I am a new member and am wondering if anyone has any feedback. I had an ACDF three years ago (C5, 6, 7) and 10 months ago they found that it had not fused. 7 months ago I had a posterior revision fusion (C4, 5, 6, 7) and was in the hospital for about a week.
My neck muscles are in a constant spasm. They spasm so much, that my neck swells and I often end up with a terrible headache. I was rehospitalized a few months ago for three days when my neck had swelled very badly. They thought it was a result of severe spasms, but other than that had no magical remedy for it.
I have done physical therapy, accupuncture, TENS unit, ice, heat, and even meditation. I am not taking pain medication any longer because it does nothing to help me, but I do take a very low dose muscle relaxant as needed. Not even sure if this is doing anything.
They have been doing bloodwork and my liver levels and sedimentation levels are very high, so they think this is a sign of inflammation and who knows what else.
Has anyone else had such a nightmarish experience?? I feel like I will never get better and I have lost faith in the doctors and medical profession in general. I was optimistic with the first surgery, but this time around I have lost all hope and the pain has just completely broken me down. I spend a lot of time crying.
Any help or similar stories would be appreciated.