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SI joint pain-Can you describe your symptoms please?

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2

Comments

  • Sorry to hear that you too are experiencing just as much pain after surgery as before. Glad to hear that you are going in on the
    27th for an injection (I would be excited too!)

    Please keep us posted how you make out after the injection.Hope that it brings you lots of relief.
    >:D< >:-D< : Karen
    L3-S1 herniation and bulges, stenosis, mod facet,ddd,impinged nerves,coccydinia
    discectomy/lami July 2011-unsuccessful
    adr L5-S1 Feb 2012
  • cjeuckccjeuck Posts: 4
    edited 10/26/2012 - 6:38 AM
    After reading these posts I had to add on and share my experience. I had an injury last may 2011,Felt a pop in my back and my leg went numb. I also was no longer able to urinate on my own. I had to learn to self-cath with a back injury that was fun :(. Aug 31 had discectomy/lami L5 S1. Leg pain was better right away but back pain never seemed to get better than a 5/10.

    I went back to work in oct. 2011. I am a floor nurse on a busy oncology floor, while rushing/running a patient to the ICU and turning a corner I was trying to get the bed to turn as well and ended up with several tears in my left hip. In the process of finally getting that problem taken care of the orthopedic surgeon said he will not do surgery because all my pain is from my low back and not my hip..needless to say he left the practice and I went on a hunt for another doc. At least I had already went through an arthrogram, one injection (felt great for 4 hours) and failed sessions of pt.

    I received an email from this website and it was talking about SI joint pain and how underdiagnosed it is and found someone talking about their SI joint pain and problems they were having. Which is exactly what all of you are also feeling. Laying down on my back I feel like my sacrum is going to snap in half, laying of the left side would just cause pain due to the hip, so the right side was all I could do unless I had many pillows to find comfort and pushing hubby off the bed..ooops!

    I had a follow up appointment with my neurosurgeon and told him I needed an injection to see if my SI joint was also involved. He said sure no problem but I needed to get PM to do it. I talked with my PM it took several attempts to even get him to do the injection because he thought I had piriformis syndrome from having back surgery. Because this is a work injury it takes forever to get a procedure scheduled but finally it happened. Had my first one in June with sedation. I had a mixture of steroid and lidocaine. I felt no pain until the lido wore off then, unexpected intense pain that I was not told about. After about a week I felt about %75 better and now I could look for a new Orthopedic surgeon. I found a great one and will be having hip surgery Dec.4

    I also just had my second SI injection two day ago and this time recovery is taking a little longer than I had hoped. I had to use my cane most of Wed. and was unable to sleep except for 15 min. Later on thurs. I managed to get in a few more hours but only 1 hour last night. When the injection no longer work then he will do RFA. I will be getting an injection into my right side as it has taken a beating. After hip surgery is done and I am good as new :) I have one more back surgery to fuse L4,L5 and S1 and possible T12 and L1. I have done some reading about fusing the SI joint but what I have found so far is recovery is hard. I hope that never comes. I did see several studies being done concerning the SI joint on this website.
    Sorry for just babbling and I hope it helps. This was my very first post here and I got a little carried away. Good luck everyone and I hope we can be pain free one day!

    Carol
    Discectomy/Lami L-5-S-1, DDD, tear and disc herniation at T-12- L-4

    Carol
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  • Welcome to spine health, though sorry that your pain brought you here. Thank you for sharing your story. Glad to hear that you have found a new orthopedic surgeon and that you are having your hip surgery soon. Will your neurosurgeon be doing your fusion?

    I too was in nursing before my injury(long term care) but unfortunately have not been able to return since my surgeries and am now on disability (oh how I miss it, but what a toll it took on my body.) Have you been able to work in a modified capacity? I was able to do that for a time, until it got to the point that even sedentary work was impossible.

    I can totally relate to the feeling of lying on your back and feeling like your sacrum is going to snap. I also developed increased pain in first one hip, and now both. My surgeon feels that it is related to my back, but I am still hoping to have an SI injection to see if this helps. I hope that your injection starts to bring you relief soon, and that the pain of the last few days subsides.
    Please keep in touch and let us know how you are feeling as the days go on with your injection. Will be keeping you in my thoughts as Dec 4th approaches and hope that it brings you alot of relief.
    >:D< >:-D< : Karen
    L3-S1 herniation and bulges, stenosis, mod facet,ddd,impinged nerves,coccydinia
    discectomy/lami July 2011-unsuccessful
    adr L5-S1 Feb 2012
  • Thank you for responding to my post. It really makes you feel better about yourself when you can share and someone can actually understand what you are going through. I am feeling much better today, so much so that my husband took me out to dinner. It was really needed because I am at home all the time and sometimes you just need to get out. After my hip injury last year, I was ultimately let go from work. I was devastated but what can you do. I have applied to many other places but seemed to be shut out from anything in my area. And of course workman's comp will not pay if I can work so I have been unemployed technically since July. I will be talking to my ortho surgeon next week and asking him If I should even be trying working with this injury.

    I will be seeing my neurosurgeon soon and to decide what we will be doing and when. I would like a break between surgeries as I am sure anyone would. I am nervous to have another back surgery. I had some problems after the first one and I had hoped I would never need another one, but when he says "you will need a fusion in a year" I was like "what?" why didn't you do it then? because of WC. So I get to be in pain my whole life due to working my ass off. I guess that is what you get when you work in healthcare.

    I really hope you get an injection Karen. At least you will know either way. Just because they looked ok on MRI doesn't mean that they are not the cause of one of the issues. If you have too keep on them until they do it. Who are you asking to do the injection? You can get it done from: neurosurgery, pain management and sometimes orthopods.
    I also really miss nursing so very much. I am hoping that when this is over I will go into hospice care or private nursing. We shall see if my body decides to hold up. I am not sure I would even qualify for disability. I really do not have a clue about that area of expertise.
    I really hope that an injection is coming your way. Also thank you for keeping me in your thoughts about my up coming hip surgery.
    Discectomy/Lami L-5-S-1, DDD, tear and disc herniation at T-12- L-4

    Carol
  • cjeuckccjeuck Posts: 4
    edited 11/09/2012 - 12:43 AM
    I had hip surgery that was scheduled for Dec.4 but, I received a call Wednesday morning and was asked if they could change the date for Thursday. I said that would be fine. So a very busy Wed. to get everything done. Surgery went very well and I was able to come home the same day which never happens because my BP doesn't want to go along with the program. After a wonderful talk with the anesthesia we figured out the problem. During the entire surgery you are given pain meds and morphine is no good for me which is what I was given with back surgery. With a nice cocktail of fentanyl and 3 anti-nausea meds and of course being under, I was able to sail through. Had a tendon repaired along with a labral tear also cleaned the joint out They also found that I have a rare type of dysplasia, so shaving some bone was needed. He said he has done hundreds hips and only see this about 4 times. Pain is under control so I am doing good so far. Today I will be getting a cpm device that runs cold water through to keep the swelling down and does passive rom along with a squeeze to the calf to prevent DVT.

    I will post how the healing and rehab goes. Thank you for reading my babbling

    Carol
    L-5/S-1 discectomy/Lami, DDD, SI joint dysfunction.
    Discectomy/Lami L-5-S-1, DDD, tear and disc herniation at T-12- L-4

    Carol
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  • ouch2ouch2 Posts: 1,270
    edited 11/09/2012 - 1:36 AM
    Glad to hear that you are on the other side of your hip surgery and at home already. Kinda nice that they bumped you up, less time to worry although a scramble getting ready I am sure.

    Rest well, stay ahead of pain with your meds. Did your doctor tell you how long recovery will be for your hip?
    Look forward to hearing how you are doing as you heal. One more surgery after that for your back , and hope you are as good as new.
    >:D< >:-D< : Karen
    L3-S1 herniation and bulges, stenosis, mod facet,ddd,impinged nerves,coccydinia
    discectomy/lami July 2011-unsuccessful
    adr L5-S1 Feb 2012
  • rockfish55rrockfish55 Posts: 3
    edited 11/09/2012 - 6:45 PM
    Recently learned I may have the S-spine problems u describe, as tho I need more types of spine problems. Already diagnosed with DDD, resulting in bone spurs, herniated discs, missing discs, and arthritic changes, plus spinal stenosis & foriminal stenosis at many levels. Problems go from C2 down. Already had fusion of C4-5-6 and L3-4-5 and need another at C6-C7-T1 plus L2-L3 where the vertebrae have slipped way outta joint (severe spondilothesis). The S-spine problems apparently explain my hip/pelvic pain, or why it's so severe. As u might imagine, I have a LOT of pain and other problems. At some point, I've experienced nearly every symptom associated with spine problems except full-blown quadraplegia or paraplegia. Even have had symptoms rarely mentioned on websites. But know very little about S-spine/joint problems cuz prior to this year, I knew only that I have a missing disc at L5-S1, but I found out I have far more extensive problems than that.
  • I have had SI Joint problems for many years - at least 5 or more. It has been so puzzling, with no one to answer why I have been feeling so uncomfortable. My symptoms: 1. A tight area on the right side of my back. 2. Tingling and numbness that radiates across the top of my back, and down both legs. I am not diabetic. The tingling and numbness is caused by the SI Joint nerve entrapment. 3. Difficulty standing up from a sitting position. 3. Difficulty standing in one place, unless I have something to hold on to such as the counter, or back of a chair. 3. Off-balance walking, and I have a lift in one shoe. My right leg is longer than the left leg - SI Joint related? 4. Steps are not user-friendly, unless I have a rail to hold on to. 5. I walk with a walking stick in my yard for balance. 6. Difficulty sleeping on my back - right side or left side is the best way to sleep. Usually take a small sedative to get a good nights sleep. 7. Extreme difficulty sitting anywhere - couch or a chair.
    SI Joint problems are not fun. I have had both hips replaced 10 years ago - hip dysplasia. I think the SI Joint problem was beginning before my hip replacement, and never diagnosed. My first SI Joint injection was last week, and I felt remarkable changes right away. I am on the right track now!
  • S Martin....I have all those things too .....you described my symptoms exactly there.....although I have has yet only been diagnosed with a fused sacrum at L 5 with the prominent transverse process whatever that means.......don't take this the wrong way but I am glad I have found someone with the exact same symptoms as me..
    Back pain arghhh
  • Sharon GavinSSharon Gavin Posts: 2
    edited 12/29/2015 - 9:41 PM
    Hi, everyone. Am new to the forum and am a veteran of seven spinal surgeries, numerous pain procedures and a rt. labral tear repair/busectomy in 2014 that did nothing to help my rt posterior hip. pain. Rothman institute led me to believe they'd fix the glut tears, but said they were too extensive for them to repair. Still looking for a doctor who can fix them. Apparently I have bad si joints and gluteal /psoas tears. The gluteus medius tear seems to have first occurred during my L5-S1fusion in 2000, when I woke up with crushing pain aross my rt. hip, lke a board had been nailed into it, numbness from the knee down and inabllity to use my leg, for days or move it normally again, and tearing/spams with any internal rotation of my rt. knee. I didn't have these problems going into surgery This rt. posterior hip/glut problem has gotten progressively worse until I think the additional tearing may have freed up my ROM but caused new problems. My ability to walk is now extremely compromised. Walking and wt. bearing is excruciating throughout my body, but especially in the area of the rt. buttock and upper leg. Also my entire rt. foot and bottom of foot also has pain, spasms, and neuraligia. at times but ironically longstanding daily bi-lateral calf pain and spasms have lessened. r.. .. Was told by my local latest ortho that I need a bi-laterial but especially rt. I-fuse done on my deteriorated SI joints. Pain Mgmt confirmed they are bad; had RA twice that didn't help, but no other surgeons perform this in my area, so few understand the procedure. I also have been dealing with now very pronounced gluteal medium and minimus tears plus a recent less extreme psoas tear. Feel like my entire low central back (S-1 to S-4) is so sore to the touch and is being strained beyond capacity just to sit or stand, as well as the rt. hip/buttock is in a tight spasm constantly as I try to walk. Can't sit for long or ,my legs and body lock up and then I can't move my legs for a while,. I also Can't stand still or walk long or the low spine pain abd glut/posterior thigh pain is too much. Must walk with a shopping cart since I can't seem to hold my body erect with the pain and dysfunction. My local ortho who performs I-fuse said he'd see if someone could examine me for that scoliosis like problem after the I-fuse surgeries are finished, but scoliosis films I think were negative. Think it's may be glut tears and low-back weakness from too much pain causing it, as well as increased weight from not moving fast or as much for years. Many rounds of PT and ablation didn't help my joints, and I feel I have a structural/spinal load issue: feels like my very low back and gluts need to be lifted and supported. Am waiting for out of state surgeons who repair glut tears to get back to me after reading my hip and pelvic MRIs, but it's been a slow process getting a response. Sent records to a few but a [edit]. Surgery is supposed to be great at fixing large, complicated glut tears with a new procedure.
    Meanwhile, has anyone had the I-fuse surgery while experiencing severe spasm and glut pain, and did it help the glut pain? I'm not getting enough specific answers about this surgery from my doc, and it's a newer surgery not many docs perform so I'm afraid to sign up until I get info about my muscle/tendon tears and how to proceed.. I don't want to get the I-fuse surgery until I'm sure it won't add additional strain on my already terrible gluteal region and rt. leg,, since I'm barely walking now. .Pain has gone from bad to pretty much unbearable over these 15 years and am allergic to opiates, so not easy to deal with constantly on muscle relaxers, IBU and Tylenol alone. Hoping also to get a doctor familiar with or who does I-Fuse to respond. Thanks so much for any input and insight.
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