Hi Everyone, I have been gone quite awhile (again). When I was around in Dec I was posting & asking about odd pains and such that I had not heard about from you other members here and no one else seemed to be able to make sense of them either.
Well the good news is I am not crazy (no papers to prove it any ways lol) the bad news is - all the new and weird stuff I have been suffering with is MS!!!!!!
I was like "are you freaking kidding me"? On top of all my spine, joint and other health issues we need to add another BIG one like MS?
Other then the pain and other issues that MS has brought, let me tell you try figuring out what is spine pain, nerve pain or MS pain. *jawdrop*
And yes where the pain or issue(s) is coming from does make a difference.
So now I am trying to find a Nuro Dr that is willing to work with me - as to have a spine injury and MS is quite a challenge for them as well. Most of them are telling me right on the phone "nope - we don't want you as a patient - go away".
I just found out a few weeks ago so still in the very beginning of everything. I have decided not to do the traditional medical treatment plan for MS at this point. I am doing "holistic" right now.
I have created what I call my "team" - a hypnotist, massage therapist, chrio (who I've had for yrs any ways) and a vit/herb expert.
How am I doing you ask? Honestly - I am really struggling to handle this like a trooper
Late at night it often comes crashing in on me. I don't have any where to turn to for support as 99.9% of the people on MS forums are doing the medical type treatments and that is 95% of what they talk about.....sigh
For those who missed my last return update in Dec 2012 - my husband age 49 now has Dementia! Yeah life is a challenge right now to say the least!
SERIOUSLY ! sigh....... :timeout:
L1 - S2 "gone" useless in 1 way or another. DDD. RA. Bone Spurs. Tons of nerve damage/issues. Stenosis. Both knees replaced. 50 yrs old. I had a great fall (hence my user name) at age 41 and it has been a domino effect every since.