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Confused

FarmboyFFarmboy Posts: 10
edited 06/11/2012 - 7:55 AM in Spinal Stenosis
Hi everyone;
I don't know if this is the correct forum to post these questions in or not. But if not hopefully the Moderators can move it to the appropriate forum, if it's not.
I'll start by giving alittle history. I've had back pain for more years than I care to count (more like 20-25 years. In March of last year I had an episode that scared me to death! I woke up one morning to find I couldn't move my legs, had very limited movement in my hands and arms. After having my wife help me into a sitting postion on the side of the bed (not without alot of pain), my wife called my doctor who immediately told her to call an ambulance and take me to the ER. They kept me for two days and ran every test they could think of, without coming to a conclusion as to what had happened! When I go home, I called my family doctor and told him what they had done and he sent me to a Neurologist. The Neurologist had me come in and they did an MRI on my spine. the Results: "Spinal Stenosis and signifigant bone degeneration of the T6 vertabre". He told me that this would eventually put me back in a wheel-chair. I had been in one back in the late 80's, early 90's (for 3 years) due to an on the job injury.That was March 10th of 2010. Since then I have found little else out. I did however find a second Neurologist and had all the first neurologist findings transfered to her and had a second MRI done on my back. She confirmed the first doctors findings. Since then NOTHING! nothing about what to expect or how to deal with the pain.
I can't sleep for long on either side, for the shoulder pain. When I lay on my back, I can't lay there more than 30-45 minutes before I HAVE to get painfully up, get my quad cane, slowly and painfully get dressed and hobble to the garage to sit in the only chair in the house that provides some relief after 2-3 hours (I am always up anywhere between 2:00-4:00 in the morning with back pain). My wife thinks it's either that I don't want to sleep with her anymore or the bed. But it's not. It's my back! I still don't know what I'm looking at as far as what to expect to happen in the coming future. - Confused not scared.
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1

Comments

  • I to have stenosis and had 2 surgeries. While it has help a little but I still have left shoulder pain and my left foot has a limp and is weaker. Did they recommend any surgery in the future if so what type. I still need a laminectomy on C2-C7 but now I have no ins and waiting on SSD and medicare. I hope you find relief.
  • Nope no reccomednations of surgery. The only thing the new neurogolist did was to put me on Gabapentin 300mg twice daily and if I need anything further to take Tylonol extra Strength 500mg. I take 4 of those per day. I still deal with the pain at night and can't sleep through the night (from bedtime [10:30pm] to 5 or 6 in the morning). I don't go back to see the new neurologist until February of next year!
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  • I would have thought you would have severe spinal stenosis due to not being able to walk at that one time. The pain can be managed but the reversal of stenosis will not happen unless surgery is done. And even then it could come back. I know waiting till Feb is a long time to suffer and not being able to get around good. I would maybe ask the DR what they plan on doing in Feb and why you can't you have something done quicker.
  • I'm going to my new new (as of May of this year) family doctor on the 17th.I plan on having a serious discussion with her about this, at that time. Hopefully she will talk to Dr T (the new neurologist) and I also plan on making an appointment with her ASAP. This waking up at 2,3 or 4 in the morning with back pain and then going to bed at 9 or 10 at night is for the birds.

    Post edited to remove name of medical professional by Authority Member Liz
  • Ibritt64;
    I guess a little more history is in order here. In October of 1988 I was a roofer on a crew of 10 men.
    As I was rolling “felt” or tar paper out on the newly laid “deck” (4'x 8' sheets of plywood laid in the forming of a new roof) of a brand new two story house that was under construction. I was backing up as I rolled this felt out and walked right off the end of the roof (talk about feel stupid)! Now where I was located on the roof was about halfway to the crown, so the fall was about 4 foot shy of the height of the house. When I landed, I landed on my right leg. This fractured my right ankle, broke my right knee (fractured the knee cap), fractured my right hip and broke my back. After 3 surgeries and 6 months in the hospital they sent me home in a wheel chair telling me that I would walk again but only after a lot of physical therapy. 2 1/2 Years later, I had regained almost the entire use of my right side(87%). The doctor told me in my final exam, that I couldn't walk more than 100 feet without stopping to rest my right leg for fear of my right knee collapsing. No stairs, ladders, steps or curbs. Use the ramps on sidewalks. To this day I use the electric carts when I go into a big store like Walmart. So surgeries.... I've had my share.
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  • dilaurodilauro ConnecticutPosts: 11,348
    From what you have posted it seems that your spinal problems are the Stenosis and some Degeneration of a disc.

    Stenosis and DDD are pretty much natural spinal aging problems, especially DDD. Stenosis, narrowing of the spinal column more often results after some spinal surgery.

    Since your doctors to date have not find any other specific disc problem , not recommending surgery, not providing any pain medications, what are there recommendations and actions plans for you?

    Stenosis and DDD can be treated through an approved exercise program and over the counter medications. Only in severe cases is surgery required.

    Gathering from your post, I am going to assume you are over 40 years old. Another thing to look into, is arthritis. With some of the work you did, and falls, arthritis could have set in and potentially progressing. Osteoarthritis can be very crippling and painful. Since there is no way in stopping that, many times surgery is required.

    Personally, the Stenosis and DDD gets in my way mostly during the night, when I first get up out of bed and when I get up after sitting or driving a car for a while. I have found walking and using a therapeutic pool to be very helpful in managing these conditions.

    Here are a few Spine-Health articles that you should read:

    DDD

    Stenosis

    Pain Management

    Also, take a look at our FAQ. Its a combined set of forun threads I've put together, as well as many other members contributing.

    Your not alone with pain and there are many here that can and will listen to your situation.
    Ron DiLauro Veritas-Health Forums Manager
    I am not a medical professional. I comment on personal experiences
    You can email me at: rdilauro@veritashealth.com
  • Sounds like they trying to avoid thorasic surgery because its a prety complicated surgery on the T levels. But sounds like you might have to have it done. Just get the best dr to do it if they decide to do surgery. If they have to do fusion posibly them they might have to fuse more then one level if there is issues with degenerative bone at that level.

    Unless they cant do fusion because of the degenerative bone issue who knows. Hopefully they can do some min procedure to give the nerve more room to stop the stenosis. Good luck
    Flexicore ADR 2004 resulting nerve damage l4l5 Fusion 2006 same level, 2009 hardware removal with lami !
    2012 scs implant ,
  • Tomorrow... will be better, hopefully. it's D-Day (doctor day).
    dilauro... Actually. I'm a 58 yr old male originally from Iowa now living in Virginia Beach,Va. I will consider your words and take these ideas to the doctor when I go tomorrow. I woke up at 1:30 this morning with pain in my back and shoulders from trying to lay on either one of my sides. When the pain subsided (about an hour)I went back to bed until 5:30am. I woke up again with the pain in my back and immediately took two Tylenol Extra Strength 500mg. It didn't take it as long to subside after that. I was up then. Still am!
    What your describing of your personal condition, sounds identical to mine!! Road trip are a slow go for me. like when I go visit my sister in NC (a 5 hour trip). I have to stop often and get out and move around.

    alexhurting... I hope they don't have to do surgery. They haven't brought it up. ...yet. Like i said. All they've told me is that the T6 Vertibra is "signifigantly smaller that the rest of my spine". And that "it will eventually put me back in the chair". Lovely thing to look forward to...
  • Hi Everyone;
    For the past 5 weeks I've been undergoing physical therapy 3 days a week. Between that and all that living life entails I have been exhausted.

    To catch everyone up on what has transpired with my back treatment:

    On August 17th I went to see my family doctor to discuss with her my continuing back pain that wakes me up anywhere between the hours of 2 and 4 in the morning. Now remember, I had an MRI on my back on March 10th of 2010 with a nerologist at Chesapeake General Hospital. My current family doctor had ordered "all" results from that doctor to be sent to her. During this discussion on 8/17/11 she told me that there were no findings of bone degeneration of Vertabre T6, in the MRI or in his personal notes. I asked her if I could look at the report myself? She showed it to me on her computer right there in the exam room. I was LIVID!! I HATE when a doctor lies to me! She said that what I needed was to get active. She ordered the physical therapy. But to no avail. I STILL wake up in the middle of the night with back pain! I sent her a message through the MY Health My Chart portal that links me to all of my doctors, test results (that make it into MY Chart) here in the Sentara Healthcare system. Now she reccomends that I make another appointment with her.
    I am getting so tired of the run around!! I just want a decent nights sleep with no pain when I wake up!


  • On November 23rd I'm gong to a spinal specialist. I hope they can tell me something.
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