I am new to this type of pain. I have been managing pretty okay, but still learning more about the patterns and other co-curring symptoms that go with it.
I am feeling frustrated and feel embarrassed. I can handle the pain okay, but the anxiety from the burning feelings is intense.
I have been employing as much mind-over-matter as possible. It takes a lot out of me emotionally to get through severe flare ups, not cry, and try to stay limp and not tense up!
I have learned what it takes to get through it and recover from it, but feel exhausted and can't think straight and embarrassed to let anyone see what I feel like. I don't like going to the doctor and that stresses me out a lot, too.
I do EFT tapping to keep my mind as distracted as possible from the burning, but am developing all these "comfort" behaviors that are embarrassing as well. I am trying to toughen up emotionally, but don't have much emotional support and am new all of this. I try not to worry past the moment, and feel good knowing that I have taken charge the best I can.
The type of pain I have waxes and wanes, but when it gets bad I feel aftershock and feel like a wimp for wanting to cry and the intensity and variety of the symptoms vary hour to hour and day by day.
I eat a lot of raw foods and take vitamins, get magnesium and potassium, vitamin b, chondriton and glucosomine. I adjust my supplements depending on how much I get from food. Warm baths help somewhat, but accupressure and light massage are the main things that help. My support system is what is lacking the most, and finding someone to talk to that experiences this grade and type of pain. Anyone with out there with similar issues, how do you cope emotionally and what has helped you?