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Nerve pain is back kicking my ass,

alexhurtingaalexhurting Posts: 1,991
edited 06/11/2012 - 8:54 AM in Chronic Pain
I been doing everything in my power to over come this nerve pain. Natural creams along with meds was helping and i seriously thought i was geting beter for a while now. Flare ups were shorter and i was able to get control on it i thought. Now that summer is finaly here i started some small projects around the house. Taking it slow and trying to be some what productive in this life of agony.

Worked on my truck just slowly for short time each day fixing gas leak from fuel line doing everything right not to have to bend just laying flat on my back using my hands so it should not agrivate my nerve pain from lower back. This kind of work is all that i need to keep in good spirit and feel like i can get something done on my own cause i have all the time in the world to do it. 7 years of this nerve pain seems like a lifetime already and each time i think i am beating it and i can put it behind me and i am willing to exept that i will always have mechanical pain and all that. But when nerve pain returns this strong burning, shooting down the leg and nothing will stop it and flare up last 2 days with no releif at all is beyond normal for any human to have to deal with.

I can handle all the pain i have from surgery but i will never learn to deal with this kind of nerve pain. Nerve pain was the only reason for my trial of scs and pain pump which all failed and i been flying solo ever sense . If by any chance who dont know how nerve damage feels from your lower back . Well its like taking a shot to the spine with a .22 gun and having a bullet stuck in your spine hiting the nerve. Spine nerve burns and goes in to your ass and down the legs to your foot and pain is so bad you feel your heart is going to give out from the stress of it if it lasts more then a few hours.

You only have 2 choices. You can go to er and have them sedate you enough for it to calm down or after years of doing this as i have you try to avoid er and do it yourself taking the back up meds such as valium and call it the day and sleep untill its back to waiting around when it will start again. Or you can go have an injection from pain dr and it might help for 3 days if you are lucky or it might make it worse.

You dont mind doing this for maybe a year or 2 thinking this cant last forever and there has to be a cure. Well 7 years later here and no cure and each surgery after the 1st just making things worse just makes a person realise surgery is not a cure for all. Going now on 8 years of nerve pain and another at least 12 years of back pain stick a fork in me i am done. Soon i spent half my life in pain. Does this make me an expert? Hell no, I am graspin for straws trying to find releif to no end like everyone else. I see another neuro july 18th as i dont expect much anymore after seeing so many dr,s who say the same thing as the last 1.

All i know is i already paid my dues and its time for drastic measures to be taken to stop this pissed off nerve thats never going to heal. I think many people confuse depression and pain. I am never the 1 to be depressed by any means but with pain like this you would have to be crazy to say you are happy camper. Person can be happy 1 min and pain can go from 0 to 10 in 30 sec or less and that person will no longer be that happy person. Thats why its called pain,

On that note: i had to re write the marshal tucker song to my own version while playing it on the guitar.

Gona take a freight train. Down in the station I dont care where it goes,
Gona climb a mountain, the highest mountain lord, Gona jump off nobody gona know. Cant you see"". Oh lord cant you see". What this pain lord"". Been doing to me. Cant you see, Oh lord cant you see , What this pain, been doing to me.

Gona find me, A hole in the wall. I am gona crawl inside and die. This relentless pain oh lord, This evil pain lord, Never will say goodbye.
Cant you see, oh cant you see, What this pain lord, Been doing to me.
Cant you see, Cant you see. What this pain lord, been doing to me.
Ok Everyone sing along,,,, Cant you see,,,,,=...................................
Git-ir- Done
Flexicore ADR 2004 resulting nerve damage l4l5 Fusion 2006 same level, 2009 hardware removal with lami !
2012 scs implant ,


  • dilaurodilauro ConnecticutPosts: 13,584
    Yes we know how to deal with the chronic pain associated with our spinal conditions, but nerve pain, wow, does that send us off the roof!

    I am basically in control during the day with my medications, but at night time, its a total different story.

    I spend so much time walking around, beating my legs with my fists, rubbing my legs, doing just about anything to control the nerve pain. Most of the time, the nerve pain wins.

    I take a good dosage of Neurontin which should control the nerve pain. It does most of the time, but at night, forget it. I need to take my Baclofen and Opana to stop my legs for jumping out of my body.

    I hope you find a solution to make you somewhat comfortable.
    Ron DiLauro Veritas-Health Forums Manager
    I am not a medical professional. I comment on personal experiences 
  • I’m asking because that is the type of pain I’ve had for the last several years – non-stop. The only thing I have found that keeps it at a bearable level is to take lortab or Percocet every 4 hours. Other than that, nothing works. I take a neurontin at nighttime which does help somewhat, but it makes me feel so goofy in the head I have to be sure to take it really early in the evening or I feel like a fuzz brain the next morning for several hours. The narcotics don’t do that but the neurontin sure does. Nerve pain sucks. I don’t think it matters what you’re doing or how careful you are. I know people think that just because I sit at a desk all day – what’s the big deal, it isn’t like you’re doing manual labor, it shouldn’t hurt that bad. Doesn’t matter what your doing, nerve pain is relentless. Once the drugs wear off I could blow my head off it hurts so bad. Every heartbeat sends a shock of it down my butt, leg and into my foot. I can relate to how lousy you feel. What are the doctors giving you to control it currently?
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  • You got it Ron so you know then. You only know if you have it for sure. I still cant get over the fact that dr,s think this is ok for anyone to have this kind of nerve pain and to think medication will stop it. I feel like i was wounded in battle in a war ,and i only had a simple surgery for beter quality of life. Boy did that backfire. When pain subsides i find motivation right away untill it flares up motivation puts on the emergency breaks.

    I learned to deal with the fusion pain and hip pain from the fusion which is not pleasent by any means on its own. But you ad the nerve pain to that and wow. It gives a whole new meaning to pain dont mater who you are and how strong you are. This will drop the strongest person to there knees. I walked in the part store knew the nerve was eating at me but i put it out of my mind. By the time i made it back to the car siting in it , it was full blown flare up where i felt like i was going to black out from the pain. Now you have to block out the pain again long enough to drive home. That prety much does me in not to worry why i went and got the part cause sure aint going on the car this day,

    You can wake up feeling ok and make small plans for the day but its the nerve pain that will decide what you are going to do not yourself. But i am going to replace this fuel line even if it kills me. They can drag my ass out from under the truck i dont care. Lol
    Flexicore ADR 2004 resulting nerve damage l4l5 Fusion 2006 same level, 2009 hardware removal with lami !
    2012 scs implant ,
  • Nerve pain is freaking Hell . It royally sucks when your leg has been on fire all day and with each step it electrocute your ass then out of no where it decides to throw that wet feeling on top of it, like you just peed on yourself . Gotta check everytime just to be sure. I know our day is dictated by the nerve pain but don't give up on trying to get that car fixed or you will drive yourself crazy . I find the combo of lidoderm patches, Lortab, Zanaflex, cymbalta and tens unit seem to reduce it to a tolerable level so I can do light housework for an hour and breaks in between . If I'm in a flare , screw it not even that works. I've sometimes seriously considered just sawing the darn thing off if I knew phantom pain wouldn't haunt me forever.maybe we can start a new superheroes club ? Spiney lightning asses to the rescue....! Hmmmm... Needs a new name. Any suggestions? :)
  • Sorry Alex, was hoping the new concoction of natural remedies was going to stick. You know I know how it feels too, have it from my neck right on down to my toes, and this new post-op development with my arm is raising all hell with me. We just gotta keep on keepin' on and look forward to those better days that are ahead.
    APROUD CANADIANveteranButNOTa doctor, my thoughts are my own
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  • Mouse. I take norco and zeneflex usualy dailey and lately been doing prety good with natural creams geting by. The valium is only when it gets so bad where i feel i would have to go to er. Problem was that i already took a few zeneflex and i am prety sure they said dont take valium if i already took the zeneflex they dont mix. Valium is the only thing when i cant no longer take it that keeps me out of er.

    Michelle. You need help. Lol. We are already asses aint that enough? Lol

    Kelly you still early out of surgery so you might still get lucky and nerves might calm down and heal. You might even learn how to sing. Ok maybe thats too much to ask for eh? Not much talent comes out of canada eh. Lol.

    All i can say is i seriously thought the nerve was healing cause i had almost a couple of weeks of flare ups not beeing as bad as before after using dmso and also coconut oil. Then out of nowhere bamm . I was like on sandford and son tv show. Elisabeth i am coming to join you honey. Voices were talking to me dont go toward the light alex its not your time.

    If you girls have this same pain i dont know how you all handle it. I always thought i was strong but seriously this pain many times brought be to praying to god for it to stop. Even when i go to church i find myself praying this would just finaly get beter and get some quality of life back. I even light a candle in church 1 for me and 1 for my dad. I figured i want to cover all basis in case praying helps. Cant hurt i guess i tried everything else. God help us all,

    We had a band over the weekend in the park across the street so we went to check it out. The drummer could barely walk poor old boy. 1st thing poped in to my head was there is a band i would fit right in. The crips band. How do you start your guitar on fire without burning yourself up in your wheelchair lol
    Flexicore ADR 2004 resulting nerve damage l4l5 Fusion 2006 same level, 2009 hardware removal with lami !
    2012 scs implant ,
  • There are a lot of different pain meds out there. Lord knows I've tried a lot of them, but cannot stand the ones that make me goofy. I find the two mentioned don't mess me up and I can just be me, at least for a while anyway. I think the ticket is finding what works best for you and sometimes you do have to try different medications. I know a lot of people think I'm nuts, but I have tired alternative therapies and such, but it always comes back to narcotics. Without them, I don't think I'd be here, it is too much for anyone to deal with day in and day out - let alone have any type of enjoyment in life. I'll say a prayer for you as well - i do believe in the power of prayer. Take care - Marion
  • Howdy Alex,

    I so hear your pain! Lyrica takes care of like 85% of my "normal" nerve pain, but the zingers, well those suckers bypass Lyrica without a problem! Before I was put on it, I was in tears most of the day, curled in a ball many times - tossing food as it wouldn't stay down.

    Over the last year my neck has taken a turn south with more levels involved, and 3 different levels in my back. I never know when "a" particular nerve or nerves are going to get pissed off. The other day walking to the bathroom, the pain that shot down my right leg dropped me to the floor! I stayed there for about 20 minutes - just couldn't move, as each movement zinged even worse. I see my Neurologist next week, and will see what he thinks about it, and what (if anything right now) to do about it.

    I hope you and your doctor can figure out a new mix. I've been known to grab a friends arm and smack their funny bone, and as they say "OUCH!!" I tell them, "THAT is what I feel daily in different parts of my body, so is it nothing now?" I have seen people get a nibble of understanding at that point!! Gentle support *HUGZ* my friend.

    PCTF C4 - T2, Laminectomies C5, C6 & C7. Severe Palsy left arm/hand.
  • Alex i will call you ..... ZingerToe or TinkleToes ... Whichever you prefer. :) how I deal with it is take alot of drugs , do a little activities around house and with son when I can and crawl up and cry with a pint of ice cream when I can't take it anymore . Oops.... Kids awake gotta go . Will finish this later .....
  • Alex i will call you ..... ZingerToe or TinkleToes ... Whichever you prefer. :) how I deal with it is take alot of drugs , do a little activities around house and with son when I can and crawl up and cry with a pint of ice cream when I can't take it anymore . Oops.... Kids awake gotta go . Will finish this later .....
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