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saw Neurologist and now have another diagnosis

Well after having a three level cervical surgery and after coming out of a car accident 6months after surgery and having physio for over a year to get myself some what mobile again. I've now seen another neurologist after waiting six months. My leg was twisting since the beginning of the summer, trouble walking, pain in my low back, hip, knee ,ankle foot. Crazy spasms all over my body especially going up and down my spine that would end with my back arching backwards and me having trouble breathing. I had breathing problems because my muscles around my lungs and diaphragm would go into spasms and wouldn't let my lungs expand. During my examination at the neuros. i went into a spasm so he witnessed it first hand. Yay! So diagnosis, Secondary Dystonia caused by damage to my spinal cord when my discs in my cervical spine herniated. I"ve had two Neurologist agree that when my discs herniated it was similar to someone who had a stroke. The trauma of that happening caused the dystonia.
After thinking that surgery was going to help me out of my problems i now know that unfortunately i will have continual problems for the rest of my life.


  • Hi
    I just came across your post and have a question for you from a new problem I have had twice with no answers. It sounds similar to yours. Did you feel like you had pressure on your chest? My best example was it feels like a elephant on my chest which I called doctors office both times and they said I was probally having a heart attack but everything else was OK so I felt it wasnt. A few weeks before that started I did have a TIA or a stroke depending on which hospitals report I want to believe as I had two. With that issue I did have problems I know were stroke or TIA and had every test done and everything was clear after $33,000 so when just the chest pressure came on I was in no hurry to back to a ER and it does go away in a few hours. How long did you have trouble and was it breathing only meaning no arm pain no mobility problems or speach problems?

    Did you have any treatments or meds to stop this. I increased my muscle relaxer and have not had any more issues.
    I am just looking for a reason for it.

  • I still have breathing problems with increased muscle relaxers. I'm on six a day right now, my breathing problem isn't as bad but i still can't exert myself without gasping for breath. Its hard to say if i have arm pain along with it because i have nerve damage from the problems i've had caused by the disc compression in my neck.My arms nerve quite a lot.

    The breathing problem feels like my chest and ribs are being squeezed,like no matter what i do i can't get enough air in.During my exam with the specialist he did check out my heart and listened to my arteries in my neck. Some times though i still feel that doom when i'm having trouble breathing like they talk about when something is really wrong.
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  • RickilalasRRickilalas Posts: 558
    edited 02/26/2013 - 5:00 PM
    Thanks for the input.. mine calmed down and has not returned. I hope yours gets better.I was getting worried because a resident doctor told me my next cervical problem would cause breathing issues and that's all I could think about at the time. I had a friend that was a severe asmatic(sp) and from her experience when she could talk and tell me there was a problem she was still OK but when she could not talk we were in need of a ER right now. Its a terrible feeling when its hard to breath. It is interesting that I was treated for TIA or stroke about a week before and maybe that was even cervical. Who knows this sure isn't fun.
    Take Care

  • I'm due to go for a laminectomy T7-T10 next week. A large neurofibroma or schwannoma was discovered during an MRI. The second neurosurgeon I saw said it should come out. I'm a 67 yo male. Can anyone give me an idea of what I can expect. He told me long operation, long recovery. I'd like to hear from someone who has been there. Thanks
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