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At a loss as to what to do...

blueeyedwolf1977bblueeyedwolf1977 Posts: 55
edited 05/27/2013 - 10:38 AM in Chronic Pain
I have a lot of problems, the few of which cause the most problems are as follows- from the "top" lol-

A pinched nerve in my neck, happened in August of last year. I woke up with severe pain, felt like someone was jamming a fiery rod down my neck and up and down my left arm! The pain radiated up and down, into my fingers...went to ER, where they basically laughed at me and sent me home, said I "must have slept wrong"....I came home crying, hubby called head nurse who told me to come back in if I was still in pain...went back in with a friend (who is a VERY well known presence in the community)...I was given an IV of something to 'ease' the pain...didn't touch it :( Sent home with a prescription of vicodin...some-what helped, to where I could actually 'some-what' function....nothing other than this was done....I have issues with that arm to this day-my pinky, ring and sometimes middle finger are HYPER sensitive, but also pins and needles type numb also...if that makes any sense?! Have very degraded grasp and weakness...

When I was 18, pregnant with my oldest daughter, I went night hiking and fell, dislocating my right shoulder. It has since dislocated hundreds of times...I have severe scar tissue built up, but my insurance won't agree to the surgery, because it is not "life-threatening"...I can't wash my hair correctly, without feeling like it's going to 'slip out'...this is the "least" of my pain issues at this point!!

I have several bulging and herniated discs, and at least one or two tears...according to my MRI's. When I first got the MRI's, I was told there was nothing wrong but "some arthritis", until I went to see a pain clinic, where I was told those diagnosis...I have been suffering with these pains for YEARS...only recently getting somewhere with doctors!! I was told to start PT, but tried explaining to the doc that there was NO way that was happening while I'm in this much pain..I was referred to the pain clinic in my area, where I was put through a series of tests, and was told that the epidural shot was worth a try..??

I received the epidural steroid shot in my L4,5-S1 (?) on Tueday, the 21st of May...they gave me 2x the dosage of whatever sedation IV they use....and NOTHING...not even a little bit!! (Gave me one dose, then about 5 minutes later another since I felt nothing from the first). He gave me the shot and it felt like someone stabbed me in the back, it was horrific! I was crying like a baby by the time he was done, he apologized profusely, and gave me some pain pills to leave with...only 3 days worth..and when I called his office yesterday,(5 days past procedure) his nurse called me back and basically said "sorry, you're lucky you got what you got, go to the ER if it's that bad"...

I am in pain, and no one will do anything it seems...none of the doctors around here will give anything for the pain! I have been told by one that the ONLY thing she will say is PT, exercise and a healthy diet, that she wouldn't even refer me to surgery...another told me she's not risking her butt and her practice to give me any narcotics...(at a loss for words when I heard her actually say THAT to me)...the pain clinic can't prescribe anything because they go to several different hospitals and areas around here and aren't around MY area enough to monitor me...where can I turn!?!?!

They've seen my results, it's not like they can't see any reason....but because of people with (let's just say)issues around here, people that are actually in PAIN, can't get any help it seems....? I really think I'm going to find a doc that will recommend surgery and go forward with that...since the shot, I've gotten severe foot and leg cramps, that weren't there before; more pain; and facial flushing/hot flashes that are driving my hubby and I insane!! Thanks to any advice you can give!! :(
-Susan
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1

Comments

  • terror8396tterror8396 Posts: 1,832
    edited 05/27/2013 - 10:29 AM
    it sounds like you have been blacklisted. if doctors, er, no one would help you, maybe there is a reason. i don't know of a doctor who would tell a patient to go to the er. most i know would try to get you in asap if there was a problem. they just don't throw you to the wolves. with the injection, i have had numerous without sedation mind you and they are not that bad. maybe it is the way you relate or talk to the doctors that is the issue. i try this and it does not work, i try that and it does not work, i use this and it does not work is a problem. either the doctors don't believe you or they don't want to hear the it does not work after they have tried everything to help you. like i said, doctors won't throw one to the wolves. it goes against the oath they took in medical school. they will try to help or refer you to another specialist to help. why would the er send you home laughing at you? what insurance do you have? most would authorize surgery if they felt it was worthwhile. some hmo might refuse, but i think if it was important they would authorize it.one does not get immediate relief form epidural shots, it takes about 2-3 days to tell if it works.your mri was negative also. i think there are other issues that have not been forthright in your discussion. with all of these negatives. it sounds like the doctors, clinics, hospital think you have other issues. if the er thinks you are faking, they will still do something to help because if they are wrong, then there are legal issues but imho, i think that all of the above feel that you are not being honest, hence the lack of treatment. i think you need to reassess what is going on with you and not blame everyone else.
    jon
    I have 4 fusions from L5-3, the latest last May '12 where they fixed my disc that broke.They went through my side this time. I take 40 mg of oxycontin 4x a day and 4 fenatyl lollipops 300 micro gms 4x a day.
  • charlie6017charlie6017 Posts: 412
    edited 05/27/2013 - 10:05 AM

    **Post Edited**- Please follow the forum rules and don't attack other members. If you disagree with a comment made, either ignore the comment or if you can not, then please read another thread.
    Thank you,
    Sandi

    Blue Eyed, have you seen a Neurosurgeon? I would suggest seeing a neurosurgeon and bring your most recent films with you, MRIs, etc. Be honest.....tell him/her everything, even write it down. Start there and hopefully you can get some answers and relief.

    Good luck,
    Charlie
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  • My MRI wasn't negative...they see what is wrong- bulging, herniated discs with tears...once they actually LOOKED at my MRI, they saw what was wrong...the one DR doesn't believe in anything other than PT, diet and exercise...that's HER belief, in dealing with everything she said...and the doc that did my shot works down-state, he's only in the area once a month, to administer these shots...which is whose office I called. The ER that laughed at me, is not known for their..errr....let's say patient "friendliness"? Which is why the woman that went with me...went with me....once SHE was there, their attitudes changed!! I am on medi-caid...enough said?! The pain clinic actually advocated surgery for my back, a lumbar discotomy (sp?). I just need to wait about a month to see what happens with this shot he said! Making judgements upon how you took what I said as opposed to reading what I wrote will not help me...I am not "black-listed", I know what that means...I am not a drug addict or abuser or whatever else it seems that you are implying...where I live is a VERY small town, with not very knowledgeable practitioners....they all want to refer me to someone more knowledgeable...which, all of them are about an 8 hr drive!! I appreciate you taking time to respond, but really don't appreciate the fallacies of presumption...thank you.
    -Susan
  • I definitely will start there, thank you! I appreciate a starting point, other than a prejudiced remark! I was told that the MRI films belong to my docs office and/or the hospital that took them?! Can I request them?
    -Susan
  • Yes, you can request them. I am thinking they may be on a disc, like a CD-type of format.

    I would start there and see where it goes. And you're welcome---I'm hoping this may get you headed in the right direction.

    Charlie
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  • once again the judgemental jerks with their remarks when you were warned not to do this, you were told numerous times if you don't like the post to move on. i know some of you have been warned. once again read the rules and it says specifically in the rules that if one does not like it, then go on. i guess some of you think you don't have to obey the rules because you obviously know better than the moderators. talk about judgemental. you guys are hypocrits. your ganging up on me will not work, it has not and in the future it will not. maybe some of you should find another site if you can't obey the rules
    jon
    I have 4 fusions from L5-3, the latest last May '12 where they fixed my disc that broke.They went through my side this time. I take 40 mg of oxycontin 4x a day and 4 fenatyl lollipops 300 micro gms 4x a day.
  • terror8396tterror8396 Posts: 1,832
    edited 05/27/2013 - 9:20 AM
    At times our 'seasoned' veterans will show a great deal of compassion regarding a given situation, and at other times, that same veteran can give a 'tough-love' approach so as to not pamper someone.
    by the way, this is a direct quote from the rules. so once again if you don't like it, then move on and keep your insults to yourself.
    jon
    I have 4 fusions from L5-3, the latest last May '12 where they fixed my disc that broke.They went through my side this time. I take 40 mg of oxycontin 4x a day and 4 fenatyl lollipops 300 micro gms 4x a day.
  • terror8396tterror8396 Posts: 1,832
    edited 05/27/2013 - 10:01 AM
    unbelievable
    it is not breaking the rules. it states that tough love can be used on a site. you need to learn how to read the rules and what they say. one can have different opinions and one can also use tough love approach if they feel it is necessary. i don't know how much clearer i can make the rules than that. now instead of looking for excuses to insult people, stick to the topic at hand
    jon
    I have 4 fusions from L5-3, the latest last May '12 where they fixed my disc that broke.They went through my side this time. I take 40 mg of oxycontin 4x a day and 4 fenatyl lollipops 300 micro gms 4x a day.
  • blueeyedwolf1977bblueeyedwolf1977 Posts: 55
    edited 05/27/2013 - 10:14 AM
    I don't know how you are saying what you said in your OP an act of tough love?! That sir, is NOT tough love....that is blatantly judgemental and borders on slanderous!! You made me out to look like you felt I was an addict or drug abuser simply by misunderstanding my post! Tough love is an expression used when someone treats another person harshly or sternly with the intent to help them in the long run....that sir....was NOT helpful by ANY means!!
    -Susan
  • charlie6017charlie6017 Posts: 412
    edited 05/27/2013 - 10:22 AM
    Hey Sandi,

    You mind explaining to me WHY Jon's conduct is okay? I'll wait for your reply.

    The original poster is understandably unhappy with the way she was treated. Would you as a moderator like to see new people treated in this manner?

    Charlie
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