I have been visiting this site for a few years. I have learned so much, sometimes too much. I appreciate the honesty and caring so much form people who KNOW.
I am seeing an OS on Monday for a second opinion. I had an appointment with my last OS Assistant last week, whom I had never met before. I no longer have any confidence after 2 spine fusions. I feel like they dumped me as soon as they found out they could not "FIX" me.
I have been going to the pain clinic for several months. I've had every injection possible along with Rhizotomy to my lumbar spine 3 weeks ago. The leg pain is much better. The back pain is still miserable. Most of the time I can barely stand up straight. Walking is becoming almost impossible. I have cages at L3 with artificial compound. The fusion is well healed. L2 disk is herniated and L4 is ruptured and extruding disc material.
I had a cervical fusion with rods and screws 3 years ago from C3 to C7. Surgeon admitted he should have gone further because symptoms returned shortly after surgery. I have a lot of nerve damage and scar tissue. At the time of the surgery, I could barely walk and had a lot of balance problems, foot dropping, pain etc. Now, I have very little feeling in all of my extremities. I can cut myself and not even know it.
At this point it is so hard to differentiate where all of my symptoms are coming from. I have a hard time even explaining it to the Dr.'s. All I know is that whatever risk there is of not getting a lot of relief from additional lumbar surgery, I am willing to take the risk. Without surgery, I will soon be in a wheelchair. I have put it off for over a year know. I am completely exasperated over pain management. My experience has been that it does not exist.
My daughter is coming with :S :S :S me Monday. I hope she can help explain to she surgeon the condition I am in. I have not given up hope for a better quality of life. Coping with the quality of my medical care is extremely stressful. My career was in Healthcare from insurance to actually working in a well known Spine Center. I know the system and that makes it even harder.
I am hoping to hear what anyone else thinks of my situation. Maybe I need to approach it differently. I honestly feel like my lumbar spine is about to cave in. I am so afraid of falling. Any advise would be helpful. Sorry to be such a long post, but as you can see, it's very complicated. Thanks, Lorraine