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Hurting soooo bad please help

teeteesbabytteeteesbaby Posts: 1
edited 06/11/2012 - 8:53 AM in Chronic Pain
I have scoliosis, and I have chronic pain. Last month was my first appointment in a pain clinic. They gave me Neurotin. This does NOTHING. I mean, it helps the nerve part, but wtf, I need help with my joints popping, and the pain that shoots down my leg. I don't have another appointment till the tenth, and my reg doc is later than that. I need tips, ideas to combat it. I've tried ben gay, a heating pad, I have a massager. All sorts of different things I can think of, hamstring stretches, but idk if those will help where it hurts. I want to find ones that help tho....if anyone has any useful tips on sites and stuff. Its like its right above my hip a little maybe a inch on my left side and it throbs when I'm stationary, and burns and shoots when I'm moving. I have problems in my neck too, but not as bad since I started taking the med. the med was suppost to help the lower back more tho I thought lol. Anyone ever been on that before or know what I'm talking about that can offer help? I'm tempted to go into the er, but I'm scared of needles and getting more shots. I'm 29, and I've had this disability since I was born, and was told it'll progress worse by the time I'm 30, boy they weren't kidding!


  • Hey there...sorry you are doing so poorly while you wait for your next appointment. The 10th does seem far away. Any chance you cal call them tomorrow and ask if they can sneak you in?

    If you explain the pain, maybe they can give you celebrex or some other arthritis/joint pain type medication.

    If you go to the ER, be careful and let them know you are being treated by a PM doctor. And, if you go to the ER...call your PM doctor first and tell him that you are considering going. I only suggest this because I have heard PM doctors want to be sure they are your 'sole' source of pain management b/c mixing drugs can be dangerous.

    Have you tried icing? Sounds like a lot of what are you doing is heat based. Perhaps ice for 10 mins a few times a day might help if there's inflammation. I'm not a doctor but it's the only thing I noticed.

    As for Neurotin, it's intended to help your nerve pain, not joint pain so it sounds like it's starting to do its job which is positive.

    Good luck. It sounds like you are not able to get very comfortable at all.
  • I don't really have any advice for you, besides it sounds like you have tried everyhting that you can! I agree with Dnice..try calling them and see if maybe they can put you on a cancellation list and perahps mention that you are in so much pain you are considering the ER( sometimes that will get you in to see them)
    I hope you get some pain relief soon!! Keep us posted..*hug*
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  • Hello all, I am new here and happened along this post. I feel for you on the pain issue and I can relate as I have chronic pain as well and have had for going on ten years now. Wish I could say the time has flown but that would be untruthful. Anyway as one said make sure you DO CALL YOUR pain doc if you go to the ER, they are VERY serious about drug seekers and want to make sure you are on the up and up. I have had to do this before and my doc was very cool about me going to the ER as long as I called him first. In fact he had them call him when I was there to let them know what I was on and my treatment course so they could effectively treat me in the ER, if it was not for him they would have given me some low dose pain med which would not have helped me much, since they did talk to him I got some real help that gave me at least one GOOD NIGHT of relief and some much needed relief for a few hours.

    I currently am on 100mg MS Contin (morphine) twice daily and 15mg oxycodone 3x daily for breakthrough and this works quite well for me. I have slowly gotten to this point mind you and it was trial and error to find what combo would work for me. My pain doc always told me that if for some reason the meds were ineffective to CALL HIM and NOT WAIT till the next appointment, there is NO NEED to suffer unduly because of app times or what have you. Communication is the key and plenty of it. Hope this helps ya and good luck and know you are NOT ALONE!!!

    L4-L5 and S1 double fusion with hardware, lamanectomy of L4-5 failed, nerve damage left leg with slight drop of foot.
  • I ended up getting help with Cymbalta- which is also an an anti-depressive- and who isn't depressed with chronic pain. I am not a big supporter of meds but would always try the least invasive things before surgery ( and I have had three now, with limited success but had no options- major bone chips in my spine). Have you Lyrica? Did not work for me but for some it is great, there are lots of different meds. Also pilates, acupuncture, Feldenkeis ( works for me), water exercise therapy. Everyone is so different and really I have found when I pin these specialist down and I have a great pain management doc, there is so much they don't know.

    Don't give up hope! We are here for you, and believe me
    we can relate to your frustration!

    Warm Regards,

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