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I did not fuse! need more surgery :(

LisaRachelLLisaRachel Posts: 286
edited 06/11/2012 - 9:01 AM in Back Surgery and Neck Surgery
It's been a year and 5 months since my L1-L3 fusion. Iv known something was wrong due to my increasing pain! No one was taking me serious it was pissing me off which made me depressed and alone. My last visit to my Spine doc was in Oct 11 I had an MRI that I begged him for, the results were that my hardware was in place so I must be fused nothing more he could do see you in a year!

My father has a good friend who is a neurologist in Detroit I'm in Toronto. I recently e-mailed him and told him what has been going on with me he was upset to hear I was still in agony with my back. He asked me to come down for a 2nd opioun with a neurosurgeon. Needless to say I had a CT on Wed flew home on that day got a call today to say the hardware is loose with non-union! needing a ALIF.

I'm so upset and pissed off I had to go to the States for bloody answers. I'm getting all the reports and the CT sent to ASAP going to my surgeon here next week for a "talk"

Has anyone else gone through this? How was the Dr's reaction??

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Comments

  • MetalneckMetalneck The Island of Misfit toysPosts: 1,778
    there are a select few of us that have had to deal with non-union (pseudo-arthrosis) and had to have repeat and or/additional surgery - though i am primarily cervical .... here's my story for ewe's and gasps. https://www.spine-health.com/forum/neck-pain-cervical/history-a-pain-neck

    welcome to spine health. i hope you get things sorted out.

    dave
  • as you know i had an ALIF last dec .and i can tell you its no picnic .i wish you all the best .recovery is slow and hard work .
    tony
    1997 laminectomy
    2007 repeat laminectomy and discectomy L4/L5
    2011 ALIF {L4/L5/S1}
    2012 ? bowel problems .still under investigation
    2014 bladder operation may 19th 2014
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  • Jim, that so funny! I was thinking of looking at property in Florida. The cold is awful on my joints and back! Just like you, I was great for 6 weeks. Then slowly the pain and mobility became an issue but by then everyone thought I was going to be pain free with the nightmare ending. My, family piss me off " It's all in your head if you stop thinking about it the pain will go away!" WTF? LOL. The pain clinics here in Ontario are all shutting down or, there is a 3 year waiting list! Disgusting! I;m on morphine which Iv been on for 2 years the same dose and guess what?? It's not working anymore!! GRRRRRRRR. The neurosurgeon in Detroit gave me a name to call but what do I do fly there every time I have to get a script?

    If you know anyone who wants a wife a dog and cat let me know ;)

    Tony - I'm not sure I'm going to put myself through a 4th spine surgery I hope you're getting better bit by bit.

    Dave, thanks for the posting your MRI's are cool to look at but sad and painful too.

    I'm wondering, what to say to my doctor here that told me I was fine in Oct!
  • So sorry to hear the news of your non union. Terrible that you had to leave Canada to get some answers.

    Good for you though for knowing your body and not just accepting what your surgeon said. I wish you all the best with your talk with him next week. Please let us know how it goes. He should understand that you wanted another opinion, although some surgeons don't always like when we second guess, you were not being listened to regarding your pain. It can be so hard and a long wait for another opinion here in Canada, so am happy for you that you got one.

    Will be thinking of you.

    >:D< Karen
    >:D< >:-D< : Karen
    L3-S1 herniation and bulges, stenosis, mod facet,ddd,impinged nerves,coccydinia
    discectomy/lami July 2011-unsuccessful
    adr L5-S1 Feb 2012
  • Thanks Karen,

    It's frustrating that no one believes me that I have pain. My family are all being nice since Ive found out, I guess the guilt has kicked in!

    My father has agreed to go to the appointment with me. I'm happy about that, wondering how my surgeon is going to react at least I have someone with me. If he gives me grief I will find another doctor hopefully It won't take a year. I'll be so upset. I need this nightmare to end!

    Did you have your surgery?

    Lisa
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