Glad to have found the site! Could anyone please give me an idea what i do now as i don't know where to go from here.
I'm 39yrs old and i have Lower calcification of my lower back L5 L6 and S1, had this now for 18yrs, i have an indentation in my shine and now noticed a new one in my thigh.
But recently problems have happened in my neck, down my right arm, etc Bulge at the c6-c7 for the last six yrs
I am under the care of a pain clinic, but they can only look at one problem at a time, so they are looking at my neck and right arm pain. My first appointment they sent me for an Cervical epidural, Had the Epidural, and straight away my neck swelled up, just my luck, muscle spasms.
Anyway since the Epidural i have been in so much pain down my left hand side, left arm pain and a burning sensation that travels from my shoulder blade to over and under the armpit, that my GP now has me on Morphine. I am already on Pregabilin and Zanaflex. I went for my right arm pain, but have come back with Left arm pain, how is this possible?
Went for an appointment at the pain clinic, and met the most patronizing Doctor you could meet. He suddenly started pointing and saying that it had nothing to do with the Epidural, i never said it did. Mri was requested. Appointment was completely wasted. I was so upset that i asked my GP to request that i NEVER get the idiot again, he agreed that it had been a waste of valuable time.
Anyway was sent for an MRI.
My problem at the mo is i got a phone call saying from a nurse "I have been told to tell you, you have Degenerative Disk disease, but nothing that could be caused by the Cervical Epidural".
What the ?????.
What has that got to do with telling me what is causing all the pain, for god sake I'm on Morphine! DDD, could mean anything or nothing, good get out clause. All DR was bothered about was, nothing was caused by him giving me the Epidural.
I really need advice here guys! How do i go about getting this MRI properly read. I'm in the UK. How do i get a copy, and where do i go from here. You all know how how hard it can be to get a diagnosis, but i have been at this for 24yrs. My muscles are always in spasm, no matter what i do, i keep getting the run around, but no answer. All i want is to know why? I'm at my wits end now. The pain i am in is severe and am using Oramorph on top now too for the break through pain.
I'm so close to just giving up the fight, and being the vegetable they want me to be, with no life! I don't know where to start or if i have the energy too.
Please, advice needed.
trying to smile honest, even tho the phone call was just 15mins ago, and it really pushed a knife through my heart. Rant over. Thanks.