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2 Unsuccessful L5/S1 Surgeries. What next??!?!?

2

Comments

  • odouglass said:
    I know that you are bummed and nervous about getting yet another surgery and worried that it will just be one more failed surgery. However, are the doctors saying that this has a better success rate than the other 2 that you had? I lost 3 years of my life- and am still recovering from the pain after surgery, I will never be the same but will be close to normal I guess. I want to have kids, and I am worried about that stage after having the fusion.... a lot of uncertainties. I still have some pain/numbness/tingling down my legs and that will get better over time! :(
    How old are you if you don't mind me asking?

    I am seeing my surgeon who did this past operation on June 24th. I'll find out more details on which type of fusion and what he thinks are the odds it may work compared to the other 2 i already had? The problem is, he was really confused that I didn't AT LEAST have left leg pain relief because he said he found a pinched nerve during surgery and when he touched it, my leg shot up in the air. So he thought for sure, I would of had AT LEAST left leg pain relief. he seems very confused but will not give up on me....

    Did you have all the leg/butt pain before the fusion??
  • trishdownunder said:
    Hi Nick

    This is my experience with a discectomy and then fusion a year later. It's a different experience for each one of us.

    5 years ago, I had a discectomy L4/5 which destabilised that area and the pain was even more excruciating. The surgeon I finally went with said that discectomy was not the right procedure for spondylolisthesis, and he did a fusion (ALIF). The fusion was successful, and whilst I'll never be 100% again, I enjoy life - just have to be careful with certain activities.

    Trish
    Yeah you have a diagnosed issue though, Spondylolisthesis. LOL i'm not even sure what that is but i'm glad you have more relief from the pain then before the surgery. Great!
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  • nickrolando said:
    odouglass said:
    I know that you are bummed and nervous about getting yet another surgery and worried that it will just be one more failed surgery. However, are the doctors saying that this has a better success rate than the other 2 that you had? I lost 3 years of my life- and am still recovering from the pain after surgery, I will never be the same but will be close to normal I guess. I want to have kids, and I am worried about that stage after having the fusion.... a lot of uncertainties. I still have some pain/numbness/tingling down my legs and that will get better over time! :(
    How old are you if you don't mind me asking?

    I am seeing my surgeon who did this past operation on June 24th. I'll find out more details on which type of fusion and what he thinks are the odds it may work compared to the other 2 i already had? The problem is, he was really confused that I didn't AT LEAST have left leg pain relief because he said he found a pinched nerve during surgery and when he touched it, my leg shot up in the air. So he thought for sure, I would of had AT LEAST left leg pain relief. he seems very confused but will not give up on me....

    Did you have all the leg/butt pain before the fusion??
    I am 25, will be 26 on June 23rd.

    May I ask if you are seeing a neurosurgeon? I was seeing an orthopedic surgeon and wasn't too impressed at what they were diagnosing, therefore I saw a nerve specialist and he knew exactly what to do to treat it.

    Yes, I had HORRIBLE, debilitating pain and numbness down my legs before the fusion
    Olivia Douglass
    MIS TLIF L5/S1 on 5/1/13
  • tgs12989ttgs12989 Posts: 2
    edited 10/04/2013 - 8:57 AM
    Ok so I've pretty much read all of your post Nick and trust me there are a lot throughout this site! So I am sort of up to date on you (maybe) But first let me start off by saying I totally understand everything you say. I'm 23 right now and just had my first back surgery ( L5S1 discectomy) basically removed the whole disc and took off a little bit of vertebrae and of course cleaning out the area 24 days ago today! Before my surgery I had been dealing with HORRIFIC RIGHT LEG PAIN that pretty much matched every single word how you described yours. So I want to thank you because probably about 7 months ago when I found you on here and read some of your posts they really helped me deal with my issues knowing that I'm not just crazy and this can be happening to someone else. I didn't have insurance for the past 3 years so I had been putting off an mri for as long as I could (way too long) I had one done when I was 18 and it showed nothing so with insurance I payed $1100 for an mri that showed nothing, but that was before my horrible right leg pain that goes from my upper right but cheek down my thigh and is by far the worse behind my knee cap in that bend. It gets so bad that the back of my knee puffs out like the size of a tennis ball and bruises appear there as well. That is by far the issue, when I tell someone I'm in pain, it's not my thigh or back I'm really referring too, it's the back of my calf up about 6 inches past the bend on your knee and of course only in the back, no pain ever in the front. Don't let me fool you hell yes I have back pain and basically whole right side pain but all of that doesn't even come close to the pain the back of my knee experiences! I had a horrible limp walk for the first 2 years until I finally got my pain management better fitted to me. I was on 120 roxycodone 10mg, 120 soma 350mg, and cymbalta 60mg ( got free samples from doc, too expensive without insurance) Well 2 years is a long time to limp around and be in as much pain as I was in. Some Dr.'s thought I had a bakers cyst because the back of my knee puffed out so much, I had an ultrasound done which was just a waste of money because it didn't show anything. So I tried to avoid getting another MRI at all cost which was a very bad decision. So for two years I was more or less passive aggressive as to dealing with this issue I had pain medicine. Well after 6 months of taking that crap guess what, yea my body became "dependent" on it. So for the next year and a half I was struggling to try and keep my job working in so much pain there were some nights where I would call my brother who lived 3 hours away crying to him telling him I was going to take a knife to my leg. I got very close a couple times but never did go through with it thank god. In that year and a half I got nothing accomplished and i was at my limit as far as what my rheumatologist could prescribe me for pain. So my brother who is in the NAVY had me move down to Augusta with him and I started seeing a pain mgt. dr. there. He actually has MS and is in a wheelchair. But he is my saving grace. So about a year ago today I saw him for the first time and he didn't do what many dr.'s before him had done and just hand me out opiates. Even with all my records right in front of him he said "NO! Not until we find the issue. So he ordered an xray of my back to my dismay because I've already had several. Well I got my xrays back at my next visit with him and they showed nothing just like I knew would happen. By this time I was straight pissed and in so much pain I wanted to punch him off his scooter. But what does he tell me, again "NO Opiates until we find out the problem. So he told me about this mri office that does pay for here mri's for $275!? Had I known there were places like that I would of gotten one a long time ago. So I go back to see my pain dr. and his tude changed immediately! He said "Bud I'm sure glad you had that done, and he showed me on the screen I had severely herniated disc at L5S1 and pretty significant degeneration on my upper disc as well. So ever since then I've been on the 50mcg fentynal patchs and 90 15mg roxys a month for pain and was doing great with it. Like I said toward the beginning, I'm in recovery right now from surgery 24 days ago. So far my leg pain is only a little better, I'm still praying though, I'm 23 and have been through a lot in the past 3 years. Nick I truly wish you a better balance in your life whether it be having a better surgery outcome, finding some type of natural relief therapy, or even a better balance of narcotics to help your pain. I am a true believer that narcotics in the right quantity and dose can be beneficial to the average person, especially one that's in pain, they just should be monitored closely.There are studies that have proven some narcotics help the cognitive system as well as other systems of the body. Obviously this can be disproved as it surely doesn't apply to everyone. But anyways Nick I wish you the best, god bless

    Thomas
    tgs12989
  • I was only 17 years old when I had my first back surgery.
    Lamenectomy L4-5 and even though recovery was tough

    Being younger is better, because your body will heal faster

    If you have to have a fusion or another surgical procedure, I would say GO FOR IT!

    You have youth on your side

    I suggest a neuro surgeon

    Castle connolly book TOP DOCTORS, go to a bookstore or amazon and buy one

    Peer review of doctors who are the best in their field

    doctors are asked, if you were ill or a family member of yours, what doctor would you go to or who would you send a family member to?

    Hugs
    Rose
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  • tgs12989ttgs12989 Posts: 2
    edited 10/05/2013 - 9:44 AM
    nick just curious, has one of your dr.'s ever mentioned allodynia to you?
    if you don't know what that is, i'll make it easy for you lol
    edit
    post edited by the spine health moderation teamplease review the forum rules prior to posting at these links for more information.
    https://www.spine-health.com/forum/announcements/spine-health-announcements/current-spine-health-forum-rules

    https://www.spine-health.com/forum/announcements/spine-health-announcements/changes-forum-rules

    tgs12989
  • Sounds like RSD

  • The doctors and myself are pretty sure my butt pain, leg pain after behind the knee, knee pain (started last week) and foot pain is not related to the spine. For many different reasons. It also as of 3 days ago, i have neck/face/shoulder pain. literally it just spreads now it has spread to my upper half of my body! i'm losing it! i'm so miserable and depressed. no doctor knows whats wrong with me!!
  • tgs12989 said:
    Ok so I've pretty much read all of your post Nick and trust me there are a lot throughout this site! So I am sort of up to date on you (maybe) But first let me start off by saying I totally understand everything you say. I'm 23 right now and just had my first back surgery ( L5S1 discectomy) basically removed the whole disc and took off a little bit of vertebrae and of course cleaning out the area 24 days ago today! Before my surgery I had been dealing with HORRIFIC RIGHT LEG PAIN that pretty much matched every single word how you described yours. So I want to thank you because probably about 7 months ago when I found you on here and read some of your posts they really helped me deal with my issues knowing that I'm not just crazy and this can be happening to someone else. I didn't have insurance for the past 3 years so I had been putting off an mri for as long as I could (way too long) I had one done when I was 18 and it showed nothing so with insurance I payed $1100 for an mri that showed nothing, but that was before my horrible right leg pain that goes from my upper right but cheek down my thigh and is by far the worse behind my knee cap in that bend. It gets so bad that the back of my knee puffs out like the size of a tennis ball and bruises appear there as well. That is by far the issue, when I tell someone I'm in pain, it's not my thigh or back I'm really referring too, it's the back of my calf up about 6 inches past the bend on your knee and of course only in the back, no pain ever in the front. Don't let me fool you hell yes I have back pain and basically whole right side pain but all of that doesn't even come close to the pain the back of my knee experiences! I had a horrible limp walk for the first 2 years until I finally got my pain management better fitted to me. I was on 120 roxycodone 10mg, 120 soma 350mg, and cymbalta 60mg ( got free samples from doc, too expensive without insurance) Well 2 years is a long time to limp around and be in as much pain as I was in. Some Dr.'s thought I had a bakers cyst because the back of my knee puffed out so much, I had an ultrasound done which was just a waste of money because it didn't show anything. So I tried to avoid getting another MRI at all cost which was a very bad decision. So for two years I was more or less passive aggressive as to dealing with this issue I had pain medicine. Well after 6 months of taking that crap guess what, yea my body became "dependent" on it. So for the next year and a half I was struggling to try and keep my job working in so much pain there were some nights where I would call my brother who lived 3 hours away crying to him telling him I was going to take a knife to my leg. I got very close a couple times but never did go through with it thank god. In that year and a half I got nothing accomplished and i was at my limit as far as what my rheumatologist could prescribe me for pain. So my brother who is in the NAVY had me move down to Augusta with him and I started seeing a pain mgt. dr. there. He actually has MS and is in a wheelchair. But he is my saving grace. So about a year ago today I saw him for the first time and he didn't do what many dr.'s before him had done and just hand me out opiates. Even with all my records right in front of him he said "NO! Not until we find the issue. So he ordered an xray of my back to my dismay because I've already had several. Well I got my xrays back at my next visit with him and they showed nothing just like I knew would happen. By this time I was straight pissed and in so much pain I wanted to punch him off his scooter. But what does he tell me, again "NO Opiates until we find out the problem. So he told me about this mri office that does pay for here mri's for $275!? Had I known there were places like that I would of gotten one a long time ago. So I go back to see my pain dr. and his tude changed immediately! He said "Bud I'm sure glad you had that done, and he showed me on the screen I had severely herniated disc at L5S1 and pretty significant degeneration on my upper disc as well. So ever since then I've been on the 50mcg fentynal patchs and 90 15mg roxys a month for pain and was doing great with it. Like I said toward the beginning, I'm in recovery right now from surgery 24 days ago. So far my leg pain is only a little better, I'm still praying though, I'm 23 and have been through a lot in the past 3 years. Nick I truly wish you a better balance in your life whether it be having a better surgery outcome, finding some type of natural relief therapy, or even a better balance of narcotics to help your pain. I am a true believer that narcotics in the right quantity and dose can be beneficial to the average person, especially one that's in pain, they just should be monitored closely.There are studies that have proven some narcotics help the cognitive system as well as other systems of the body. Obviously this can be disproved as it surely doesn't apply to everyone. But anyways Nick I wish you the best, god bless

    Thomas
    Best of luck. you should be okay. difference between me and you is they found something really wrong. WIth me they did at first, but 2 surgeries later, I still have the same leg pain and now foot, knee, ass and neck pain.
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