I just finished my SCS trial yesterday. I did have at least 50% pain relief in most areas, but not the one I wanted the most. It didn't help me at all with my tailbone pain when sitting. I thought I had been very clear to both my doctors and the rep that was the reason I wanted one the most. Yesterday when it was being removed, I was told that it doesn't help tailbone pain and I need to see a neurologist about different pain meds that would help my nerve pain more. So even though the SCS did help, it didn't help me enough to go through paying for it and having another surgery right now. I want to be able to sit for more than 30 seconds without the burning, pounding pain. The doctor wants me to go on Methadone to see if that helps. So now it is a wait and see time again. Anyone else have this problem; or is there anyone that the SCS did help their tailbone pain?
I have so much hardware in my spine, and have had 3 revisions, that I need to sit down with my doctor sometime and find out exactly what I have inside me now. I did know, but didn't write it all down. I know I have at least 4 rods, some plates, cages , 4 screws that aren't included with that hardware, and who knows what else. I have at least 11 different levels that have hardware. I have DDD, spinal stenosis, arthritis, and other spinal problems. I just finished my SCS trial that started out great, but ended poorly. I kept thinking it would start helping my tailbone pain, and it didn't.