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Chronic Thoracic Spine/Lateral Muscle Pain and Spasms, 2+ years--getting worse as time passes, HELP!

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Comments

  • jdrejjdre Posts: 6
    edited 08/06/2014 - 4:44 AM
    Sorry to hear about your challenges. So was your diagnosis T-5 T-6 Herniation? Did you get an MRI?
  • medanommedano Posts: 20
    edited 08/07/2014 - 5:11 AM
    My problems are a t6-7 herniation,8-9 and 9-10 bulges. I got "lucky" too. I have sat through the "if we did mri's on 100 people, 30% would show problems like that and not have symptoms" talk along with a " it's good you are seeing a counselor because I don't think anything will help you".
    Honesty ,I don't know how it happened. A year ago I was known as a man of my word and somehow I lost my credibility. I have a mind numbing ache between my shoulder blades. Under my arms and across the top of my hips ache.I have sharp pain around my bottom right rib. The pain never goes away. Sometimes my legs don't work very well. Activity makes it worse ( sitting, standing, walking). I have about 2 hrs that I can be up before I can no longer handle the pain and then I am literally on ice the rest of the day.
    I had a disc at c6-7 that was bulging, causing my right arm to hurt so bad,in a way that difficult to express. My doctors didn't have any problems believing me and replaced the disc. Up until after surgery the ache ran from the base of my neck to the bottom of my shoulder blades. Now its just between my shoulder blades.
    I wish I could offer hope but all I can say is good luck, I found I am unable to communicate in a way they understand.I now know what it's like to grovel. I am sooooo discouraged, tired of being discounted and treated as subhuman.
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  • medanommedano Posts: 20
    edited 08/08/2014 - 4:26 PM
    I used the spine-health search to find a doctor nearest to me that claim thoracic spine. I have gotten 2 responses and my wife is going to help me choose this weekend and then an appointment with my gp Wednesday to get a referral. He is up to sending me but didn't know where.
    I am absolutely desperate, each day the ache grinds deeper and I am struggle harder to keep my attention diverted from it. When I focus on it ,it takes my life over! My legs ache today and are weak or heavy is a better word, to the point I have trouble with my balance and use a cane.
    I am going to try 1 last time to reach out ,then I'm done. I cannot handle 1 more conversation like I had with my surgeon. All I know is June 17th of last year I didnt feel this way and 6:30am the following day changed everything.
  • jbacon 123456jjbacon 123456 Posts: 1
    edited 08/16/2014 - 5:48 AM
    i have suffered from this horrible pain for over ten years. the symptoms are exact and i have three blown thorassic discs. the 8,9,10 are crushed and i have no injury or reason. there is no surgery for this area and one surgeon in the country that would even try and he denied me. i am all but debilitated due to the pain. i have a pump implanted with fentanyl delivery throughout the day, but honestly it doesn't help much. the only thing that helps me is having my wife pull on my under arms whilst i lock my feet under the couch. i have tried traction and it is wonderful while there but it's temporary. i am sorry, but i haven't found anyone that can help, not even edited. i know you are looking for help, but i want to tell you i haven't been very lucky and i pray they find a help for this eventually. mine continues to get worse too. i am addicted to pain pills and my outlook is grimm. i hope you have better luck than i have wherever you are in the world.



     
     
    post edited by sandi- please see the forum rules at the link below for more information.
    you agree not to post specific physician names or health care facilities , devices or product names on spine-health.com.


    https://www.spine-health.com/forum/forum-rules

  • SarahLSSarahL Posts: 3
    edited 09/12/2014 - 9:43 PM
    Hi all :-) I'm a newby, but have the same issues. However, my treatment and diagnosis is totally different to what you guys are saying so I'm going to out it out there and see if anyone can relate. Bear with me it's long winded and there will be lots if spelling issues cause I'm using my iPhone ;-) Like all of you, I'm very active. However for the past 4 years my exercise has consisted of mostly Exercycle work with no stretching. I also have a tilted pelvis on my right side which can be tilted for a long time before I notice it. I see a musceloskeletal dr who realigns my pelvis when my ribs hurt and back starts to spasm. Normally everything goes back to normal, however this time I'm having I going issues. She calls this 'restricted movement' she also says my tight back is from poor posture. She firmly believes that fascia (google it) is the cause of the pain because it becomes tight when you have restricted movement. She is blaming my thoracolumbar fascia (google it and see how it joins to your muscles) in particular. She says it isn't working properly and pulling like an over tight elastic band. This is where the cycling plays a part - I have an over tight IT band from too much cycling and your IT band connects to your TCfascia. Can you see where I'm going? I'm working on loosening this with a foam roller and yoga work. The yoga is hopefully helping to stretch the TCfascia and I'm also have myofascial release massage. I have also found Chinese cupping and accupunture helpful for the tight trapezius muscles. I have also figured out for myself that my pec muscles at the front if me are very tight and pulling my shoulders forward so I am working on these with a spunky massage ball (I lie on the ball on the floor till I find a tight spot and work it out - good for trapezius too against the wall and also TCfascia against the wall) the pecs are tight from our 'forward' lifestyle - computers, iPhones etc. I'm am getting relief from the rib pain also from a stretch called the thorasic windmill - it's amazing! 2 sets of twenty 3x a day, I'll post a link after. It's great for mobilizing that area of the spine and I'm guessing it's stretching the fascia. I also believe I have tight lats, and this is because the TCFAscia is pulling and this stretch helps stretch them too.



    Please keep in mind, what works for one patient my be harmful to another. Its always good to hear what others have tried, but before you try it on yourself, contact your doctor
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  • SarahLSSarahL Posts: 3
    edited 09/12/2014 - 9:37 PM
    The other time in my life when I had this badly was when I was breast feeding (bad posture! Hunched foward!!) and my pelvis was out so I was restricted all over the place - perhaps get checked to make sure you are not out somewhere else? Like my pelvis, which squashes my right side and puts extra strain on the left side , and causes long term damage to everything else - like the fascia

    Link removed, it is not permitted
    Post Edited by Liz The Spine-Health Moderator Team
  • SarahLSSarahL Posts: 3
    edited 09/12/2014 - 9:26 PM
    Also, I take amitriptyline for the pain. If you were to ask your dr they might think your barking mad, but research shows that Myofascial pain is 1000x worse than normal pain and doesn't respond to traditional painkillers. Amitrip is an old school anti depressant, but taken in low dosages (10mg) is blocks the pain receptors in the brain and helps with myofascial pain. Some drs hate it and won't use it, but for me its been a blessing :-)
  • LizLiz Posts: 9,748
    edited 09/12/2014 - 9:44 PM

    Liz, 

    Veritas-Health Forum Moderator

    Spinal stenosis since 1995
    Lumber decompression surgery S1 L5-L3[1996]
    Cervical stenosis, so far avoided surgery
  • I was diagnosed with Scoliosis Thoracic Kyphosis, 2yrs. ago Im 43yrs. today, I also have severe arthritis from C2 to C7,I was in so much pain I couldnt lift my head, Im not into pain killers,the only pain killer I take is Advil and very little of that because of Nsaid risk.I have tried so many thing and research so many things trying to help my pain.I KNOW that debilitating,link locked,breathing pain. nobody understands severe back pain unless you had it, it makes you depressed,especially when your young.Well finally I have found a cocktail of vitamins that has alleviated my pain to 10% He is what I take daily at night before bed, a trio of Calcium,Magnesium and zinc, it comes in 1 pill, I also take 1 Turmeric caspule,and I take 1 Olive leaf Capsule
    , and I take 1 Mullein capsule. all these vitamins will cost you less than $ 20 for 3 mths, very inexpensive for your health.I did the deep tissue massages and yes they help , but expensive for as frequent people with Thoracic issues,I did the chiropractor, it helped a little and that too was getting to be expensive.So This is what I use and have been using this for over a month, and my pain is very tolerable.in fact I feel better than I have in 2 yrs.I wish you well , I hope the vitamins help you as they help me.
  • I know I might be a day late and a dollar shirt in this one seeing as this post is a couple of years old but almost ALL of your symptoms are in line with a genetic arthritic disease called ankylosing spondylitis. The back pain and the pressure on your ribs and your age of onset are what clued me in. How do I know? Because I have it. Tell your doctor to give you an arthritis panel blood test that looks for the HLA B-27 gene. For more information, goggle it. Good luck.
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