My 30 year old daughter was in a car accident 10 years ago. She had a traumatic brain injury and exploded on of the lower vertebrae in her back. At that time, the nuero-surgeon stated she may need corrective surgery in the future. She recovered but not fully. She has fought severe,crippling headaches over the last ten years. She is working at a professional job and did have a child two years ago.
Things changed with the birth of the child. It was a complicated pregnancy and was completed by C-section. Since this time she has had more back pain. Last year she fell and hurt her back. She did this again two weeks ago. One problem is she has been on so many pain meds over the years that it clouds the situation. Dependency has existed, but it is related to her pain.
A surgeon felt she needed to have surgery to repair her back. The pain center he is linked to felt she was showing signs of addiction and would not manage the pain for the surgeon saying she was not in a good mental state to have the surgery. The pain center finally stopped working with her for many bogus reasons.
They did refer her to another center and they utilized a special drug to break her dependency on opiads. They clearly stated she was not addicted, but needed the meds to manage pain.
Things went well for awhile, but in the end, the head of the pain clinic discouraged her from surgery. They feel her mind is misreading the pain signals. In other words, the pain is real, but it is in her head, not her back.
Since her fall two weeks ago, her pain is more severe. She can't get anybody to do anything about it.
We feel that her treatment teams have just turned their back on her whether or not the pain is in her head or in her back. We feel we are losing her as this is consuming her life and she has nowhere to turn.
She has not been on pain medication for 3 or so months and not on opiads in over a year. That dependency is broken yet she still suffers from severe pain. We know her pain wasn't a mask to get the meds. She is in pain.
Her wish is to get it fixed. She is tired of the meds route.
Any suggestions you may have would be appreciated. We are concerned and feel we are losing a beautiful daughter. The TBI also complicates matters a bit.