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Crippling lower back pain when getting up from seated or bending - 2 years after L5/S1 microdiscect

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2

Comments

  • I read your first post 1/2 hour ago and was laughing until I cried!!! Laughing because I would never have thought anyone was going thru the same pain I've been going thru the past 48 hours, And crying because as I was laughing I was being hit in the back with a "cattle prod" to the point of passing out!!! Your story was as if I was writing it!! Im going to the Dr Monday am, I will be waiting at his door when he gets in to get an epidural!!!!! Then setting an apt for an MRI!!!
    History; I had L5S1 fusion in 1996, I am now 47 years young. This hurts worst than anything Ive ever experienced in my life!!! IAnd Ive lived a pretty painful life.If I have to get another fusion or whatever to get rid of this pain, I will. no one should have to live this way, I told my wife if I were a dog or a horse in this pain I would be shot. Since my fusion I have done anything Ive wanted, weight lifting, P90X, snow boarding, golfing, running, whatever, I picked up my mom and put her in my truck 3 days ago, no big deal I lift way more than she weights, but 2 days ago I woke up tried to get out of bed and felt like I was going to die! cattle prod lighting in my lower back brought me to my knees, Now the only thing I can do without pain is stand upright or gingerly walk about, sneezing or coughing is out of the question! I will take another spinal fusion any day of the week and twice on Sunday if it will get rid of this pain. Im not a fan of pain management or drugs, If its broke , fix it,
  • bwingbbwing Posts: 3
    edited 01/22/2015 - 4:07 AM
    I read your first post 1/2 hour ago and was laughing until I cried!!! Laughing because I would never have thought anyone was going thru the same pain I've been going thru the past 48 hours, And crying because as I was laughing I was being hit in the back with a "cattle prod" to the point of passing out!!! Your story of pain was as if I was writing it !! Im going to the Dr Monday am, I will be waiting at his door when he gets in to get an epidural or something to hold me over Muscle relaxers and Oxy aren't touching this pain! Thank god I have some though, just wish they worked for this pain.. Then setting an apt for an MRI!!!
    History; I had L5S1 fusion in 1996, I am now 47 years young. This hurts worst than anything Ive ever experienced in my life!!! IAnd Ive lived a pretty painful life.If I have to get another fusion or whatever to get rid of this pain, I will. no one should have to live this way, I told my wife if I were a dog or a horse in this pain I would be shot. Since my fusion I have done anything Ive wanted, weight lifting, P90X, snow boarding, golfing, running, whatever, I picked up my mom and put her in my truck 3 days ago, no big deal I lift way more than she weights, but 2 days ago I woke up tried to get out of bed and felt like I was going to die! cattle prod lighting in my lower back brought me to my knees, If I move my head 1 inch the wrong way ,,, Just shoot me!!! !!!!!!I just moved the wrong way!!!!!!! Now the only thing I can do without pain is stand upright or gingerly walk about, sneezing or coughing is out of the question! I will take another spinal fusion any day of the week and twice on Sunday if it will get rid of this pain. Im not a fan of pain management or drugs, That's just bandaids to whats wrong!!! If its broke , fix it, I went 18 years after my fusion pretty much living as I wanted, I will do it again and suggest you find a great neurosurgeon that appreciates quality of life vrs being a candy ass afraid to do surgery in a field he is specialized in, #1 advice, when speaking to a neurosurgeon, If he/she is at all god like, rude, condescending , get out of his office. Find a surgeon that is also a professor in your area,
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  • I had my fusion 2 years ago in same location (L5/S1), and after a workout Saturday, I can't stand up straight and get that lightning shot in lower back when standing from sitting. No one knows yet what it is. I am going to request mri or CT.
  • urbanhimuurbanhim Posts: 6
    edited 03/04/2015 - 12:56 AM
    Ok, so its been well over a year since my first post, and i'd like to offer an update. So having had numerous MRI's and neurosurgeon consultations, from a surgical point of view there is nothing that can be done. Nothing is shown on the MRI which would suggest there is nerve impedment. I trust my neurosurgeon, after all he is private... so if he does operate he gets big dollar from me, but he is saying I dont need an operation, so that alone tells me that he is trustworthy. He didnt want to operate on me to begin with, he also one of the best in south England, so I have to trust what he says.

    I was therefore referred to a pain management specialist, again one of the best in the country, who put me on a course of tablets (for life I might add) called Lyrica

    http://www.lyrica.com/

    This table for me has been a wonder drug, it has totally given my life back. I take one in the morning and one before going to bed, and i'm now able to play with small children, ride bikes, go jogging, get to and from work etc.

    I'm by no means cured, if I stand for too long or sit in the wrong position for too long (20-30 mins) or get up from sitting in the wrong type of chair then i'm in agony, and my back is ruined but the pain is nowhere near as bad as it what, and now its about knowing what I can cannot do. My life has suffered some what, no more doing things I loved like going to music festivals or gigs etc, but at least for say 6/7 days a week I am pain free.

    Surgery is not always the answer, such as in my case, there is nothing to do surgically. A fusion would make no difference as the nothing is touching the nerve in terms of disc. I do however have athritis in my spine which could be the cause of it.

    I'm not thinking i'm cured though, and I fully expect the tablets to do such a good job over time as my body may get used to them or the pain may become to severe for them, when that time comes I will be back to see a specialist. But for the time being, I'd highly recommend anyone who has severe nerve pain (think cattle prod in lower back and lightening shooting through body) to at least request to try Lyrica for a month or two and see how you get on!

    It wont cure you, but it might, just very might give you some pain free moments.


    Thanks, i'll continue to update this thread and follow it for further comments.

  • urbanhimuurbanhim Posts: 6
    edited 03/04/2015 - 12:51 AM
    After various consultations with a neurosurgeon and pain management specialist, I was put on a drug called Lyrica;

    http://www.lyrica.com/

    This has pretty much given me my life back, I take one at night and one in the morning and I'm now able to play with children, ride bikes, go jogging and generally get to and from work with very little trouble. I still cannot sit for too long, nor stand and I cant do think that I love, like music festivals or going to gigs, but generally I'm so much after being on this drug. If you've not tried it I urge you all to give it a go, it may just give you some of your life back so its definitely worth talking to your GP or consultant about.

    Don’t get me wrong, this has not cured me, but I don’t need surgery as MRI's and scans have proved that nothing is aggravating my nerve, its just nerve damage that’s causing it. I trust my neurosurgeon given that he's private and therefore if he does operate he would get thousands of pounds out of me, but he refuses to operate on anyone unless its absolutely necessary.


    I will continue to post on this thread and update as and when my situation changes. I hope all of you pain suffers find a suitable solution. I myself will continue with Lyrica until they find a more permanent solution for me.
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  • gapwheatggapwheat Posts: 1
    edited 09/22/2015 - 10:31 AM
    Same symptoms. Over the last 20 years I have experienced approx. 6 episodes like this, usually from a very minor twisting movement. Once as minor as opening a sliding door that I opened hundreds of times. I am currently having the same pain in the same lower right back area. In the past these episodes lasted 5-7 days and went away for several years. I have had no other back issues. Although it has only been 4 days this time there are some differences this time that make me wonder if I have a different problem this time.

    First, 3 days before it started, I had a hard fall off a curb straight onto my nose and lip area on a concrete walkway. Very hard jarring fall; cut lip, scraped and swollen nose, bruised eyes/cheek. No rib or back pain at all. Three days later I stood up from my desk at work and had a very sharp pain in my lower back. Sat down and gently got up . Back was sore but no stabbing pain. A few minutes later I reached down to pick up a paper and like urbanhim, BANG!! like lightening in my lower back. Noticed that as soon as I sat down pain went away quickly. Getting up was the problem.

    Second, while the pain is much the same, When I am laying down or laying back in a recliner, there is no pain. Even turning over in bed causes only slight discomfort for a couple of seconds. I have noticed that when my right leg is straight and I can push myself up from a chair without bending the leg, there is minor if any pain (usually no pain). Getting in bed, as long as I can keep the right leg straight and lift it onto the bed, no pain. No pain while laying on back or either side.

    In he past, when I needed to get up from a recliner, I would need help pushing down on the footrest because The pain was too intense. Now I have no problem getting the recliner into an upright position.

    This makes me think that in the past the problem was a muscle issue whereas the current issue could be more of a nerve issue caused by my fall 3 days earlier, or maybe simply a different muscle triggering the spasm and pain.

    I have been using heat and minor massage, but wondered if I might need to try something different. In the past I used Ibuprofen, but after a kidney transplant 4 years ago I am only able to use Acetaminophen.

    Any thoughts would be appreciated.

    I feel so fortunate after reading the posting of those who have had these issues for several years and hope that they have found treatments or therapies that have helped them.

  • SavageSavage United StatesPosts: 7,385
    Welcome to Spine-Health
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    Sue
    Honorary Spine-Health Moderator
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    Please read my medical history at: Medical History

  • I'm smiling as I read all of this because I've felt SO ALONE over the past 2 years. Any kind of physical activity puts me into these electric shock/fall attacks. Nothing stops my pain until I'm lying flat on my back...then after a minute or so I can get up off the floor and make it to somewhere better to lie. Usually though, I get another lovely SHOCK when trying to lie back down. I've been through 6 doctors and none can tell me why this is happening. One even said I'd never know....and just to get out there and keep falling down more. OMG!

    Microdiskectomy -1/1010
    Knees buckling - 10/2013
    Electric shock across lumbar and falls to ground - 3/2014
  • SavageSavage United StatesPosts: 7,385
    Welcome to Spine-Health
    Please click on link for helpful information!
    Sue
    Honorary Spine-Health Moderator
    -------------------------------------------------------------------------------------------------------------------------
    Please read my medical history at: Medical History

  • Jillybean079Jillybean079 Posts: 305
    edited 12/09/2015 - 7:12 AM
    I just wanted to say hello, and just share my story as I hope it helps. I had a L4-L5 fusion done last Feb. My neurosurgeon only gave me a 50% chance at it even helping, and it didn't. Now I have hardware in my back, along with my very long list of problems. I just want you to make sure that if you decide the surgery route, you fully understand it could add to your pain. We are all in the same boat, and I hope you find some relief....

    Spinal Health Moderator 

    Retrolisthesis C4 of C5 and C5 of C6
    Spondylolthesis C5/C6
    Disc protrusions with Annular Tears C3/C4, C4/C5, and C5/C6
    Disc Material Compressing Spinal Cord C3/C4
    Severe Forminal Stenosis C5/C6
    DDD
    Ankylosing Spondylitis 
    Annular Tears L3/L4 and L5/S1
    Enlarged Facet Joints/Facet Anthrosis L3/L4/L5
    PLIF with Rods, Cage, and Pedicle Screws-L4/L5
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