surgery to relieve the pain. Since surgery the pain has returned. I recently had an MRI and it shows disc herniation at L4-5. My doctor is now telling me that having surgery to either remove the disk or fuse the vertebrae. I am scheduled to meet with the surgeon in 2 weeks. My question is, this is the first time anyone has suggested that the problem was in my back. Nothing I have read about Pudendal Nerve Entrapment or Pudendal Neuropathy suggest that a disc herniation could be the cause of the pain. Has anyone else heard of this? I have little to no back pain but I do have numbness and pain in my left hip.
Any help would be greatly appreciated.
Robert H.


  • SavageSavage United StatesPosts: 7,385
    ...can mess with almost every area of our body.
    The pain is not always felt exactly on the spine or neck area...although often times it is.
    It's so very individual.
    Sounds like you're doing the right things...going to the docs and telling them everything that you are feeling.
    This site may have articles of info for you..or you may get info from reading the forums.
    Best of luck to you and keep in touch.
    Honorary Spine-Health Moderator
    Please read my medical history at: Medical History

  • alexhurtingaalexhurting Posts: 1,991
    edited 11/08/2014 - 3:54 AM
    i also had that for many years where pain will actualy shoot in to the rectum, i had my l4l5 removed and i still get it but not as often, you might want to look at the map of the nerves which i did and i realised i believe the nerve from above the l4l5 meaning more like the l3l4 when i looked is the nerve that travels to the rectum area, its called the deramap or something like that that you can look at from what disc the nerves travel to where, that rectum pain is a edited trust me i know, i always had to lay down no mater where i was at when that comes on. alex

    use of foul language is not permitted on spine health. https://www.spine-health.com/forum/announcements/spine-health-announcements/forum-etiquette-language-it-offensive-or-not

    Flexicore ADR 2004 resulting nerve damage l4l5 Fusion 2006 same level, 2009 hardware removal with lami !
    2012 scs implant ,
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  • I've been looking at levator ani syndrome, I think it's what I've got. The recal pain is far more debilitating & painful than my numerous spine problems. I do have plenty of lumbar nerve root compressions.

    I also wonder if this pain, which does occassionally extend into my girl parts, is spine driven. No signs of letting up after 2 wks. I've only had one really bad spasm (I totally get why people hit the floor with that kind of pain).

    For now, it's like a really bad toothache in my behind.

    The pain is bad enough to push my various spine pains into the background a bit. It's impossible to concentrate with this going on.

    Hopefully, we'll both get good advice here.
  • Boy!! Am I happy to have stumbled across this one! Well..not happy but you guys know what I mean! I have vaginal and "bottom" issues as well. If this isn't too personal a question can I ask if any of you have issues having a bm? Loss of sensation to have one???
  • I was happy to see others having the same problems that I'm having. I've been off work for about a year with a work related injury. I have been having problems with both areas that you mentioned since the beginning. Who knew all this could be related.
    After having reviewed my MRI, I found out that I had a buldging herniated disc of the l4l5. I just had a microdisectomy about three weeks ago. I am still in alot of pain in the back, leg, foot and "other" areas. The doctor is happy with how everything went but said it will take some time for the nerve to heal since it was herniated for so long (10 months). I wish you the best of luck!
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  • For all of you having bladder and rectal problems, if you are also experiencing an increase in pain levels, increasing or changing patterns of numbness , feel differently when wiping - loss of sensation or decreased sensation, difficulty initiating or keeping a flow of urine going, not being able to completely empty the bladder or bowels, this may be Cauda Equina Syndrome.
    If this is what is happening with you, you need to give your ortho or neuro spine surgeon a call immediately to be seen and evaluated for Cauda Equina Syndrome. It is a surgical emergency. Decompression should happen within 48 hours for the best chances of preventing permanent spinal nerve injury.
    Do a search on Cauda Equina Syndrome for more information.
    Do not wait and do not let embarrassment get in the way of telling your surgeon what is going on.

    Sandi who has Cauda Equina Syndrome for the 2nd time in 5 years.....and uses a wheelchair now.
  • daisy mae said:
    Boy!! Am I happy to have stumbled across this one! Well..not happy but you guys know what I mean! I have vaginal and "bottom" issues as well. If this isn't too personal a question can I ask if any of you have issues having a bm? Loss of sensation to have one???
    Daisy Mae,
    If you are having difficulty initiating or having a bowel movement, and you have increased or increasing numbness you need to give your surgeon a call first thing tomorrow morning and tell the person answering the phone what is happening and that you need to be seen today. Don't wait. The longer you wait the less likely that you will recover the sensation or the ability to initiate a bowel movement on your own without a lot of other things.
    The lumbar nerves innervate the bladder, bowels, muscles and sensory area from above the hips down. Depending upon which nerves are being effected by Cauda Equina Syndrome, it will effect everything, muscular and sensory, including your bladder or bowels or both from the level effected down....all the way to your toes.
    It can also cause paralysis if it is left untreated due to the damage to the muscle innervation.
    I can not urge you strongly enough to call your surgeon as soon as you get up in the morning and don't do any lifting, bending or twisting until you have been seen.....
    Symptoms of cauda equina syndrome include:

    •low back pain,
    •pain in one or both legs that starts in the buttocks and travels down the back of the thighs,
    •bladder and bowel problems (inability or difficulty urinating, incontinence, constipation),
    •weakness in the lower extremities and loss of sensations,
    •numbness in the groin area, and
    •reduced or absent lower extremity reflexes
  • Sandi..thank you for answering me! *I* have been begging these drs to help me. I KNOW for a fact I never had any issues with my bowels BEFORE the gyn surgery in 2009..the excat time my back *mysteriously* started as well. In my heart of hearts I know that there is a nerve being pinched or something baecause I have ZERO sensation to have a bm. The only time I can/do is when I have taken the citromag and the oral laxatives (which by the way is my daily regimen..from the gi) They have done a colonoscopy, endoscopy (oral) and all kinds of bloodwork. But here I am begging "listen..isn't it posssible that my back issues could be causing my bowle these issues since I have never in my life taken a laxative nevermind bottles of bowel prep to even produce a bm". They always say.."we'll have to wait and see". Wait? For what? My poor body to be permanentley ruined because their egos and innability to run a few tests?
    There MAY be some light at the end of my tunnel soon though..I go see a motility specialist in Toronto (5 hours away..oh my poor back will die) but I spoke with the tech on the phone who does the test. He said that the actual dr would be able to see through all the stuff they have tested for and perhaps get an mri with a contrast to see if my nerves down there are being damaged. I started crying when he said that. I have been begging for years! YEARS! And I even told the drs that that is what *I* felt happened. But of course..no one would listen to me. So now that it has gone on this long..I'm sure it means a life of harsh laxatives and bowel preps and or colostomy at some point. At 35..are you serious?
    Do you hear the frustration and anxiety in my typing?? I have literally BEGGED the drs here. Some will say "yeah that's a possibility but there is no test to proves it". Yes there is..ME! *I* am telling you damnit!Ugh
    *HUGS* thank you ...I hope and pray my may 11 visit will shed some positive light on my situation...
  • Daisy Mae,

    I'm worried about you too because of the loss of sensation. Is there a way you can be seen right away?

    I have the opposite problem, some BM pain but my bladder drives me insane. It's always been very irritable (no infection, recently tested), Vesicare didn't help much, so I don't take anything now.

    It's been horrible the last couple of days, I go to the bathroom to pee & two minutes later, have to go again.

    I just had a massive amount of bloodwork, so we can rule out diabetes.

    I've had enough & am seeing my GP today. Ugh. Not looking forward to what me may have to do to check me. Hopefully, no probing.

    I just finished PT with no improvement in my low back, tho the traction machine helped my neck.

    So it's probably time for a referral to a spine specialist.

    Edited to add:

    I get numbness in my tailbone, some pain in the groin area, maybe a bit of numbness. I always associate cauda equina with urinary retention, or loss of sensation, not with frequency.
  • Hi Sassy,
    I can totally relate to the urination issues. I void anywhere between 25-38 times a day! I have Interstitial Cystitis and it sounds to me like you may have it as well. Google it and see if any of the symptoms "fit" you.

    As for being seen right away? No..the neurosugeon is ATLEAST 1 years wait..isn't that horrendous? Well to be honest he is my 2nd opinion. The first neurosurgeon I seen was through the Er's pain clinic and he was just horrid!
    Firstly, he refused to believe that I hadn't been working on the line somewhere building cars. He said that my back was "way too old and aged for someone my age". I hadn't done anyhting repetitive or anything really strenuous but have 3 babies ;)
    Then he told me I need to cheer up. He had forbid me from lifting my kids up ( they were 1 and 2) and I started crying and asking "how can I not pick them up..I am at home all day alone with them while my husband is at work". His response.."It's not my problem to figure out, I tell people that everyday". I was floored. I had to make adjustments in my routine and around the house. BUt..I still have to wait.
    I did see a neurologist a few weeks back and he is sending me for an mri on my neck. He thinks I may have a cervical lesion...lovely. But I have to get the clearance from my cardiologist to be given a general anesthetic again. ( I HAVE to be put to sleep..I freak out).
    Seriously..google the ic and see if it sounds liek you and bring it up to your dr. I just started a new med (for my bladder)it's called Elmiron. So far so good. Literally only been 2 days so it's hard to say. I aslo JUST started taking Neurotin..so as you can guess I'm a hot mess!!! Rofl..like a drunken sailor..hehe.
    *Hugs* let me know how you make out!!!
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