Welcome, Friend!

It looks like you're new here. If you want to get involved, click one of these buttons!

advertisement

Quick Start Forum Video Tutorial

    Forum-Tutorial-Screenshot
Protect anonymity
We strongly suggest that members do not include their email addresses. Once that is published , your email address is available to anyone on the internet , including hackers.

Notice
All discussions and comments that contain an external URL will be automatically moved to the spam queue. No external URL pointing to a medical web site is permitted. Forum rules also indicate that you need prior moderator approval. If you are going to post an external URL, contact one of the moderators to get their approval.
There are no medical professionals on this forum side of the site. Therefore, no one is capable or permitted to provide any type of medical advice.
This includes any analysis, interpretation, or advice based on any diagnostic test

The main site has all the formal medical articles and videos for you to research on.
advertisement

Stimulator! Few questions

Ash5896AAsh5896 Posts: 3
edited 06/03/2013 - 10:49 AM in Lower Back Pain
Hi I'm new to this site as have only started researching the subject today after being advised that a stimulator will be the best way forward.i suffer mainly from excruciating lower back pain and a lot of pain in my legs. I use crutches mainly outdoors or a wheelchair if its totally unbearable.
Currently I'm taking fentanyl patche 75 mcg, oxycontin 20mg, oxynorm 10mg, amitryptiline 80 mg, diazepam 5mg and lamotrogene 200 mg.
I originally had a "massive" disc prolapse in 2006 which was not very successful. Since then I have had many epidural a and nerve root blocks and then a spinal fusion in 2011. During the fusion surgery a dural nerve was damaged which left me with no feeling below the knee and foot including toes on left leg.
I suffer from incontinence too but manage that with tablets as not keen on any surgery for that.
I also suffer from a really sharp tingling sensation and pain in my legs when taking a pee which I absolutely do not look forward to.
I have now been told that a stimulator may help.
I would be really grateful to hear members experiences just to get an insight into this treatment.
I'm not good with computers etc so hence the lack of research.
I hope I've explained as much as I can and hope to hear from someone soon

Regards
Ash
advertisement

Comments

  • I have no where near the problems that you do. I have failed back surgery syndrome after two back surgeries, the last being a fusion. I've dealt with pain for the last ten years or so, like you I wear a 100 mcg fentynal patch and morphine 15mgs for break-though pain. I had the scs implanted two months ago and really appreciate the relief I get. I have some arthritis, scoliosis and nerve damage and the scs truly takes that pain away. When I get my 'worse' pain, the pain that sometimes the meds couldn't even touch, the scs cannot beat that either. I look at the spinal cord stimulator as a tool, it is helpful but doesn't take it all away.

    The beauty of the scs is you get to try it out, if it works, your in luck. If you go through the trial and it doesn't work, nothing lost, you tried it out. Please let me know if I can answer any questions for you.

    Also -There is a whole section for the spinal cord stimulator underneath treatments.
  • RickilalasRRickilalas Posts: 558
    edited 06/03/2013 - 10:35 PM
    Ash
    The only way to see if the scs will work for you is a trial. It will have the answers.
    My scs goes me great coverage in my lower back many don't get that.
    I don't now about bladder issues as they miss most organs but interesting Idea.
    I would caution you on the 80 mg of amitriptiline . I was doing 50 mg for about four years once at night.
    I started having uncontrolled motor control. I looked like Michel J Fox poor guy who is getting us help.
    With the treatments he gets. My arms and legs went crazy with no control. I was given a dx of onset of Parkinson's then they sent me to a nuro motor skills doctor. He took me off the amatrip. And in weeks things did settle sown and many months later I was has normal has I can be.

    Just be careful if you start jumping around if stopped early enough damage does stop and lesson. If you don't stop damage can become permanent
    There are some threads on SCS off the main menu which have almost everything you need

    Good Luck.
  • advertisement
  • sandisandi Posts: 6,269
    edited 06/04/2013 - 5:42 AM

    I am posting a link for you to some of the Frequently Asked Questions about Spinal Cord Stimulation.
    http://www.spine-health.com/forum/treatment/spinal-cord-stimulation/typical-questions-and-answers-spinal-cord-stimulation
    We also have a forum under the Pain treatment section that includes a comprehensive and dynamic group of members who have or are undergoing scs as a treatment for their pain. You might want to check that out as well.
    Sandi
  • sandi said:
    I am posting a link for you to some of the Frequently Asked Questions about Spinal Cord Stimulation.
    http://www.spine-health.com/forum/treatment/spinal-cord-stimulation/typical-questions-and-answers-spinal-cord-stimulation
    We also have a forum under the Pain treatment section that includes a comprehensive and dynamic group of members who have or are undergoing scs as a treatment for their pain. You might want to check that out as well.
    Sandi
    Hi thanks for all the info very helpful.
    I will keep you updated I'm due to have my trial on the 23rd of July I do hope it helps
    Once again thank you all for your comments

    Ash
  • LizLiz Posts: 9,706
    I am sure that you will find your time on Spine-Health very rewarding. This site is a powerful and integrated system that is dynamic and continues to grow.
    Here are just some of the highlights:

    - Detailed medical libraries of Articles and Videos that address almost every Spinal Conditions and Treatment

    - The Wellness section contains articles, tips and videos to help patients after surgery and also to help people avoid surgery.

    - Under the Resource tab, there is a section Doctor Advice Health Center which can be invaluable.

    - As a bonus, Spine-Health provides these patient forums. Here is where you can meet thousands of other people who understand and can relate to your situation. You will soon become part of the Spiney family who provide comfort and the advantages of a Support System. You are now part of this family that is approximately 20,600 International members and growing daily.

    - It is very important to understand the Forum Rules to make sure all of your posts do not violate any of the rules.

    - As a new member, it is helpful to understand the 'makeup' of these forums, how to make posts, tips on adding images and much more. You should read Forum FAQ

    Here are some you should take a look at:
    Read before you post
    Tips for Newcomers
    Understanding the rules

    All of this will help make your threads better and improve the times and quality of responses you will receive.

    If you have any questions or need assistance, you can use the Private Message facility to contact any one of the Moderators on my team:

    dilauro

    tamtam

    Liz

    Sandi

    JellyHall

    Liz, Spine-health Moderator

    Spinal stenosis since 1995
    Lumber decompression surgery S1 L5-L3[1996]
    Cervical stenosis, so far avoided surgery
  • advertisement
advertisement
This discussion has been closed.
Sign In or Register to comment.