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Neck pain, head pressure, facial tingling, and a host of other symptoms

not4saknnnot4sakn Posts: 3
edited 06/11/2012 - 8:56 AM in Neck Pain: Cervical
Since April 2008 I have been dealing with daily neck pain, head pressure, visual floaters, nausea, disoriented, and brain fog. Within the last year or so I have developed facial tingling/fullness that is mostly left sided along the cheek and jaw line and sometimes tingling that radiates into my left arm.

This went undiagnosed for over 2 years and finally I saw a neurologist in Atlanta, GA who viewed the same film the other doctors and seen and spotted something out of the ordinary. According to him I have two bulged disc at C3&4, and C5&6. He believes there's nerve impingement causing all the symptoms, even the facial tingling which would be a form of trigeminal neuralgia.

So far I have had an epidural injection in my neck and botox injections and neither have alleviated any of the symptoms. He suggested I take gabitril but due to the side effects I have opted against it.

All the x-ray's I've had are atleast 3 years old. My cervical MRI was done on an open MRI which many say isn't as accurate. I have also had CT scans, MRA's, countless bloodwork, lymes panel, etc... and everything came back negative.

I'm thinking about having some more recent cervical MRI's on an enclosed machine to see how things have progressed over the years since I'm experiencing new symptoms from it.

This has been the longest 3 years of my life and there seems to be no end in sight. After spending thousands of dollars, traveling out of state, various doctors, chiropractors, needles, I'm beginning to feel I will just have to deal with this but I have to believe there will be a breakthrough!

I've often wondered if my symptoms are even associated with cervical issues. I've pursued other options like gluten free diets, tmj specialists, etc...Is there anyone that could offer me any advice? Anything will be appreciated.
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Comments

  • You're right that's a good start to get new flexion/extension x-rays and an MRI. I hope this Dr. will work with you. I've been at it for 3.7 years and found a new Sports Med Dr. (Physiatrist) who needs to know where my sciatica is coming from. It's good to have hope. Take care. Charry
    DDD of lumbar spine with sciatica to left hip,leg and foot. L4-L5 posterior disc bulge with prominent facets, L5-S1 prominent facets with a posterior osteocartilaginous bar. Mild bilateral foraminal narrowing c-spine c4-c7 RN
  • Still no answers! I had a recent MRI with contrast showing a herniated disc at c5/c6. The neurosurgeon says I don't need surgery yet but the only symptoms the disc would cause would be left arm pain or tingling but no headaches or facial tingling like I've experienced. He thinks it's a result of something else but like every other doctor to date, that something else is still undiagnosed!
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  • Is your pain ok?? I am dealing with this problem since 2-3 months 
  • itsautonomicitsautonomic LouisianaPosts: 2,294
    Did this begin with an injury?
    Do your due dilegence, trust you know your body and question everything if it does not fit. Advocate for yourself and you will be suprised what will be revealed trusting your body and instinct.
  •  Hi Not4sakn, I agree that a new MRI is in order. Sorry to hear about your MRI results..I hope conservative treatments provide some relief. Just realized this post is from January. Please update on your situation and hopefully you found out more since then. Take care.
    Ol' Spiney..Micro-D L4-L5, TLIF L4-S1 -post op central HNP L4-S1,stenosis, retrolisthesis, EF, facet arthropathy, lumbar& cervical DDD. FBSS- Medtronic pain pump & SCS
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  • I had head tingling, upper back numbness and tingling. When they put me in traction at physical therapists office my whole head was tingling and I got dizzy. I had an MRI and had severe herniated disc c 6/7. Had surgery a week later. It had herniated into spinal
    cord. I think sometimes the MRI doesn't show the whole picture. You are laying down not standing with the pressure of your head on your neck. I think the y need to do standing Mris on us. 
  • nutcase007nnutcase007 United StatesPosts: 225
    not4sakn - Have you ever had an ENT (Ear, Nose and Throat) doctor evaluation?  I'm sure from what you describe that you got some cervical issues going on, but some of your symptoms  (head pressure, nausea, disorientation, and brain fog) can be a result or made worse because of ear issues.  I had an ENT doctor find several issues in my neck (none spine) that made my cervical issues worse.        
  • I have same symptoms, with major floating/dizziness/lightheaded sensations pretty much 24/7. Have seen pretty much every specialist known to man kind and then tried alternative treatments like massage, acupuncture, prolotherapy. I know pretty much what the problem is. I have cervical instability which causes something or other to fall out of place and put pressure on the nerves in my neck causing this wide array of symptoms. Only relief I have found is heat and the drug Antivan(generic name is Lorazepam). I don't like taking the drug though because of the side effects and also because it is exteemely addictive. I see a neurologist this coming week and am hoping and praying he can help me. (This is the 3rd one I have seen) I am only 23 years old and am prettty much confined to my home and only go out for doctors apps and to work a couple hours a week. I need help.
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