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Pain! It is controlling ALL my life!

13

Comments

  • Oh no! Sorry to hear about your fall! Take care Mrs. HD and let us know how you feel later. Those darn sleeping pills and purse and fridge. Hope you're okay. Charry
    DDD of lumbar spine with sciatica to left hip,leg and foot. L4-L5 posterior disc bulge with prominent facets, L5-S1 prominent facets with a posterior osteocartilaginous bar. Mild bilateral foraminal narrowing c-spine c4-c7 RN
  • Thanks :) Just for the record I had not taken my sleeping/night meds yet when I fell. I fell at like 4PM ;)
    L1 - S2 "gone" useless in 1 way or another. DDD. RA. Bone Spurs. Tons of nerve damage/issues. Stenosis. Both knees replaced. 50 yrs old. I had a great fall (hence my user name) at age 41 and it has been a domino effect every since.
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  • Geesh, so sorry to hear about your fall.
    I hope you get to bed early at least.

    To your other post, I wanted to say, there's sleep and then there's quality sleep. So many of the meds I took for sleep, let me sleep but then I was still felt exhausted the next day. I know you said you've tried many types of meds but there just has to be one that works better for you. :-(

    And have you tried adding in supplements like Melatonin or Tryptophan?

    I love your idea of taking the sleeping meds much earlier. 7pm or so would be my guess. I remember a doctor suggested that for me.

    I'm good for about 6 hours during the day and 2 of those are used for waking up. So I have 4 hours left before I simply must lay down again because I can't keep my eyes open. So I sleep for an hour in the late afternoon, drag myself out of bed. By then it's 5 or 6 pm and it takes me another hour to wake up again

    But at least I have a couple or more decent hours at night. If I don't take a nap in the afternoon I feel so tired I can't do anything in the evening and feel just awful.
    This way there's more of a chance I'll make some type of decent dinner and watch TV and go for my 10 minute walk. I call it MY time. I also call the afternoon naps MY Time too. And I turn off the telephone so I'm sure I won't be bothered while napping.

    And those are the good days. The bad pain days are spent doing everything I know in keeping the pain at bay. Lots of relaxation tapes, ice, heat, inspirational speakers, whatever I can do while I lie horizontal.

    You are not alone and from what I read it sounds like you need to give yourself a break. Besides your body needs sleep to heal. Maybe your body is trying to tell you that and the meds are a good thing?

    Sometimes I have to tell myself, "It's ok to rest. It's ok to sleep". I feel very anxious at times when I need to sleep so much, like I'm being lazy.

    I wanted to have a schedule, a routine of sorts, get up at the same time and go to sleep at the same time. Plus schedule the rest of my week. But the pain dictates that schedule so the only one I do have is the one that involves my afternoon naps. The rest of the days are up for grabs depending on how I feel.

    Not sure if I answered any of your questions, but I wanted to try.

    Like someone else's posted I wish we could all live around other people like us so we wouldn't feel so isolated. We're mammals and mammals are made to be with others, and we become our best and happiest selfs when part of a larger community. Too bad that's just about the hardest thing to do when were stuck spending so much time relieving pain. I think it would be very healing if we we're able to be around people more and not so much time alone.

    Just my 2 cents.

    Blessings,
    Angela
  • when i first started having bad back pain my sleep was disturbed and at first i thought i was strange and the only one ..i have since learned that i am not .everyone i know with serious back pain has thee two /three hours sleep problem ..and it doesn't matter how much pain medication and sleepers i take .that pain will wake you up ..so i asked a friend of mind a consultant neuropsychologist and sleep specialist .{i know so many medical people because my wife is a health professional and all our friends are in the medical profession ..she said that its a warning from your OLD brain the primitive bit that warns you about fear and survival .and there is nothing you can do about it because if you tried to stop it ..it would interfere with so many things that your brain dose without you even giving it a second thought ..i asked so why when i take sleeping pills and pain killers do i wake in pain .and she said to protect you its your brain saying get up and sort this problem out its like a safety switch .the only way you could stay asleep is if you were sedated in hospital with an anesthetist looking after you ..and no one wants that.so i said what should i do ?? and the answer was get up and do as i do rake your pain killers get on your chair and suck it up !! and that's the advice from a top consultant .she said back pain is the worse for continuous sleep deprivation .so that it folks straight from the top consultants mouth
    tony
    1997 laminectomy
    2007 repeat laminectomy and discectomy L4/L5
    2011 ALIF {L4/L5/S1}
    2012 ? bowel problems .still under investigation
    2014 bladder operation may 19th 2014
  • And it sure makes sense to me. I can remember the days that I rolled over in my sleep without knowing it and now it's a big deal because my brain has to tell me how to roll over, where tot place the pillows, and hopefully fall back ro sleep.
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  • Rascal- I have the same problem rolling over in bed... I have to wake up enough to collect the assorted pillows I will need and place them where they are most beneficial.

    Tony- That makes perfect sense however darn depressing it is to hear.

    Mrs HD- How are you feeling this morning?

    Julie
  • sunrise you hit it right on the nail head! That is what my body tells me to do BUT I am telling it NO and forcing or trying to force myself to get more hours out of a day..

    Not sure after reading all of these posts if I am going to win this battle though....sigh

    I went to bed early last night as of my fall and still did not fall asleep when I wanted to and ended up sleeping 10 freaking hrs! GRRRRRRRR!!!!!!!

    Tony, I am confused, so am I fighting a losing battle?

    Rascel - yep my brain does stuff to help me while I am sleeping too.

    My knee and back still hurts like heck today - but it has only been like 19 hrs or so since I fell, so go figure.

    I am really disappointed with myself that I slept 10 hrs, so with rest time and sleep time I was in bed for 15 hrs!!!!!!!!!! :jawdrop:

    L1 - S2 "gone" useless in 1 way or another. DDD. RA. Bone Spurs. Tons of nerve damage/issues. Stenosis. Both knees replaced. 50 yrs old. I had a great fall (hence my user name) at age 41 and it has been a domino effect every since.
  • oops sorry double posted -

    removed now ;)
    L1 - S2 "gone" useless in 1 way or another. DDD. RA. Bone Spurs. Tons of nerve damage/issues. Stenosis. Both knees replaced. 50 yrs old. I had a great fall (hence my user name) at age 41 and it has been a domino effect every since.
  • your sleep will be disturbed in one way or another .i have had 2 lots of surgey and after the last lot sleep has been a none event .2 hours max for the last 5/6 years .as i said its a common trend with pain sufferers .the only way to ensure a good nights sleep is under sedation in strict hospital conditions {no body want that} or have no or little pain ..some people don't realise just how debilitating chronic intractable back pain is ,its awful .there is no answer i have asked so many health professionals .you could try a top end mattress and the best pillow available the tempur millenium queen in large .a hot shower and a nice bed time drink also we have music in our bed room and sometime i drift of to the sound of pink floyd's dark side of the moon or kd lang or rumor .but no matter how relaxed i am pain will wake me and i can't do anything about it .the only thing to do is to come down take your meds put the TENS on and get comfy on the recliner and watch two and a half men! its a side effect of pain .no matter what you do if the pain is serious your brain will wake you its instinct hope this clears up your PM sorry if not
    tonyx
    1997 laminectomy
    2007 repeat laminectomy and discectomy L4/L5
    2011 ALIF {L4/L5/S1}
    2012 ? bowel problems .still under investigation
    2014 bladder operation may 19th 2014
  • Just stopping by to say Hi. Hope you'll be feeling a little better soon.
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